ASD/ADHD and Right to Choose

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Comments

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,686 Championing
    edited November 2024

    I would honestly complain about such a response. Putting aside whether an assessment was right or not the doctor shouldn't be talking to you like that. I can't imagine much would come of it but things like this do bother me a lot when they come from the professionals who are supposed to have some idea of how these conditions can affect a person.

    I would also, as others have recommended, speak to another doctor about this.

  • Amaya_Ringo
    Amaya_Ringo Community Member Posts: 408 Championing

    I was diagnosed with autism in 2005 and at the time my GP referred me but warned me it might be that I'd have to travel out of the area for an assessment. In the end I was lucky, I had an assessment in my area and within six months of being referred. But that was 2005. While everyone I know thinks I also have ADHD and my mother has been saying so since I was younger, I've just not thought about getting another assessment because a: I already have a ND diagnosis, and it's hard to know where one might end and the other begin, and b: I would be taking up space in the queue needed by people who haven't had any assessments yet.

    But talking to my ADHD diagnosed colleague is always interesting because we have points of clear overlap and then points where we are completely different (for example, she is much more confident in social situations than I am).

    Wishing everyone still waiting for assessment good luck and that they get the waiting lists down :)

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ’—

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    Those hugs for everyone here πŸ€—

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    Please take care of yourselves everyone πŸ’œ

  • TinaClarke
    TinaClarke Community Member Posts: 7 Listener

    unfortunetly in Jan 2021 I had not heard of right to choose, even though I had waited from sept 2020 to get a handle on things (when i figured it out) before asking my gp. She referred me, I filled in a form and I've been on the waiting list ever since…i was 60 then I'm 65 now. I rang last year and they said another 18 months as they had several staff out on long term sick.

    I think the journey to the accessment is just as important, and i've learnt a lot by being the fb asd groups. I thought I had no stims, I do. I discovered my most intense traits, and more insight into melt downs so they are over quicker. How my family can say and do things to help me understand what's going on better. Humour, I have my own…i don't understand most humour lol.

    Anyways, If you got referred to the nhs directly, don't worry about the wait…though i could have done with the results because I wanted to put in for pip before I reach my pension age….

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 15,450 Championing

    thank you for this as I didn't know about this

  • Andi66
    Andi66 Community Member Posts: 1,416 Championing

    Had my first Asd assessment in 2019, then final 2 in 2022

  • mrforgetful
    mrforgetful Community Member Posts: 10 Listener

    I've been waiting since 2017 for a diagnosis :(

  • mrforgetful
    mrforgetful Community Member Posts: 10 Listener

    I am autistic, have chrones & diverticulitis. Plus other problems , always was clased as a naughty kid when growing up, I tend to have outbursts that have blind rage with them .. havnt heard a thing about my adhd assement just a letter saying they were at 2019 cases that was in 2022 I got that letter & I'm still waiting βœ‹οΈ thank god for spell check on my device or no one would read what im typing hahaha πŸ˜…, hello everybody hello πŸ˜€

  • mrforgetful
    mrforgetful Community Member Posts: 10 Listener

    Plus I have memory trousers.. trouble I mean trouble

  • mrforgetful
    mrforgetful Community Member Posts: 10 Listener

    I just thought because of my age your pushed back for the younger generation? No offence intended . Just seems you get to a certain milestone & your written off. I know I'm adhd , but why do we need a piece of paper confirming what we already know about ourselves

  • mrforgetful
    mrforgetful Community Member Posts: 10 Listener

    I've always said , its not me its the others with the problem, being different isn't a bad thing especially seeing things from another angle it's pretty amazing to how you can work people out just by watching what they do & how they act & that's the ones who make fun of people that are , not like what they are like , no such thing as perfect , look at the labor party .....

  • mrforgetful
    mrforgetful Community Member Posts: 10 Listener

    Getting back on track , I think I've got a choice of three places to have this assessment done but it's been so long waiting I've forgotten where they are .

    JusJust hope it's not far from me as I do tend to kick off in situations I can't cope with .

  • mrforgetful
    mrforgetful Community Member Posts: 10 Listener

    When I got my autism diagnosis several yrs ago it did answer a lot of questions that used to go round inside my head . Plus knowing how to deal with situations can help , not always as the nerves go πŸ™„

  • RomfordRob
    RomfordRob Community Member Posts: 7 Listener

    I should be getting my assessment in a couple of months with Skylight Psychiatry in Woodford.

    It was all fairly painless, I filled out a questionnaire, took it to my Doctor with their letter and after a phone call I have found out the wait, using right to choose, is only about 6-8 weeks.

    I already have a diagnosis of sorts as I spent some time in prison on remand in the Psychiatric wing and they diagnosed me there.

    It makes so much more sense to me now, my niece is on the spectrum and I'm convinced I am too but I mask really well and no one has suggested it since I was in my mid twenties (a friend). I'm now 52, nearly 53.

  • RomfordRob
    RomfordRob Community Member Posts: 7 Listener

    By the way, can anybody give me am indication of what to expect at an adult assessment please?