Hello all, I’m Sarah
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MadeInTheUK
Community member Posts: 20 Connected
I’ve just joined and I’m really looking forward to finding support and connections within the disabled community. I have CES (Cauda Equina syndrome) which left me with nerve damage in my right leg as well as other complications after emergency surgery in 2017 to remove a herniated disc that was crushing the nervous system at the base of my spine (the Cauda equina) which controls everything from your waist down. I have also got severe bilateral osteo arthritis. most days I am in chronic pain and my mobility is limited. From the outside I look absolutely fine and nobody would know the horrors within. It took me a while to accept that I have a disability, it is a grieving process and also a humiliating one, depending on others at times.
I am a single mum to a teenage boy who is great most of the time, but I know he hates what this has done to me and wishes he could have his energetic bouncy mum back.
There is a lot of change going on in my life and I hope to steer through it with the help from some of you guys. Xx
Comments
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Welcome to the community @MadeInTheUK It's been good to see you get stuck straight in to some discussions! I can also see that you've connected with @Daniel_2021, who also has CES, which is great.
We've heard many disabled people compare that feeling to the grieving process, so you're certainly not alone in feeling that way.
Are you receiving enough support to help you manage your chronic pain and mobility issues at the moment? As you may have seen, we have categories dedicated to discussions relating to both chronic pain and mobility.
I'm sure that you're still a wonderful mum
Please reach out to us whenever you need! -
Hi and welcome to the community
Glad you are joining in
I am in similar situation in that I am disabled single mum to teenager son who 4 years ago saw me become disabled overnight and no longer able to work or drive and wheelchair bound . He has dealt with it amazingly and has been my rock
Hope you enjoy your time here -
Hi @MadeInTheUK - & welcome to the community from me also. It's a great coincidence that Daniel, who also has CES, joined just before yourself. As Tori says, it's good that you've got in touch with him, tho I'm sorry you've both suffered as a consequence of having CES.Everyone here is both friendly & supportive, so do use this forum to chat at any time. It's very nice to 'meet' you, & I hope you enjoy being part of this group.
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Tori_Scope said:Welcome to the community @MadeInTheUK It's been good to see you get stuck straight in to some discussions! I can also see that you've connected with @Daniel_2021, who also has CES, which is great.
We've heard many disabled people compare that feeling to the grieving process, so you're certainly not alone in feeling that way.
Are you receiving enough support to help you manage your chronic pain and mobility issues at the moment? As you may have seen, we have categories dedicated to discussions relating to both chronic pain and mobility.
I'm sure that you're still a wonderful mum
Please reach out to us whenever you need! -
janer1967 said:Hi and welcome to the community
Glad you are joining in
I am in similar situation in that I am disabled single mum to teenager son who 4 years ago saw me become disabled overnight and no longer able to work or drive and wheelchair bound . He has dealt with it amazingly and has been my rock
Hope you enjoy your time here -
Thank you @chiarieds. It’s nice to meet you too. I’m looking forward to getting to know you all ?
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I'm sorry that you don't have a lot of support @MadeInTheUK, but I'm sure you'll find our members to be friendly and supportive I look forward to seeing you around!
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