The waiting game — Scope | Disability forum

The waiting game

So my partner was officially diagnosed with MS in November, and to be honest it was kind of a relief!! He had been suffering with so many symptoms, but the doctor refused to diagnose him (we believe it’s because his mum also has ms and they don’t link to link family members), and he thought he might be going crazy!!
Anyway, after the diagnosis, I applied for pip, esa and UC for him, I also booked an appointment for an occupational therapist and he has also had a referral for a psychologist and a knee specialist. 
At the moment we are limbo either waiting for assessments, reports or appointments and I know COVID is partially responsible and I know I should be more patient, but I hate all this waiting. You feel like you can’t move forward with your life until it’s all sorted, and it’s driving me nuts!!
Anyway, sorry for the rant, but it’s nice to get these things off your chest sometimes?


  • Adrian_Scope
    Adrian_Scope Posts: 8,595 Scope online community team
    I'm sorry you both had to fight so hard for a diagnosis but I'm glad it's been something of a relief for you.
    When did you put in the applications for each of them? Fingers crossed you're not kept waiting too long. :)
    Community Manager

    Tell us how to make the community better for you. Complete our feedback form.
  • Charlieniblett
    Charlieniblett Member Posts: 54 Connected
    The pip form was sent back end of dec as was the esa WCA, but we had the assessment on Tuesday for esa, so just waiting on the pip assessment. We also had the OT out last week and are waiting on a needs and housing report, which hopefully will lead to a council bungalow, as my partner needs level access.
  • janer1967
    janer1967 Member Posts: 15,894 Disability Gamechanger
    It Is very frustrating waiting for everything to get in place 

    You could have sorted some of these without a diagnosis as PIP isnt about diagnosis but I understand why people wait 

    Fingers crossed things are moving 

    What is availability of bungalows in the area . 

    You may have long 
     wait even with ot report I'm afraid for level housing . I waited a year but was only put as priority due to about to become homeless with a dependant child 

    Keep us up to date on progress 
  • Charlieniblett
    Charlieniblett Member Posts: 54 Connected
    Yeah, we wanted to wait until the diagnosis as the medical evidence helps, but also didn’t realise you could apply without a diagnosis.
    Luckily in our area there are quite a few bungalows as our local council ma agate and maintain all of their own properties. Unfortunately due to COVID, a lot are going to become available according to the housing advisor.


Do you need advice on your energy costs?

Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.