Cerbal palsy — Scope | Disability forum

Cerbal palsy

ssutton1998
ssutton1998 Member Posts: 24 Connected
edited January 24 in Cerebral palsy
Hello my name is Sam I have cerebral palsy hemiplegia I'm 22 years old is it true does it get worse when I get older 
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  • Cher_Inactive
    Cher_Inactive Posts: 4,414

    Scope community team

    edited January 24
    Hi @ssutton1998

    I hope you don't feel like I'm following you about the community  :D

    I don't have Cerebral palsy and wouldn't be able to confidently answer your question, but I know our resident CP Specialist Information Officer could.  I'll tag him in @Richard_Scope so he can see your post the next time he's around the community.

    I also wondered if you'd spotted our adverts for the fortnightly online zoom chat our members with CP (20 years plus) go to.  Here's a link containing more information for you to have a nosey at and there's no pressure to attend either way.
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.

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  • Richard_Scope
    Richard_Scope Posts: 2,948

    Scope community team

    Hi @ssutton1998
    Great to virtually meet you. 
    The neurological aspect of our disability doesn't change but the physical aspect can as we age. This is partly due to wear and tear on our joints. This is some called Post-Impairment Syndrome.
    There are things that we can do to slow this down though. Things like staying active, maintaining a healthy body weight for your build and stretches.
    If you are experiencing fatigue, I would always be cautious and mention it to your G.P. just to investigate for any other reasons for the tiredness before we blame it all on CP. Again, if CP is the cause of the fatigue this can be managed by planning workloads and activity and remembering that rest days are important (something I'm terrible at).
    Please try not to worry. We're here to support you.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • ssutton1998
    ssutton1998 Member Posts: 24 Connected
    @Richard_Scope hi there thank you for your message this has helped me alot thank you i keep in touch 

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