Where the damn can I get help

apples
apples Online Community Member Posts: 550 Empowering
in Mental health and wellbeing

hi

This is more a rant

I can’t seem to get any support, I was under the cmht team 2022-2023, they made my mh worse so put a complaint in and asked to be transferred to another cmht, each time I speak to my gp he refers me back to the cmht who decline the referral, I’ve been to A&E who tell me I’m under the cmht team even though I’m not as my referral is either pending or declined as I’ve recently got my medical records, I asked A&E to refer me to another cmht they told me they had but they hadn’t

I self referred to talking therapies around a week ago and just received an email telling me they’re not suited for my needs after accessing notes on the system and told me to go to my gp and get referred to the cmht that 1 I don’t want to be under and 2 who decline the referral.

How the hell am I supposed to get support 😡

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Comments

  • letitbe
    letitbe Online Community Member Posts: 343 Empowering
    edited February 17
    https://forum.scope.org.uk/discussion/129730/where-the-damn-can-i-get-help

    I’ve had terrible issues with CMHT making me worse as well .
    Can you get a MH advocate in your area to help you access the help you need ?

  • letitbe
    letitbe Online Community Member Posts: 343 Empowering

    unless your schizophrenic and psychotic CMHT will do anything to get you off their books

  • Rosie_Scope
    Rosie_Scope Posts: 7,006 Scope Online Community Coordinator

    I'm really sorry you have to go through this @apples, rant away as much as you need to!

    It's awful how you've been treated by the people who should be helping you.

    Like letitbe says, if you're able to access an advocate, maybe they could help get your needs across? I know finding one in your area willing to take on a case can be difficult sometimes though.

  • apples
    apples Online Community Member Posts: 550 Empowering

    Sorry to hear you’ve had a terrible time with the cmht as well, agreed about the psychotic schizophrenic if you haven’t got those issues they do want you off their books

    I’ve got an advocate writing a complaint for me, but she is asking info I can’t provide, I also said I want my complaint further than their complaints team as they answered my previous complaint with nothing more than telling me they followed guidelines and apologising, no further outcome to transferring my care to another cmht, I also received a preview of her complaints letter and it doesn’t read like a complaint, it’s on 1 sheet of a4 just stating they are not responding to my referrals

  • letitbe
    letitbe Online Community Member Posts: 343 Empowering
    edited February 17
    https://forum.scope.org.uk/discussion/comment/985556#Comment_985556

    I hope you get transferred to another team . I don’t understand why A&E have said they would and haven’t . It’s like we have to fight to be validated and understood, this in itself causes us more damage .
    My GP told me calling the crisis line can get things moving more quickly , have you done that ?

  • apples
    apples Online Community Member Posts: 550 Empowering

    A&E at the same time of referring me to another team said they were going to try me on some meds, yet they never informed my gp, when I mentioned this to PALS they said they forgot, just want to discharge me every time I go to A&E

    I received a txt from my gp after calling 111 as I weren’t coping and the txt said if I feel unwell I am to ring the crisis team but I haven’t yet as no one as gave me their number, I can Google it but I might get the wrong team plus I hate talking to people especially about how I feel (maybe my newly asd diagnosis)

    I’m thinking about emailing Wes Streeting regarding my lack of treatment, he’s not my mp, does anyone know if this would work ?

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 15,354 Championing

    That's no good if they are telling you to ring the crisis team when nobody has given you the number.

  • letitbe
    letitbe Online Community Member Posts: 343 Empowering
    edited February 17
    https://forum.scope.org.uk/discussion/comment/985605#Comment_985605

    they are so useless and sorry they are doing this to you .
    I’ve had a really similar experience with MH teams and A&E. You should google crisis team and get the details - I know mine has an email they can be contacted on aswell so email them if yours has - that way u have a paper trail as well . I’ve been let down multiple times by them , whenever I call up the MH team I end up hysterically shouting at them even more distressed .

  • apples
    apples Online Community Member Posts: 550 Empowering

    @durhamjaide2001 This is the way they fob me off just pass me over to someone else but give me no contact number

    @letitbe sorry to hear you have similar issues, I will Google the crisis team I hope mine has an email as I’m the same I get high rate and start shouting when they don’t listen to me and also get more distressed hence why I just suffer in silence

  • apples
    apples Online Community Member Posts: 550 Empowering

    wow, just emailed crisis team, went to the nhs website which covers my area, and it says I need to be referred by

    • Community mental health teams
    • Inpatient wards
    • Liaison psychiatry teams
    • Mental health Single Point of Access


    so I can’t even contact them myself by the looks of it

  • Hopeless
    Hopeless Online Community Member, Scope Member Posts: 972 Pioneering

    I’m so sorry that you can’t get help. I don’t have the answer but you’re not alone. Mental health services are broken.

  • apples
    apples Online Community Member Posts: 550 Empowering
    edited February 17

    Thank you @Bluebell21 I will send him an email tomorrow and let you know if and what the reply is

    Thanks @Hopeless

  • letitbe
    letitbe Online Community Member Posts: 343 Empowering
    https://forum.scope.org.uk/discussion/comment/985689#Comment_985689

    email single point access and explain that you really need some kind of support.
    Kees all your emails as paper trails of everything

  • mix_dage
    mix_dage Online Community Member Posts: 83 Empowering
    https://forum.scope.org.uk/discussion/comment/985689#Comment_985689

    Hi, sorry to see you are being let down by a broken system, it won't hurt to email your own MP, (see link below) you should get a response and although some MP's don’t have a great understanding, they will be able to liase with Wes Streeting on your behalf.
    https://www.theyworkforyou.com/mps/

    Good luck

  • apples
    apples Online Community Member Posts: 550 Empowering

    Thanks @letitbe I will email SPA

    Thanks @mix_dage my mp is useless, 3 times I have asked her for help all for different matters, but her secretary just replies that my issues are being raised in parliament

  • Catherine21
    Catherine21 Posts: 8,231 Championing
    https://forum.scope.org.uk/discussion/comment/985605#Comment_985605

    Sorry your going through this it is awful and getting worse thinking of you hope you get the support you deserve

  • apples
    apples Online Community Member Posts: 550 Empowering

    Thank you @Bluebell21 i will do that

    Thank you @Catherine21

  • letitbe
    letitbe Online Community Member Posts: 343 Empowering
    https://forum.scope.org.uk/discussion/comment/985893#Comment_985893

    let us know what single point access say apples

  • apples
    apples Online Community Member Posts: 550 Empowering
    edited February 18

    hi @letitbe i couldn’t find an email address for them

    A little update, I rang SPA last night as I was struggling with getting no help and the banging in this hell hole, after ranting down the phone to them they kept saying I am open to the cmht, after keep repeating I’m not as I have my medical records and can read that the referral gets declined and pending, I was put on hold so they could speak to someone else, I was on hold for about 2 minutes so put the phone down, I then received a txt that they have emailed the cmht to see if I am open to them 😡

    This made me angry as I kept telling them I’m not, anyway I rang 111 and told them I need support, they knew I had just rang SPA but told them I’m not being listened to, they kept repeating that what they can do is limited, I told them I want a referral to an o/t or social services, was told the gp has to refer me, I told them the gp tried ages ago but they didn’t accept me, after them telling me again and again that they are limited i told them I’ll keep ringing you to get on your nerves until I get help, then I put the phone down as she kept repeating the we are limited what we can do

  • letitbe
    letitbe Online Community Member Posts: 343 Empowering
    https://forum.scope.org.uk/discussion/comment/986029#Comment_986029

    what a nightmare, seems like they are all useless and keeping you dangling .
    If I was you I’d keep ringing them like you said until you get the support you need . I can’t believe they are doing this to you. I’m pretty sure SPA and 111 can refer you to CMHT and I definitely know A&E can get social services involved for a supper worker. I honestly think you need to get a really good MH advocate. Have a look on HUB OF HOPE website - put in your postcode and see what support services come up in your area. I really hope you get this resolved .

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