Hi, my name is katiecrumbs!

katiecrumbs
katiecrumbs Community Member Posts: 2 Listener
in Start here and say hello

I’m 40 , have progressive MS (since 2013) I wasn’t disabled by it until 5 years ago but still continued to work and look as if nothing had changed,
now I can’t work , had to stop my business etc

I don’t feel as though I know who I am any more. I can’t carry on living as I did, I’ve lost friends etc seen true colours worst of all I think I now judge myself

I’ve had time to adjust to it but I’m still not accepting of my condition, I get jealous depressed resentful a lot … everyday people’s lack of understanding, the **** I have to listen to is awful. People telling me I could heal myself and they ‘have I tried exercise’

When they have no idea what Myltiple sclerosis is…. I’m just tired of having to re explain everything to blank faces that seem to think I’m making it all up anyway .. feel lost

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  • katiecrumbs
    katiecrumbs Community Member Posts: 2 Listener

    Thank you all for your kind words and sharing of your own experiences. It’s a very misunderstood and lonely mental place to be in. The stupid suggestions and comments I hear do frustrate me but it shows their lack of understanding. But yes its the attitude they have, where if you don’t listen to or agree with what their saying, than you must want to be ill, and you must enjoy it, and you brought it on yourself.
    nobody would say this to someone with cancer?!
    It’s tough

    Stay strong everyone

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  • luvpink
    luvpink Community Member Posts: 5,366 Championing

    @katiecrumbs

    Hi and a very warm welcome to the community.

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