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EHCP tribunal
Hello I Am new to this group and I come to you stressed out and in a panic I submitted my sons appeal for educational and health care plan to tribunal and the court came back that I did not submit the full signed letter which I did on the 5th September. I then received another email today advising that you did not submit.…
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Both spouses with chronic conditions
I am writing this because I am a bit unsure whether I am reacting as I should to my spouse. She has fibromyalgia and has had it for a good number of years now. In the last week she has been having an episode, she wakes up with hand pain, and walking causes pain to feet and ankles, and she said also that she had pain at her…
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Change from tube feeding to puréed/solids
Hello. My niece is seven years old and has Down syndrome. She has been tube fed her full life but we have tried (on the advice of S&L) to continue trying her with wee bits of solids and some water, which unfortunately doesn’t seem to be working. My thoughts are on trying to wean her like you would a baby so going back to…
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What would an inclusive, accessible playground even look like? Vote now
Too many disabled children are being denied fun and friendship at their local playground because it isn’t designed for them. Our Let's Play Fair campaign is calling on the Government to invest in a multi-million pound inclusive playgrounds fund that will make play fun, safe and open to all children. To help the government…
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My daughter has recently been diagnosed with autism ,but what now.
Hey I'm feeling a bit lost.my daughter (12) has recently been diagnosed with autism and O.D.D. It has taken years to get her diagnosed. I had the zoom call with some paediatricians and psychologists to confirm and then received a letter stating it. But my worry is that, that's it.they are not helping me with any of her…
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How did other parents cope
Hello I'm new here and am the parent of a beautiful little girl with asd and physical disabilities.she is 6 now but recently I hsve been thinking about when it all started with her diagnosis just after the age of 1 and still feel quite aggrieved and low about how her childhood has been affected by the constant medical…
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Hi, my name is emmajayne advice for my son age 9 already diagnosed at 5 not accepted for any service
Here I am, hello. seeking help and advice for my son age 9 already diagnosed at 5 but not accepted for any service to help within knowsley borough. camhs knowsley,sefton and alderhey referals from GP & NEURO TEAM all rejected, CBT- nope school not supporting, feel the need to screammmm!
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my husband is my carer but a pensioner
Hello. First time posting. Not sure if anyone can give any advice. I am a pensioner (just) with a full PIP . My husband started to receive his state pension a year ago. we are both not receiving a full state pension. My husband was working part time but gave this job up in April to care for me. He now works 4-5 days a…
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Hi, my name is Daniel I'm facing some challenges with my daughter's behaviour. Any advice?
I am a single Father of a 10 year old girl and my life is a complete and utterly misery. It breaks my heart to feel like this as my daughter was also my best friend and I will do anything for her but it seems I am constantly at war with her at the moment amd our bond is fading day by day. Everyday is a battle and I am both…
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Hi, my name is stressedmum38_! My son stays up all night and won't leave the house
Hello my son is 18 and will stay up all night sleep all day and will not leave the house, has stopped coming downstairs and is always moody!! I’m sick of it waiting his asd diagnosis but I feel like I have a stranger in my home!!!
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Need help cleaning house
both my parents sufffer from chronic fatigue, have had a stroke in the last 2 years and are physically unable to clean up after themselves, and I've been their primary carer for 5 or 6 years and I'm getting too mentally and physically exhausted, I'm looking for someone who offers a discounted rate for disabled clients to…
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Advice in regards to past social care failure
Good morning Hope everyone is well I'm doing a post for a family member When she was 8 she was on child protection During that time she confided in a social worker that she was being sexually abused Being so young she assumed social services would do what they could to help her But as time went on and she was taken off…
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GCSE RESULTS
Hello everyone , my daughter is due her GCSE results tomorrow. She has done nothing but cry all day , her anxiety’s off the scale . She also has moderate learning difficulties , social phobia and physical disability’s . She’s really struggled with the whole school setting and had poor attendance of 53% before and after…
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College and GCSE results
Our son got very low GCSE grades. He has just been to enrol at college. He rang me and he was angry and swearing. He has to do the level 1 course and he was expecting to do level 2. His behaviour since school broke up at the end of June has been nothing but trouble. He barely eats a meal at home, won't go to sleep until…
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My 15 year old who has CP doesn't eat much
My son has started skipping his lunches at school. He says theres nothing he likes and refuses to take packed lunches as he doesn't like cold sandwiches. The school doesn't allow students to go out for lunch. Would be grateful if anyone has any ideas.
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After ideas on where I can take my son to help support his emotional well being and social skills
Hi I am after some ideas where I can take my son , who is 9, to help support his emotional well being and social communication skills. It would need to be somewhere that I could stay with him in the first instance. We live in the Wrexham area but we are happy to travel. Thank you in advance 💚
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Tell GOSH Institute of Child Health and Cambridge Uni how SEND support varies across England
Complete the surveys The Health Outcomes for young People throughout Education (HOPE) team at the UCL Great Ormond Street Hospital Institute of Child Health and University of Cambridge have published national surveys to understand more about how Special Educational Needs or Disability support varies across England. Take…
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£10,000 OVERPAYMENT???????
Hello friends I am in shock so this is going to be short. (I have Aspergers so don't count on it...)My daughter was in a residential home and the company were her appointee etc. I was finally applied for carers allowance in 2018 as she stayed "home" 2/3 days a week sometimes more and had done for years! She moved back home…
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Hi, my name is LB60! My granddaughter has children with ADHD/autism. We need some help for her
Just found out about this community. I have grandchildren on the spectrum also with ADHD. 3 great grandchildren 2 of whom we have been waiting for referrals to paediatrician for years. Eldest now 9 clearly on the spectrum but undiagnosed and masks it greatly at school. However my granddaughter has to put up with the…
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Council house and autistic child
Hello I am really worried and I really need advice. My son is autism. He is 6 year old . I was living 3 bedroom house in private sector but I gone homeless because my landlord want to sell property so council moved me 3 bedroom maisonette. Before moving my son was calm and happy boy but after his behaviour suddenly changed…
