In a really bad place right now really nneed my friends on here

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  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing
    This is what I keep saying to my community team my meds need looking at again but they refuse as they say I just got out of hospital So they won’t be looking at again according to them . 

    Clearly some thing Is wrong with me because this isn’t normal 
    living life like this Is very hard . 

    I think I might need to go back into hospital so things get done quicker but I don’t want to go back in hospital my community team are **** they should be doing more for me because this is a joke . 

    You have to have a call back from the crisis team to go to the crisis pad you can’t just go unfortunately which Is a shame . 

    Thanks for all your support again xx



  • chiarieds
    chiarieds Online Community Member Posts: 16,826 Championing
    I'm sorry you can't just go to the crisis pad @cupcake88 - if it's available, then why not make it freely available to people that it's known have problems?
    Your community team really should be doing more. If you have to put up with us lot before you hear from the crisis team, I hope you will. <3
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hi @cupcake88 please do keep us updated, I hope you get to speak to the crisis team soon, as I know the pad is a really positive thing for you. We're all here to support you. 
  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing
    Hi every one the crisis pad is full tonight for appointments so I had a support call from the crisis pad and I feel bit better .  My partners not home for a couple of hours 
    so I have to distract my self . 
    I’m going to look at wedding things see if that distracts me . 

    What I need is a good medication that stops me from having suicidal thoughts because this is horrible feeling like this . 

    Thanks for all your support 
  • chiarieds
    chiarieds Online Community Member Posts: 16,826 Championing
    Sorry the crisis pad is full @cupcake88 -  but good they gave you a support call. Won't be long until your partner is home, so good you're looking at distracting yourself.....I can't think of anything nicer than looking at wedding things.
    As Lou & yourself have mentioned, perhaps your medication needs adjusting, or perhaps it might just take some time until you feel better. What's your GP like; could you discuss this with him? Perhaps he could talk to you about your last consultant's recommendations, & where he feels you are with this.
    It's a pleasure to try & support you; you'd do the same for any of us, I know. You're such a lovely person, & we all want you to feel better, xx
  • Lou67
    Lou67 Online Community Member Posts: 8,711 Championing
    Hi cupcake 

    Yeah you should trying speak to your doctor see what he thinks about your meds.

    So glad you have as lovely a thing as your wedding to keep you going.

    Hope you get a good sleep tonight.
    As chiarieds sd it’s a pleasure to be here for you.

    Good night ❤️

  • Tori_Scope
    Tori_Scope Scope Posts: 12,464 Championing
    Hey @cupcake88 :) How are you feeling today? 

    I'm also glad you were able to get a call from them, and that it made you feel a little better. 

    Did you find any nice wedding things? 
  • chiarieds
    chiarieds Online Community Member Posts: 16,826 Championing
    Hi @cupcake88 - how are you today? Miserable weather here as we've had sleet, & now snow. Hope you're feeling a bit better, xx
  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing
    Hi every one how was your weekends ? I have had to call the crisis team a few times . My nurse is coming tomorrow I’m sure she 
    will have ago at me bout some thing she always does . 
    Especially how I have requested a new nurse I’m sure I’ll be questioned bout that . 
    She has nothing helpful to say or do . 

    My gp is amazing but because I’m under a consultant he wont change my meds I have already asked him . 

    I’m just anxious bout my nurse coming tomorrow because she’s just so mean to me . I duno if I’ll let her in if I’m honest lol x 
  • chiarieds
    chiarieds Online Community Member Posts: 16,826 Championing
    I'm pleased you have the confidence to call the crisis team. That's exactly the right thing to do when you need them. Try to not let your nurse get to you, & try not to be anxious about her coming tomorrow. Everything may well be OK, but if she does start having a go at you, just don't engage with her. I hope you get a new nurse soon. It's good to read you have an amazing GP. Can he not ask your consultant for his views on your meds? Sending hugs, xx
  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing
    I’m gonna ring my gp again I think because my community team really are no help . My mood is still low and I’m still suicidal and yet they do nothing part from telling me to distract my self. 

    I start my therapy in March so that could either help or I could have a step back it’s trauma therapy I’m having . I’m just not letting my team upset me any more and keep them in back ground because they don’t 
    do any thing and I dislike my nurse if she makes me cry again tomorrow I won’t be letting her next time , 

    Thanks for all your support it means the world to me x 

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hi @cupcake88

    Thanks for responding, it's lovely to hear from you again as always. My weekend has been pleasant so far thank you, it's quite chilly and windy where I am so I'm taking comfort in being nice and warm indoors. 

    I'm glad that you have been in touch with the crisis team, as mentioned previously by @chiarieds it is good that you feel able to contact them, and I would encourage you to keep getting in touch with them if you need the support. 

    I'm sorry that your nurse visitng tomorrow is causing you so much anxiety, you should never be made to feel that way by somebody who is supposed to help and support you. I really hope that it goes better than you think it will, but always remember that whatever she says we think you are doing fantastically, and you have all the support in the world on here.

    The fact that your GP is amazing is really nice to hear, contacting them again sounds like a really good idea, and hopefully they will be able to help. But of course, it's a shame that you don't feel well supported by the community team.

    Take care, and feel free to post on here whenever you'd like.
  • Lou67
    Lou67 Online Community Member Posts: 8,711 Championing
    Hi cupcake 

    Sorry to hear your worried about your nurse coming tomorrow, but hopefully it goes well.

    Hopefully they change your nurse soon, because having someone you can get on with and can rely on would be so much better for you.

    In the meantime remember your cared for by a lot off people.

    Stay strong ❤️


  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing
    Hi every one thanks for all the amazing support from you all I don’t know what I would do with out you all . You all support me which means a lot . 

    My nurse came this morning 
    and no telling offs this morning which was good was she helpful well not at all . I told her how I was feeling she didn’t seemed bothered . I mean last night I was in such a bad way I didn’t sleep and my partner bless him 
    stayed up with me we was 
    gonna go to a n e last night 
    but I thought no I’ll only be waiting ages to be seen . 

    My community team are just not helpful . This low mood isn’t going any where I feel like I’m on the wrong medication but then she don’t listen to me . 
  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing
    Hi Libby thanks for your reply my partner has told them they don’t do enough for me and there’s more they could be doing for me and he just gets ignored as well With them he’s not happy with my care he thinks if they did a better 
    job I wouldn’t be in hospital 
    every 5 mins . 

    My partner is amazing he’s been by my side threw all my down days he’s such a good man and I can’t wait to marry him . 

    Yes I will keep my gp updated with what’s going as your right it’s good to let them know Incase 
    they can offer any other 
    support . 

    X 
  • chiarieds
    chiarieds Online Community Member Posts: 16,826 Championing
    Hi @cupcake88 - I'm sorry you had such a bad night; I don't suppose worrying about your nurse's visit today helped. I'm pleased she wasn't confrontational, but not being bothered about what you say & your concerns is another matter; the sooner you get a new nurse the better.
    Yes, do keep talking to your GP, perhaps he can help about your community team, as they're not offering you the help & support you need.
    Keep strong my dear friend, & hope you & your partner have a restful night tonight, xx
  • Lou67
    Lou67 Online Community Member Posts: 8,711 Championing
    Hi cupcake 

    Sorry to hear your nurse wasn’t very helpful again today.
    Just keep speaking up as you have been and asking for a new nurse.

    As chiarieds  sd  maybe speaking to your doctor to trying get things done for you.

    Stay strong ❤️
  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing
    Hi every one 

    There’s still no news on me having a new nurse but i doubt they will hurry to find me one . I have my injection today it feels like it goes by so quick having weekly injections . 

    I’m having a hard time tonight I can’t sleep I’m on hold to crisis so gonna speak to them see if I feel 
    better after wards . 

    My amazing partner is fast 
    asleep bless his heart he stayed up with me all night last night and he has work early in the morning 

    x

  • Lisatho11987777
    Lisatho11987777 Scope Member Posts: 5,874 Championing
    Hope things get better for you soon 
  • chiarieds
    chiarieds Online Community Member Posts: 16,826 Championing
    Sorry you're having a bad night again @cupcake88 - I had hoped you'd both would have a peaceful night. Sorry you can't sleep, but you're doing exactly the right thing in contacting the crisis team. Hope they help, & soon.
    You do indeed have an amazing partner; focus on him.

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