Social phobia

eeL
eeL Community member Posts: 279 Empowering

Hi guys, I'm wondering if anyone has any coping strategies to share. I have a worsening social phobia and I have to work so it's really awkward. I'm autistic and a champion masker but people wouldn't understand if I said how I feel. Being around people is so stressful to me that I feel sick, get palpitations and wake up with panic attacks. I get depressed and anxious, things people say gnaw away at me and go round in my head. I end up shaking, I don't really eat, struggle to sleep. The thing is, if I take a week off work and don't go out I'm REALLY happy. If I don't see other people my life feels great, no criticism and bitching and problem causing. Even if people are just talking I find them really loud and 'in your face' and having to be around them makes me unbelievably tired. Since COVID I've got a bit paranoid about germs and bugs too.

I can't interact with people, sometimes I can't even speak, or I speak like I write - I'm dyslexic - and I get words jumbled in my mouth and can't say them, just rubbish comes out. I seem to have a death wish in my choice of words too, saying the most inappropriate things I don't mean that are taken the wrong way, I just can't find the words. When people are less than friendly I react badly and make everything worse.

People make me feel physically ill, and mentally because whenever I have a meltdown or breakdown it's generally because of bullying or gossip or ostracisation. It's becoming more and more of a problem and it's crippling. I have to work, I have to shop, I have to see the postman if I want to avoid it all and buy everything online! lol

Anyone else as bad as me or even a BIT like me, and how do you cope? I'm not really coping with it at the moment.

Comments

  • Nightcity
    Nightcity Community member Posts: 2,426 Championing
    edited November 5

    not sure what advice I can offer as my rule is to avoid absolutely all face to face contact except with a tiny handful.

    if I go to the coffee shop I'll go for 6.30am opening and only when a certain staff member is on as she knows me.

    I won't walk through the town centre after I'll go round the back.

    if I go for a walk it's in the middle of the night

    I cancel any appointments that aren't vital

    I won't go out at all if any of the neighbours are outside. the rubbish goes out at 4am

    I don't even go to DWP assessments they get a choice paper based or keep the money

    I am absolutely terrible.

  • Bluebell21
    Bluebell21 Community member Posts: 3,890 Trailblazing

    Hi @eeL I am so sorry you find it so difficult to be in social settings. You write brilliantly on the forum and offer your support to lots of other members.

    As it is not something I struggle with myself I am unable to offer any coping methods I have used.

    I hope that another members will read your thread and be able to offer some advice to you.

    Please take care of yourself.

  • eeL
    eeL Community member Posts: 279 Empowering

    Thanks guys ❤💚

    Nightcity it helps alot to know it's not just me! Can I ask, were you always that way or did you get like it? I'm worried that I'm getting so much worse. Every bad experience just cements in how I feel about it.

  • luvpink
    luvpink Community member Posts: 548 Empowering

    @eeL

    I can relate to a lot of what you describe except I have not experienced bullying.

    I live in a very popular tourist seaside resort and during the holiday seasons I can only walk the back streets to avoid the thousands of random people and traffic we have to endure.

    It is really most awful like a living nightmare but I do have to go out occasionally.

    I feel like my heart is racing, I perspire, shake feel like I can't breath and I am going to have a heart attack.

    I cannot sleep much and when I do I get the most horrendous nightmares that seem so real.

    I got much worse since covid.

    The strange thing is I am fine in a room full of people who I know but even then occasionally I feel like I am going to collapse with stress and claustrophobia.

    It has just only quietened down here so cI can relax a bit but unfortunately I am already dreading the next tourist season here. 😓

  • Nightcity
    Nightcity Community member Posts: 2,426 Championing
    edited November 5

    I've avoided people where possible since I was about 16, although though hard life experiences, being used and abused I cut down my contacts more and more and more, the lockdown nailed the lid shut, I have spoken to just 4 people outside my home in person since march 2020 and 2 of those just once!

    I get lonely and I miss the days of having lots of friends (well as above users who I thought were friends) but as i get older I get more and more tired and unwell and less and less people lol.

    I think the way you get treated at work is both disgusting and heartbreaking you're absolutely lovely, about time they appreciated you 💜💛

  • eeL
    eeL Community member Posts: 279 Empowering

    Thanks guys!

    Luvpink that must be awful to know there's a time it will be worse. We have various festival times here when we get inundated with loud idiots, mostly drunk and throwing up - doesn't endear the human race to you, does it?! lol

    Nightcity I think you're right, it's bad experiences initially and as we get older we have more struggles to deal with and feel less tolerant of it all. I'm glad you have a good home unit you can trust and rely on. On the selfish side, your not liking to meet people in person means that you're online here and I know I'm not the only one whose life is better because you're here. With friends like you here it seems less important to have a social network anywhere else! A good friend is a good friend, you don't need to be in each other's faces ❤❤❤❤Thank you for everything xx

  • Nightcity
    Nightcity Community member Posts: 2,426 Championing

    aww, not selfish at all. you're absolutely right and people here have shown more genuine kindness and friendship than anyone I've known in person, it's definitely a very special place different to the general internet. Thank you too for always being there 💜💛

  • eeL
    eeL Community member Posts: 279 Empowering

    Always ❤❤

  • Albus_Scope
    Albus_Scope Posts: 8,059 Online Community Team

    I can really empathise @eeL I was a shut in for a few years after being attacked, PTSD and all the lovely bells and whistles that go with it. I could only go outside if it was dark and only to certain places accompanied. Being around people just wasnt something I could do and it's something I still struggle with today, which is why I'm so thankful I work from home. But even that can get draining. I only ound out I was autistic two years ago, so a lot of this all makes sense now.
    Being around people IS draining and that's totally ok. I've found "practice makes perfect" can work for some, but we all have our limits and it's best not to push them for too long, or meltdowns happen. Can you speak to your job about reasonable adjustments? They may be able to work with you to help limit the face to face interactions a bit maybe?

    I found the longer I was away from people, the worse it'd get when I was around them, so it's all a careful balancing act I think.

  • Amaya_Ringo
    Amaya_Ringo Community member Posts: 169 Empowering

    I had an experience like this after I left uni, in the first ever actual job I had (in retail, I lasted nine days). I learned some important things about myself and other people from that experience. The most important one was that I could not work full time. Also, that I could not work in retail because the job was stressful and the people (in that team) were largely horrible.

    I have had numerous incidents where my stress/anxiety levels have gone overboard for some reason/a collection of reasons and then I find normal functioning difficult. I experienced some of the symptoms you're dealing with now, and it felt like it was constantly just there, all of the time. But like you, with that (brief) work experience, the only respite was getting away from work/having a day off. Also, the busier your brain is trying to manage the anxiety, the more difficult it is to mask, and to say the right thing at the right time, especially if the person in front of you is an illogical puzzle you can't figure out.

    …if you are working full time, it may be time to consider a conversation with a GP about having your work hours reduced for a bit to help you reset. If your team at work are not receptive to helping you and are downright mean, though, it's time to find a new job.

    The reason I left that retail position was because my line manager was picking on me all of the time, but I wasn't diagnosed then so I had nothing really to fight back with. But I work in the public sector now and I have a very inclusive team. My job is a lot of working with people and I've developed a masking work mode which goes on for the public at 9.45 and ends at 5.15. I do not want to talk to anyone on my bus home! But I have supportive colleagues and that makes the difference. You need to be in a team whereby if you raise a flag or call for help, someone is listening.

    I realise that's another stress to add to the list and may not be financially viable immediately, but if you started to set out an action plan of things you want to achieve and worked towards it, maybe you will get to that solution.

    When I am in a high anxiety mode, distraction is my only weapon, as well as positive motivation. When I began my first job after the retail fiasco (where I ended up being for 7 years, till the service closed), the first few weeks I was a nervous wreck. But every week I completed, I bought myself a small treat - a cake or some other trifle - until it became part of my pattern and normalised.

  • eeL
    eeL Community member Posts: 279 Empowering

    Thanks Albus_Scope and Amaya_Ringo - sharing your experiences really makes me feel less alone and inferior.

    Unfortunately my boss was absolutely evil to me for no reason yesterday and screamed at me in front of the entire work force so I'm not going back. I'm scared to death because I'm behind with money as it is but my mental health just can't take the torture. He moves the goal posts every day and tells me I should leave. I stand to lose £1500 by walking out but I just can't do anymore, I'm in bits. I'm exhausted, mentally and physically ill and totally demoralised and destroyed.

    People are so, SO unhelpful.

  • Amaya_Ringo
    Amaya_Ringo Community member Posts: 169 Empowering

    @eeL nothing, I repeat NOTHING is more important in a situation like this than your wellbeing. It sounds like you need a clean break and the opportunity to heal. It's sickening that in this day and age of diversity awareness, people still treat autistic folk in this way in the workplace (and in general) and I'm really sorry you've been through that. But hopefully this will help you to rebuild your confidence and find people/potential colleagues going forward who will treat you with respect.

  • Bluebell21
    Bluebell21 Community member Posts: 3,890 Trailblazing
    edited November 7

    Good morning @eeL I am so very sorry you were treated like that by your boss yesterday. It is totally unacceptable. Please know we are here for you anytime. You needed to get away from the toxic work situation you were in and by this happening it gave you that push. You now need to rest and try not to relive what happened over and over. Do not resign from your job, get a fit note from your GP and they will have to pay you. You obviously are not well and are exhausted you have been trying your best.

    Please take care of yourself. You are not a failure you are a lovely caring person that helps lots of other members on the forum with your knowledge and sharing your own experiences.

  • egister
    egister Posts: 508 Empowering

    I have noticed that wearing dark or mirrored glasses reduces the number of accidental contacts with strangers.

  • luvpink
    luvpink Community member Posts: 548 Empowering

    @eeL

    So sorry you were treated that way by your boss.

    It must have been truly awful for you to have endured that.

    I hope you are feeling a little better today.

    Try to rest and take care of yourself.

  • egister
    egister Posts: 508 Empowering
    How are you going to educate all people so that they know about these problems and how to deal with such people? Simply talking on this forum is not the solution; relapses are inevitable.
    

  • WhatThe
    WhatThe Community member, Scope Member Posts: 2,375 Championing
    edited November 23

    I seem to have a death wish in my choice of words too, saying the most inappropriate things I don't mean that are taken the wrong way, I just can't find the words. When people are less than friendly I react badly and make everything worse.

    eeL, I found myself wondering exactly this on the bus today. Nothing untoward happened but it usually does. I don't understand how stuff can pour out of my mouth in an instant.

    (found in my drafts)

  • WhatThe
    WhatThe Community member, Scope Member Posts: 2,375 Championing

    eeL, at last I've got the spelling right!

    Please stay with us. Some of us value your courage. We're never going to be liked by everybody.

    I could send this as a PM but would rather highlight why this forum matters so much to you/us. Being otherwise isolated and unsupported in the midst of a crisis is the best reason for you to stay.