New here

Hello I'm new here. I got an auto immune condition or got diagnosed 4 years ago. It affected my lungs and pretty much overnight I went from walking, moving, being me to being bed bound, losing my mobility, my speech, my hair, my muscle mass. I was in hospital for 6 months and in icu and when returned home I was given a terminal diagnosis. It's all happened so fast. Three years of searching for a cure of suddenly needing mobility aids and learning to walk again only to lose mobility again and again only to be told you're terminal now from damage to organs. I keep hoping one morning I'll wake up and just feel better. But it never comes. There's no cure for what I have and I'm finding it very hard to cope with losing my body and also my career, friends and life. The daily battles to just try and open a bottle or swallow food well. The constant pain. Being housebound. It's too much.
I saw a link to this forum and joined. I never wanted to say I was disabled mainly through fear or sadness but really need to find support. No one from my old life gets it.

So hello. And thank you for reading. I hope this isn't too imposing a read 🌸