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Hi, my name is Benheidichloe3! My daughter screams for hours at night and doesn't sleep much
My daughter screams for hours on a night and doesn’t sleep much worried about affects it’s having on her
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Hi! I have CP and pregnant with my first child. I am struggling to find support/advice/help
Hi! I have CP and pregnant with my first child. I am struggling to find support/advice/help for one armed parenting and looking after my newborn. It would be great if anyone has any advice or support groups that they could share - anything would be much appreciated. Thank you
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Differing parenting styles and how it makes parenting a child with a disability 10 time harder
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Does anyone know of any respite services for a vented 13 year old with complex needs?
Hi does anyone know of any respite services in the east midlands for a vented 13 year old with complex needs
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Hi, my name is Barry, Kayley's father in need of advice
we moved from the Northwest of England to West Wales late December 2019, Its been very difficult trying to get any day center to get Kayley the socialization she desperately needs but the task has been compounded by the Covid19 issues, after being assessed over 20 moths ago & a couple of times since Kayley is still being…
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Anyone got experience of being prevented from seeing their disabled child due to parental arguments?
Good evening everyone. I wonder whether anyone has experience of being prevented from contact with their disabled child by virtue of parental arguments? It’s been six months and it just doesn’t get any easier.
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My daughter has panayiotopoulos syndrome. Looking to connect with other parents
My daughter is 10 years old. She was diagnosed with panayiotopoulos syndrome when she was 6 years old. She doesn’t fit the entire description of PS but does have similar symptoms. We just got home from the hospital after having a terrible seizure last night. Was hoping to connect with parents to bring hope to this…
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Hi, my name is MrsMwa! Just looking to meet other carers who understand this unique journey…
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Hi, my name is Amyknott! My daughter is two years old and has been diagnosed with epilepsy
Hi my daughter is 2 years old has been diagnosed with epilepsy and isnt great on her feet I've been advised to get her a swifty pram to help her get around we are based in Blackpool I cant afford the prices of one of these prams I'm just wondering how I'd go about getting one were not under occupational therapy yet is…
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My eldest child is currently going through diagnosis for ASD
My name is Emma, I've just joined the community. I have 2 children and my eldest is currently going through diagnosis for ASD.
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Parks - play areas, equipment etc
I’ve started to build on a project with my Council and challenging definitions of ‘accessible’ ‘inclusive’ and the Green Flag criteria. They area conducting an audit of provision of features, fixtures within our parks that support inclusion. I’m asking for you advice on - what sort of questions would you as parents,…
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Our son has attachment disorder and dyslexia, plus possible dyscalculia and dyspraxia. Any advice?
Not even sure if I'm in the right place.... Just wondering if anyone had any help or experience Long story short Our adoptive son been told by cahms that's it's attachment disorder .... And basically he will never have the mental age of an adult basically he is 13 now and is at the age of a 7 yr old but he probably won't…
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Hi, my name is Vickiann!
I have 2 disabled adult sons and we live yards apart in HA homes. My sons suffer with a very rare hereditary genetic illness,they have part of their scull bone missing,have autism,partially sighted,tourettes,deprrssion and many other disabilities that go with Adam's Oliver syndrome. My eldest son lives in a disabled…
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behaviour - son with cp having tremendous meltdowns
Hello, I haven’t been on for a while my ds was diagnosed with spastic diplegia mild cp, when he was 18 mths old. He has now started school. He can have these tremendous meltdowns, to the point where he is sweating and exhausted, im just wondering if anyone else has experienced anything like this with there own child?
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needing help to claim pip as a carer
been a carer for 12 year for my husband but having problems with arthritis i don,t know if i should claim pip or how to make sence of the form with the contradictions you face fill it in with or own care as well as being a carer can you help anyone please
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At risk of Sepsis, but no medical support - Urgent advice needed please!
My 16 year old daughter is awaiting an autism diagnosis, is already diagnosed with ADHD, Dyspraxia, SpLD, Sensory Processing Difficulties, and Anxiety. She has developed a severe phobia of needles and medical procedures as a result of previous, poorly handled, healthcare. She also has a severely ingrown toenail, which was…
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Have you and your family been affected by poor housing?
CW: upsetting themes including the death of a child. BBC: Poor housing affecting disabled children's health Have you or your disabled child been negatively affected by poor housing? Do you think there's a shortage of accessible housing? Have you had trouble getting the right adaptations made to your property?
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Rest bite care
Hi I was just wandering if anyone knew anything about private rest bite care I have a 7 yr old with severe developmental delay and other health issues I’m there sole carer but my husband and I don’t have a support network which gives us any childcare so we don’t get any time together and didn’t know if there was private…
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‘You time’ in under 10 minutes
How can you find time for yourself when you have
the kids at home 24/7? Try giving
yourself just 5 to 10 minutes a day: * Yoga in under
10 minutes * See if Quick
Draw can guess what you’re doodling * Make an origami butterfly
in 4 minutes * Put in your headphones and play your favourite
song. * …and if you’re feeling…
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Are there are clubs or places to take children with ADHD on holiday? Can you get any reductions?
Hi, i'm carer for my husband and child was wondering if there is any clubs or anything would be good or any places take children with ADHD on holiday resorts. Is there any reductions or anything you can get? Going to places and doing things.
