Cerbal palsy — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Cerbal palsy

ssutton1998 Member Posts: 24 Connected
edited January 24 in Cerebral palsy
Hello my name is Sam I have cerebral palsy hemiplegia I'm 22 years old is it true does it get worse when I get older 


  • Cher_Inactive
    Cher_Inactive Posts: 4,414

    Scope community team

    edited January 24
    Hi @ssutton1998

    I hope you don't feel like I'm following you about the community  :D

    I don't have Cerebral palsy and wouldn't be able to confidently answer your question, but I know our resident CP Specialist Information Officer could.  I'll tag him in @Richard_Scope so he can see your post the next time he's around the community.

    I also wondered if you'd spotted our adverts for the fortnightly online zoom chat our members with CP (20 years plus) go to.  Here's a link containing more information for you to have a nosey at and there's no pressure to attend either way.
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
  • Richard_Scope
    Richard_Scope Posts: 2,914

    Scope community team

    Hi @ssutton1998
    Great to virtually meet you. 
    The neurological aspect of our disability doesn't change but the physical aspect can as we age. This is partly due to wear and tear on our joints. This is some called Post-Impairment Syndrome.
    There are things that we can do to slow this down though. Things like staying active, maintaining a healthy body weight for your build and stretches.
    If you are experiencing fatigue, I would always be cautious and mention it to your G.P. just to investigate for any other reasons for the tiredness before we blame it all on CP. Again, if CP is the cause of the fatigue this can be managed by planning workloads and activity and remembering that rest days are important (something I'm terrible at).
    Please try not to worry. We're here to support you.
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • ssutton1998
    ssutton1998 Member Posts: 24 Connected
    @Richard_Scope hi there thank you for your message this has helped me alot thank you i keep in touch 


Do you need advice on your energy costs?

Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.