Physical impairments and mobility issues
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Arthritis Pain

StockingStocking Member Posts: 4 Listener

Replies

  • Hollands_106_2717_Hollands_106_2717_ Member Posts: 18 Listener
    Hi sue how are you doing I have Arthritis like you and just getting over a bad flare up xxxxx
    E Stebbings
  • StockingStocking Member Posts: 4 Listener
    Hi I'm in pain all the time. The pain killers don't help.
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Hi @Stocking welcome to the community, have you had support from your doctors or pain clinics about long term pain?

    Have you heard of the Challenging Arthritis courses run by Arthritis Care?  Do check out the link, it might be helpful to you.

    Working alongside community groups and health and social care professionals, our trained volunteer champions encourage you to take a proactive role in managing the physical, mental and emotional aspects of arthritis. 
    Their range of services are provided through peer to peer support, over the phone, at drop-ins, in groups or one on one.
    Scope
    Senior online community officer
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Also take a look at our Chronic Pain group to talk to other members who are dealing with long term pain.
    Scope
    Senior online community officer
  • StockingStocking Member Posts: 4 Listener
    There don't seem to be any thing in Wolverhampton for Arthritis suffers. 
  • sharrontsharront Member Posts: 9 Listener
    Hi there. New to the group. I suffer from severe arthritis to both knees and one shoulder. I have a scooter but can only use if hubby with me as cannot manage to put it together. I am limited to mobility and living in a first floor flat so try to do the stairs only once a day. My gp says cannot give me anything for pain other than Paracetamol or Codeine Phosphate due to taking Warfarin
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    @Stocking - do you have osteo or rheumatoid arthritis?  If the latter, you could ask your GP to refer you to a consultant rheumatologist at a hospital.

    What painkillers has your GP prescribed?

    I have RA and find that freeze spray eases pain as do hot water bottles.  Ibuprofen gel also helps but that is messy whereas freeze spray is easy to apply and dries quickly.


  • sharrontsharront Member Posts: 9 Listener
    Hi. Thanks for your message. It is osteopathic in both knees but rheumatoid in shoulder. Sadly I cannot use anything like Ibuprofen, Diclofenac or similar gels due to the anti inflamatories in after stomach bleed from the tablets. the cold spray I can use for me knees but no more than twice a day and I recently bought the cold gel knowing the spray was good but didn't seem to do anything. Because of my medications, in particular the Warfarin they will only let me use Paracetamol, cocodamol or Codeine Phosphate. The cocodamol now seems to do nothing for it. The annoying thing is I don't sleep well best of times but it appears to be worse at night now. Last night was shocking. Used the spray at 3am but now got to wait until around lunch time to use again. It's usually the weather change often making it worse but weather pretty steady right now lol. I know we all have good and bad days, just wish it was a few good days together haha
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    @sharront - have you asked your GP to refer you to a rheumatologist?  There might be a suitable medication for you, not just painkillers, that actually treats the RA itself.  There are various medications available - I've been on several different ones over the nearly 30 years that I've had RA.  Ideally, ask your GP to refer you to a teaching hospital where they use the latest (and often the most effective) treatments long before non-teaching hospitals do.

    And a hospital could give you steroid injections in your knees - if that wouldn't interact with the Warfarin.
  • sharrontsharront Member Posts: 9 Listener
    @Matilda. They thought about the injections but said couldn't do for my knees as no 'reasonable site's to inject into. I have had one in my shoulder a couple if years back when they thought thst was osteo and luckily that doesn't pain me as much. Just changed my crutches to a new cuff kind from germany though which also helped the shoulder pain.  GP tells me to grin and bear it!! It is a teaching hospital I go to. The consultant there told me to tick to Paracetamol lol.sometimes feel like a junkie waiting for four hours to come round to get my pills haha. There are worse off than me I tell myself
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger

    @sharront - sorry to hear that your doctors are not helpful.  You might want to check out Arthritis Care's pain management courses as referred to above.
  • sharrontsharront Member Posts: 9 Listener
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Hi @sharront I saw you were looking for arthritis support in Wolverhampton and found this group. Hope this helps  :)
    Scope
    Senior online community officer
  • CiliaLizamaCiliaLizama Member Posts: 1 Listener
    After intense research I purchased Superior cbd pain relief oil for my mother who has severe arthritis in her legs. The hemp oil has helped ease her pain, and allowed her to be more active. I’m so glad it’s working for her.


  • jw0957jw0957 Member Posts: 48 Connected
    Stocking l deeply sympathise with your pain! I have oste arthritis and fibromyalgia. Osteoarthritis affects my whole body but feel it worse in knees, wrists, hands and. Sholders. I have had injections in both knees and left shoulder but it didn’t work ☹️ I then had have surgery in left wrist and shoulder in 2012. Co-codamol is all l can take but it rarely works to relieve pain. I can’t take anti-inflammatory meds due to having had a gastric bypass. Co-codamol causes constipation and the rarely eat. Not good for a bypass patient. My Gp is very good and looks after me, though l don’t have active hospital treatment. I can’t see the point when they can’t really do anything to change my diagnosis. I’m 62 and getting worse as k grow older. 
  • fenfisherfenfisher Member Posts: 18 Connected
    Hi I have been suffering with arthritis for what seems like years I have severe osteo in lower spine for pain I take tramadol,gabapentin .i also take amatiptoline daily.i am asthmatic so have to be carefull, I am lucky to attend pain clinic where I have injections in spine and they work well. I think that despite the pain which is near constant you have to keep moving.  I am also fighting the big c  I do honestly think that some excersie is important I have since retired from work   Regards

  • jojosephinejojosephine Member Posts: 2 Listener
    Matilda said:
    @Stocking - do you have osteo or rheumatoid arthritis?  If the latter, you could ask your GP to refer you to a consultant rheumatologist at a hospital.

    What painkillers has your GP prescribed?

    I have RA and find that freeze spray eases pain as do hot water bottles.  Ibuprofen gel also helps but that is messy whereas freeze spray is easy to apply and dries quickly.


    Cold compresses are most effective in relieving my arthritis pain. At first I used ice packs, they were a bit cumbersome to use. You have to freeze again and again, and it always wets my body. Later I noticed that my arthritis continued to ache, and I checked the cold therapy system for relief pain on the advice of my doctor. It is more convenient than an ice pack. I chose a pad that fits my knees. It can wrap my knees firmly and provide continuous freezing. You can also choose a pad that fits your shoulder.
  • Hannah73Hannah73 Member Posts: 3 Listener
    edited July 19
    <moderator removed - links to advertising not allowed> I found this article, maybe it can help you.
  • lindaketlindaket Member Posts: 4 Listener
    edited July 19
    Hannah73 said:
    <moderator removed - links to advertising not allowed> I found this article, maybe it can help you.
    Thank you, Hannah. What are your thoughts on <moderator removed - links to advertising not allowed>? On the site you linked there's an article about it, but I am unsure whether it is really safe. Do you have any experience?
  • Hannah73Hannah73 Member Posts: 3 Listener
    edited July 19
    lindaket said:
    Hannah73 said:
    <moderator removed - links to advertising not allowed>
    , I found this article, maybe it can help you.
    Thank you, Hannah. What are your thoughts on<moderator removed - links to advertising not allowed>? On the site you linked there's an article about it, but I am unsure whether it is really safe. Do you have any experience?
    Hello, I am unsure, I haven't had a joint replacement, but I think you can read it all <moderator removed - links to advertising not allowed>.  :) 
  • lindaketlindaket Member Posts: 4 Listener
    edited July 19
    Hannah73 said:
    lindaket said:
    Hannah73 said:
    <moderator removed - links to advertising not allowed>
    , I found this article, maybe it can help you.
    Thank you, Hannah. What are your thoughts on 
    <moderator removed - links to advertising not allowed>? On the site you linked there's an article about it, but I am unsure whether it is really safe. Do you have any experience?
    Hello, I am unsure, I haven't had a joint replacement, but I think you can read it all <moderator removed - links to advertising not allowed>  :) 
    Thank you, very helpful.  :|
  • Cher_ScopeCher_Scope Posts: 4,071

    Scope community team

    edited July 19
    Hello @Hannah73 and @lindaket

    Just to make you aware, I've removed the link to the website you both included as it contained an advert for a paid-for service.  Advertising isn't allowed on the community (please see our house rules) so please bear this in mind when constructing future posts. Thank you  
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • hughiemachrinshughiemachrins Member Posts: 40 Connected
    I have arthritis in my knees, wrists and shoulders. I have been taking paracetamol, Co-codamol and using Ibuprofen gel. I have now started on Pregabalin today as the others were not doing the job. I will update if anything changes as they say these could take a few weeks to work. 
  • littleacornlittleacorn Member Posts: 198 Pioneering
    I have osteo all over. I take paracetamol, nefopam, etodolac. At the moment it is not controlling my lower back pain and I hate opiates. Never tried cbd as I dont know where to start but would love to try as I feel it is the only option left.
  • chiariedschiarieds Community Co-Production Group Posts: 9,216 Disability Gamechanger
    edited July 21

    I buy CBD from a reputable company whose CBD is lab certified. This green oil has an additional component, CBDa, which helps with pain. https://www.simply-cbd.co.uk/product/simplycbd-green-10ml-30ml/   The 30ml bottle is the same strength as the 10ml one, but just fractionally cheaper.

    Put one drop of the oil under your tongue three times a day for the first week. Leave under your tongue for 1 min (or a little longer if possible) then swallow.

    The 2nd week you do 2 drops 3 times a day; the 3rd week 3 drops 3 times a day; 4th week 4 drops 3 times a day, then build up each week by an additional drop 3 times a day if needed. If one week you start to feel a little worse again, you drop back to the previous week's dosage, & that should be your maintenance dosage. Some people get results quickly; for others it can take about 8 weeks as everyone is different.

    Initially CBD can make you feel a little dehydrated, so drink a little extra water if you find this.

    We have what is called an endocannabinoid system which tries to keep the body in balance, or homeostasis. This system needs to be 'woken' up gradually, which is why so many people try CBD & think it doesn't work for them if they take too much, or too strong a strength of CBD. So that’s why you start ‘low & slow.’

    See: https://www.healthline.com/health/endocannabinoid-system  for some info.

    The important bit.......CBD is broken down by some liver enzymes that break down over 90% of prescribed medications. For safety's sake it's considered best to leave a 4 hour gap between such meds & taking CBD. otherwise you might not get the effect of your meds, or you might get an accidental overdose of them. CBD is otherwise completely safe. You can ask your GP or specialist about this, but actually a pharmacist may understand more.....ask them if your meds are broken down by the cytochrome P450 complex (the liver enzymes mentioned); if so, it’s best to have a 4 hour gap between taking such a med & CBD.

    If you take any over the counter meds. leave a 2 hour gap between taking them & any CBD to err on the safe side. However, if any of these contain codeine, then a 4 hour gap is best.

    CBD lasts between 4-6 hours, which is why it's best taken 3 times a day. If because of your medication, & leaving a 4 hour gap between taking these & CBD, you can’t manage this, twice a day can still be helpful.

    *Anyone suffering from anxiety should try either of these other starter oils instead, which are lower in strength: https://www.simply-cbd.co.uk/products/light-cbd-oil

    https://www.simply-cbd.co.uk/products/liquid-gold-cbd-oil-with-turmeric-and-black-pepper (however some don’t tolerate turmeric, which can upset the stomach). If suffering from anxiety, start taking CBD even more slowly, i.e. 1 drop a day for a few days, then if well tolerated take one drop twice a day, & build up slowly from there. If anxiety worsens, drop back down to the previous day’s drops. Often people with anxiety are helped by very low doses indeed.                                    ---------------------------------------------------------------------------------------------------------------------------

    From: https://www.rcgp.org.uk/about-us/news/2018/december/rcgp-publishes-guidance-for-gps-on-cannabis-based-medicines-and-products.aspx

    ‘Cannabidiol (CBD) is ... legally available as herbal supplement and is not a prescription medicine.’

    - So, unfortunately, most GPs likely wouldn’t be able to advise where to buy CBD; what strength; how to start taking it; & in what quantities.

    - The info I give is from my personal experience of taking CBD for almost 3 years, & from my research; it is so a person can take CBD most importantly safely, & hopefully effectively. This does not constitute medical advice, & should not be taken as such.

  • littleacornlittleacorn Member Posts: 198 Pioneering
    Thanks @chiarieds for the info I will look into this further. Do you still take ypur prescribed medsor only the oil?
  • chiariedschiarieds Community Co-Production Group Posts: 9,216 Disability Gamechanger
    You're welcome @littleacorn - I'm fortunate in that the only prescribed med I take is Pregabalin, which isn't broken down by the liver. I did check with the pharmacist who's at my GPs surgery anyway, & she was lovely about it. The CBD does in fact take away my lower back pain if I take it regularly, & I'm hoping you find the same. :)
  • erob12erob12 Member Posts: 12 Listener
    Stocking said:
    Hi I'm in pain all the time. The pain killers don't help.
    Not sure if you’ve tried it but I’ve been put on nefopam for osteoporosis back pain and find it’s working wonders might be worth a mention to the GP?
  • vikingqueenvikingqueen Member Posts: 467 Pioneering
    edited July 22
         Nobody should be recommending any pain killers, it really isn't safe. Even CBD oil can interact with some medication. The only thing is to speak to a GP
  • littleacornlittleacorn Member Posts: 198 Pioneering
    @erob12. I take nefopam and have been so for about 10 years. I nkw need something else and all GP or consultants can offer are opiates which I cant take.
Sign in or join us to comment.