ASD/ADHD and Right to Choose

Albus_Alumni
Albus_Alumni Scope alumni Posts: 11,373 Championing

Did you know you can choose who you get assessed by for autism and ADHD through the NHS if you're in England?  

With waiting lists hitting record highs over over 3 years for an NHS assessment, I thought I should highlight a way of cutting years off that wait that I've used myself.

NHS Right to Choose basically means you have autonomy over who your GP refers you to when it comes to treatment. Be it a certain company, or an individual surgeon, right to choose gives you that freedom and with so many people learning more about ASD/ADHD, wait times have sky rocketed. 

The basics of this are;

1.  Have a look online and find a provider that deals with the assessment you need. There's many out there now and all have their own way of doing things, so it's worth looking around to find a place that is the right fit for you. If you're new, you'll have to choose a local assessor, if you've already been waiting for 3 months, you can then ask for a national assessor.  Also please note the provider must have a commissioning contract with a Clinical Commissioning Group (CCG) or NHS England for the required service.

2. Get a GPs appointment and talk through with your GP why you feel you need an assessment, be honest and open with them and mention you would like to use right to choose for an assessment. Sometimes your doctor will say no, but you can look into a second opinion, or even take a supporting letter with you.  ADHD UK have a great printable PDF for this here. Their website also talks you through the diagnosis pathway, which is very useful to know in advance. 

3. The GP will then (hopefully) refer you to your chosen company, who will then contact you to arrange a proper assessment.  Most of these are now done via video chat, on Zoom and the like, so no need to worry about having to go to a strange new place. :)

Wait times can still be many months, but I was assessed within 7 month, which is much better than the 3.5 years I was quoted by my GP. 

I've included a couple of links to a few of the more well known assessors below.  Well known can also mean a slightly longer wait time of course. (Some will deal only with ASD or ADHD, others offer both.)

Psychiatry UK. 
ADHD 360
Dr J and co. (A smaller clinic and less well known)
S4D (who I used)

Some clinics will be able to offer medication for ADHD once assessed, but not all can. So if you're wanting an ADHD diagnosis, it's worth checking to make sure this can be done first. 

 
Please note you cannot use Right to choose if;

-already receiving mental health care following an elective referral for the same       condition.-referred to a service that is commissioned by a local authority, for example a drug   and alcohol service (unless commissioned under a Section 75 agreement)-accessing urgent or emergency (crisis) care.-accessing services delivered through a primary care contract  in high secure psychiatric services.-detained under the Mental Health Act 1983-detained in a secure setting. This includes people in or on temporary release from     prisons, courts, secure children’s homes, certain secure training centres, immigration removal centres or young offender institutions.-serving as a member of the armed forces (family members in England have the same   rights as other residents of England.


I hope this information helps you in your search for answers.  If you have any questions, I'm more than happy to answer them to the best of my ability here.

Good luck!

-Albus- 

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Comments

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing
    Hey there @bobby123! Usually the 2nd assessment should happen fairly quickly after the first one and it's best to stick with the one provider as changing mid diagnosis could cause a lot of confusion.
    I'm glad you're nearly there though, how're you feeling about it? 
  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing
    Ouch! Ok @bobby123 I'd definitely ask your GP about Right to Choose, 18 months between the two assessments is a very long time and I've not heard of that happening before. It may be quicker going through a completely different provider for both assessments. 
      The second assessment is pretty much just another assessor asking for any clarification for answers from the first assessment. 
  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing
    That's quite a wait between assessments @eeL, but certainly not unheard of.  I was very lucky as my appointments were a week apart thanks to Right to Choose. I got my official diagnosis on my birthday!

    But it does feel weird that you get your diagnosis and are just told to look at the National Autistic Society website and that's it. Hopefully there will be some kind of standardisation for after care in the future.
  • sunshine41
    sunshine41 Community Member Posts: 44 Connected
    Hello, thank you for all the information! My GP automatically sent me Psychiatry UK website for me to do my ADHD assessment through as he said our local clinicians would be longer. I assumed that was the only company I could use. So does this mean I could use others, such as the ones mentioned above. Does anyone have experience with Psychiatry uk? Thank you so much!
  • sunshine41
    sunshine41 Community Member Posts: 44 Connected
    @rubin16 Thankyou for the information. I will look into those online classes for sure as my therapist thinks I may have autism too.

    All the best for your ADHD assessment :) 
  • Scrumptious67
    Scrumptious67 Community Member Posts: 65 Empowering

    @Albus_Scope Thanks for sharing this very valuable information. Is there a way to 'pin' this to the top to make it easier to find please? I know I'll be coming back to it to refer to but won't remember where it is!

  • Scrumptious67
    Scrumptious67 Community Member Posts: 65 Empowering
  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing

    No problem @Scrumptious67 looks like a team mate pinned it as I was off for a few days. I'm glad you've found my post useful. 😊

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing

    Every day will take you one step closer to an assessment @Catherine21 but I'd be unable to say what the blank email is about. Will you let us know when you call?

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing

    Waiting times are very silly currently @Catherine21! I'm on year one of waiting for my ADHD assessment, only another couple of years to go.

    So many people are going private now, but the problem of getting an ADHD assessment that way, is often the providers can give the diagnosis, but can't give the medication, so people are having to wait for another 3 years to get an NHS diagnosis. It's all very silly.

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing

    haha, I know what you mean @Catherine21 I was the same before my assessment.

    Though I think (just personal opinion) if you're sure you have ADHD or ASD, it's ok to self diagnose. It can be an unpopular opinion of course.

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing

    There's no need to apologise at all @Catherine21 it's all in the past, but thank you, it's really appreciated. 😊

    It's very common for women to get misdiagnosed with BPD as there's so many similarities to Autism. I can totally empathise though, being late diagnosed has been a blessing to me, but it does conjure up all kinds of other "what if" questions about my past. But it's allowed me to be more gentle with myself and I now know why I react to certain things like I do. So it's allowed me to grow as a person. I'm really hoping it'll help you too. 😊

  • apples
    apples Community Member Posts: 562 Empowering

    I’ve been referred for an asd assessment June last year and told the wait is 3 years, and recently been referred for adhd assessment told 3 year wait also, when I asked my gp about the adhd referral they said I was referred by email so I have no idea if it’s been done or not as not had any correspondence

  • apples
    apples Community Member Posts: 562 Empowering

    Thanks Catherine, I will have a look but it’s hard for me to understand any of it tbh, when I last phone the service that my asd was referred to they said they were employing more staff this year due to the list but still saying the 3 years

    have You been referred for adhd and asd ?

  • egister
    egister Posts: 1,102 Pioneering

    It is necessary to exempt from paying taxes while waiting for a doctor. Then I think doctors will appear in the NHS quickly.

  • Little_Owl
    Little_Owl Community Member Posts: 15 Contributor

    Has anyone used Dr J and colleagues for ADHD assessment? How was your experience? I'm planning to ask my GP for a referral but just wanted to make sure I'm chosing the right provider for me (I really dislike video calls, hence why I'm avoiding the online providers). Any suggestions on how to approach this with my GP?

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,686 Championing

    Hey @Little_Owl, the way it went for me was the GP went through a quick pre-assessment with me to see if I reached a certain threshold on that then they just put the referral through. It wasn't a very in-depth process. I was then able to use the referral to go to a reputable private clinic. The wait for the NHS clinic in my area was over 2 years at the time.

    If the first GP you speak to doesn't take it seriously I would suggest you could request a second opinion from one of the other doctors. I did not have that issue personally!

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing

    One important thing to check first @Little_Owl is whether the provider will be able to give you prescriptions for any ADHD medication you may decide you need. Many don't, so you'd need to go back through the NHS for another assessment (another 2+ years!) before you'd be allowed them.

  • Little_Owl
    Little_Owl Community Member Posts: 15 Contributor

    Thanks @Jimm_Scope. I had a bad response from a GP when I asked for an autism assessment which is why I'm a bit worried about asking for this one. In the end it was my psychiatrist who referred me. I will obviously avoid that particular doctor but it's still a bit worrying.

    @Albus_Scope I have emailed the provider to check that they prescribe medication and they said that they do "titration" of medication which I took to be the same as prescribing? Titration generally means finding the right dose so I would assume that's OK.