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Chronic Regional Pain Syndrome ....
Saffy2000
Member Posts: 2 Listener
Hi ... I was tootling along on my mobility scooter in 2017 when one of the wheels hit an obstacle under a load of leaves that were on the pavement and it tipped my scooter and myself sideways onto the main road, right in front of a car! (Yup, still having nightmares)
After two weeks and many tests in Hospital, I was told I had CRPS or Chronic Regional Pain Syndrome ... it’s where the brain reacts as though the injury has just happened ... it’s three years later and I’m still in pain. in fact it’s worse, if anything.
I wondered if anyone else here had been diagnosed with this and just how did you ‘get your head around’ something like this.
I have physical symptoms ... my hand either feels like it’s being held in a bucket of ice cubes and not being able to take it out, or it is red and sweaty and feels like it’s on fire. This pain never goes away. My pain medication that I take for other issues, helps a little, but the persistent pain of CRPS is like nothing I have had before.
I already have failed back syndrome, sciatica, back spasms - now my hand spasms and I wake with it in a claw ... my mental health isn’t good at all, and I feel like I’m swinging by the seat of my pants some days ...
Anyway ... that’s part of what’s ‘disabled’ about me ... other than that, I’m tickety boo and hope that in my posts to come, I can help make people smile a little.
After two weeks and many tests in Hospital, I was told I had CRPS or Chronic Regional Pain Syndrome ... it’s where the brain reacts as though the injury has just happened ... it’s three years later and I’m still in pain. in fact it’s worse, if anything.
I wondered if anyone else here had been diagnosed with this and just how did you ‘get your head around’ something like this.
I have physical symptoms ... my hand either feels like it’s being held in a bucket of ice cubes and not being able to take it out, or it is red and sweaty and feels like it’s on fire. This pain never goes away. My pain medication that I take for other issues, helps a little, but the persistent pain of CRPS is like nothing I have had before.
I already have failed back syndrome, sciatica, back spasms - now my hand spasms and I wake with it in a claw ... my mental health isn’t good at all, and I feel like I’m swinging by the seat of my pants some days ...
Anyway ... that’s part of what’s ‘disabled’ about me ... other than that, I’m tickety boo and hope that in my posts to come, I can help make people smile a little.
Replies
I am sorry for the pain you are getting I havent heard of that one before but I am sure other members may have some insight
Have you been referred to a specialist at all or maybe a physio could help IUm not too sure
I look forward to seeing you around and hope you get to help
Scope community team
Like, @Janer1967 says - are you getting any support with it? I wonder if physio, massage or referral to a pain clinic could help?
I hope you are feeling okay today
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Scope community team
The only potentially useful resource I could find is this page on the NHS website, but otherwise I think massage or physio therapy are both good avenues to pursue, as well as pain clinics.
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Here are some pain resources. I appreciate that they won't completely eliminate your pain and what you feel is real. However, there is some great information about managing pain which could be helpful.