Cerbal palsy

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ssutton1998
ssutton1998 Online Community Member Posts: 24 Connected
edited January 2021 in Cerebral Palsy Network
Hello my name is Sam I have cerebral palsy hemiplegia I'm 22 years old is it true does it get worse when I get older 

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  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,714 Championing
    edited January 2021
    Hi @ssutton1998

    I hope you don't feel like I'm following you about the community  :D

    I don't have Cerebral palsy and wouldn't be able to confidently answer your question, but I know our resident CP Specialist Information Officer could.  I'll tag him in @Richard_Scope so he can see your post the next time he's around the community.

    I also wondered if you'd spotted our adverts for the fortnightly online zoom chat our members with CP (20 years plus) go to.  Here's a link containing more information for you to have a nosey at and there's no pressure to attend either way.
  • Richard_Scope
    Richard_Scope Posts: 3,777 Cerebral Palsy Network
    Hi @ssutton1998
    Great to virtually meet you. 
    The neurological aspect of our disability doesn't change but the physical aspect can as we age. This is partly due to wear and tear on our joints. This is some called Post-Impairment Syndrome.
    There are things that we can do to slow this down though. Things like staying active, maintaining a healthy body weight for your build and stretches.
    If you are experiencing fatigue, I would always be cautious and mention it to your G.P. just to investigate for any other reasons for the tiredness before we blame it all on CP. Again, if CP is the cause of the fatigue this can be managed by planning workloads and activity and remembering that rest days are important (something I'm terrible at).
    Please try not to worry. We're here to support you.
  • ssutton1998
    ssutton1998 Online Community Member Posts: 24 Connected
    @Richard_Scope hi there thank you for your message this has helped me alot thank you i keep in touch 

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