Change of Circumstances
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DuffersMum
Online Community Member Posts: 204 Empowering
Not posted for 18 months or so. I was awarded standard care and standard mobility until Feb 2022...I’ve been plodding along since my last assessment. My condition is now getting worse...about to have X-rays on my hands as GP thinks I now have osteoarthritis there, I’m finding it hard to undo cans, use a normal knife and fork, pick up pans/kettle etc...as well as that the OA in my hips and back is getting worse. A T2 diabetes diagnosis is also looking likely and I suffer greatly now from numbness in my toes (possibly connected to the T2) which makes walking even more difficult (happy days eh 
I received a letter last week advising that they are extending my award until November 2022 but I’m thinking if the X-rays show OA I should possibly do a change of circumstances?
I received a letter last week advising that they are extending my award until November 2022 but I’m thinking if the X-rays show OA I should possibly do a change of circumstances?
I’m not sure how PIP assessments are being carried out at the moment or how far behind they are in dealing with claims/changes.
Any advice will be greatly appreciated..
Any advice will be greatly appreciated..
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Comments
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HI,Have you looked at the PIP descriptors to see if it's possible to score more points than you already have? PIP isn't about a diagnosis, it's how those conditions affect you against the PIP descriptors. Reporting a change of circumstances mean you'll be sent more forms (PIP2) to fill in and return. https://www.citizensadvice.org.uk/Documents/Advice (public)/PIP – table of activities, descriptors and points.pdfFace to face assessments are still suspended and most people are having telephone assessments.Although your award has been extended, this doesn't mean you won't still receive the review forms 6 months before your original award date ends. They are extending a lot of peoples awards because of the backlogs.Good luck,. what ever you decide.
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Yes the letter said they would be in touch, I’m expecting it to be around August still but will give them more time to assess and award as appropriate, that’s not a problem,
My last application was based more around my mobility problems, I’ve looked at the descriptors and think I could possibly get more points under the care element, from memory I think I was only one or two points off getting enhanced care...I have to use more aids now for daily living duties (damn nuisance and does my head in, I find it so frustrating that I can’t open a bottle of milk etc without needing something to assist)0 -
Hi and welcome
Nobody can really tell you what to do but personally I would wait until your review as a change will trigger a new assessment and decision and you could risk losing the award you have .
But that is just my opinion if you feel you would get a higher award then that's your decision just weigh up how much that would mean to you given going through the process
Good luck in whatever you choose0 -
Yes, I realise there is a risk but if a condition has go worse, or a new condition appears then it shouldn’t (but we all know how assessors are different, I had an awful one who spouted a load of lies, whereas my husband had a lovely one who took note of everything he said) I’m waiting to see what the X-rays say before making a decision0
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PIP isn't awarded based on any diagnosis, if your worsening or condition has been present for at least 3 months and you expect it to last for at least another 9 months and you think you can score more points for a higher award, i don't see what difference an X ray result would make to how your conditions affect you.
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@DuffersMum alot of people say that they lie i always do everything in writing and tske a copy for myself I find it alot easier lol ?0
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Poppy, yes I know that but I just feel having some evidence about my condition would at least prove I’m telling the truth...my last assessment was full of lies in the report..next time I intend to give every single piece of evidence I can...for instance the assessor said because I didn’t go to pain management then my problem was obviously not worthy of being considered..that my GP thought it wouldn’t make an iota of difference to my condition if I went was totally ignored...also the hand problem could be associated with the most likely diagnosis of T2 diabetes I’m shortly to receive..so GP wants to know one way or the other.0
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@DuffersMum maybe the xrays eill show weather you have another condition aswel I did the same got every shred of evidence I could get0
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I have t2 diabetes and yes the issues with the hand can be related this is peripheral neuropathy.
I am no medical expert but in my experience I had been diagnosed t2 for over 25 years b4 this neuropathy developed , everyone is different
They say less is more with evidence and unless it is relevant and details how your condition affects your daily living then I wouldn't wait for it
By the time you get results from all the tests you could have your review forms anyway0 -
I’m hoping that is the case with the hands..I suspect it’s more likely OA as my body is riddled with it.janer1967 said:I have t2 diabetes and yes the issues with the hand can be related this is peripheral neuropathy.
I am no medical expert but in my experience I had been diagnosed t2 for over 25 years b4 this neuropathy developed , everyone is different
They say less is more with evidence and unless it is relevant and details how your condition affects your daily living then I wouldn't wait for it
By the time you get results from all the tests you could have your review forms anyway
My GP wants the X-rays..I’m just interested to know one way or the other..I think I will find my award letter and compare how I was then, to how I am now and then make a decision.
thanks1 -
Thank you, much appreciatedCressida said:@DuffersMum . This site is very good and offers a lot of 'aids' to help in the kitchen. You might find something there to help a bit.
https://www.completecareshop.co.uk/household-aids/kitchen-gadgets/0 -
I’ve found my last award and I think I should definitely get another 2 points on daily living...I got 9 points last time but she omitted to give me 1 point for using a pill box (told you she was useless) so with that as well it should get me up to 12 points. Whilst my mobility has got worse (well the back problem more than the legs) I doubt I’d get given the 2 extra points I need there to get enhanced for that but I will of course mention how it affects me...you never know!
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Is it a dosette box supplied by the pharmacy?
I use a pill box but fill it myself and got no points for this.
Just thought I'd mention
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@woodbine I didn't say the condition will get her pip but the condition could affect the use of her hands thst will make it difficult to fo things that will help her get pip its the condition thst causes the problems and depends a debate on channel four why do alcoholics get pip and some one who has a false leg cant0
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Interesting @lisathomas50 and @woodbine I am an amputee with a prosthetic leg that I am unable to use
So as stated some people with false leg get back to almost full mobility but will still need to use a wheelchair at times eg you dont wear the leg in bed so if you wake up needing the loo it takes a while to put a leg on so most use chair for this instead
Also if there is any irritation on the stump site you cannot wear the leg
Not everyone can use a false leg
My knee will not support me enough to use mine it dislocated due to increased pressure
I am also blind in one eye so this affects balance and have no feeling in my other leg so I cant feel uneven surfaces or see them
It is far safer tho disabling to use my wheelchair
Sorry if I have gone on a bit but was just pointing out irh my own example that it's not about diagnosis but how you are affected by that condition1 -
@woodbine id mainly how does your disability affects you not everyone on pip has care0
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@janer1967 and that is what I was trying to say there was a programme on channel four a whilst ago about pip and the lady who had a false leg couldnt get pip and the lady who was an alcoholic could
But whatever I say is wrong1 -
@lisathomas50 I wasnt getting at what you said
I was just pointing out how what looks like the same disability affects people differently
Some amputees do get pip some dont as lots go on to near full mobility
I am sure people look at me and think why doesn't she have false leg but it just isnt that simple
Believe it or not you have to be approved to get a prosthetic leg by physio report and be under a certain weight and get consultant approval2 -
I know its hard as I had a man who tried it when I worked in care and he didn't cope with it very well
The programme was actually very good the lady who had the false leg cant spell the proper name desperately needed help she had applied and was refused it showed all her daily life and the struggles she had in everything she got realy poorly
Then the other lady drunk as a lord turns up at her assessment drunk with a bottle in her hand not a care in the world got her pip she had carers in that were paid for meals cooked for getting food from the food bank the lot on pay days she would buy loads of booze use all her pip buying booze in the program she left the carers in the flat
It was a good programme thecswsnsea love story was the same they got pip and they were all taking drugs again a good programme but makes you wonder how pip gets it so wrong0 -
I don't usually speak about this but my dad was an alcoholic, sadly he passed away on 12th Feb 1981. He was 37. I was just 9 years old.Please don't compare 1 person against another. We all suffer with our disabilities in one way or another and no one is any worse than the next person. No one knows what goes on behind closed doors.You can have a disability but not be entitled to PIP because if you don't fit the descriptors, you won't score the points for an award.
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