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Has anyone given up working to be a carer?
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I am to blame for my elderly father's untimely death...
All I can manage to type is that I am feeling beyond guilty and 100% responsible. I was obviously not there at his deathbed. I don't know if the idiots at the hospital even tried to save him. I wonder so many things like what he was thinking, saying, feeling in his final minute. Was anyone there to hold his hand, to kiss…
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Hi, we are Brookefamily and our 4 month old was diagnosed with Erb's palsy and a stroke
Following his horrific birth He has left sided weakness and we are doing everything we can to help our son with rehabilitation and treatment
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Hi, my name is Grandma1! Worried Grandma with 8month old grandson
Worried Grandma with 8month old grandson, possible cp has constant screaming issues for long periods. No one able to placate/calm/soothe him. Anyone else experience this. Very stressful. Not healthy for sibling. Is this a sympton please?
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Ripping Cloths
My son keeps ripping up all his clothes and throwing them away Do anyone know how i can deal with this. I asking him why he keeps doing this and his answer is he doesn’t know.
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Don't know where to start
Just had to put a brave face on for my mum and family knowing my mum is terminal I struggling so hard with it all my mental health is throu the roof I feel empty inside one min I'm angry them next I'm crying I'm scared of losing my mum and I can't talk to anyone my heads every where wat do I do feel cause right now I feel…
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Hi, my name is MrsDoubtfire!
I’m new and I’m here to ask for help for my daughter who has a toddler 2 and a half who is non verbal and we suspect is Autistic, she is at the end of her tether and has had no help at all from anyone ie doctors or language sector. She has to sleep with her son and he will not sleep without her, his routine is bed with his…
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Did anyone else feel down about their child's diagnosis? How did you deal with it?
Hey did anyone feel down about their child's diagnosis. How did you deal with it.
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Disabled parking bay issue outside school
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Wheelchair insurance
After finally accepting I need wheels I brought my first wheelchair last week. I googled insurance as I thought best covered than not. I didn't even know if I could get insurance for a wheelchair, I knew electrical mobility scooters you can insure them so I was quite surprised that yes you can get insurance! I went with…
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Trying to get a DBS for carers
I've discovered how hard it is to get a DBS check (police check) for carers. Particularly an enhanced DBS that you need for carers who look after very vulnerable people. Some councils don't provide this service at all. My council doesn't do them, and there are thousands of families using carers in my borough. So what are…
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What does Christmas look like for you???
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Better to have a private carer or go to agency? Is it possible to keep my PA and get cover?
I have a PA that’s worked for me for a long time and I have got very used to her and comfortable being around her. During this time with my PA I have deteriorated and now fully wheelchair bound, so really rely on help, but my concern is if she has to call sick without warning and I don’t have no one I can ask to cover her.…
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Occupational therapy
Hi to all, 11 year old son has been struggling to walk,lack of balance tripping over weak muscle tone in his legs he’s been diagnosed with flat feet about 3 years ago the last 18months he’s got worse he’s stopped going out just to school and back where he struggles constantly falling over covered in bruises no help/support…
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Looking for parents of children with PVL and CP
Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular Leukomalacia and resulting in Spastic Diplegia Cerebral Palsy symptoms. He has global development delay and some sensory processing…
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Creating Free (or cheap) Christmas Magic
MoneySavingExpert: 20 free (or very cheap) ways to sprinkle some Christmas magic MoneySavingExpert (MSE) have put together 20 ways to give kids some Christmas magic this year, on a budget. I've included brief descriptions below, but follow the link to get more detail on each tip :) What are your top tips for making…
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Disabled parent in relationship breakdown
Good afternoon. I am a disabled mum of an almost 5 year old child. My spouse and I agreed to separate last month and we are currently co-parenting in the same house. He is my carer and main physical carer of our child. I'm not sure we could maintain this situation permanently but I'm beyond heart broken at the thought of…
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Female Cerebral Palsy Football
Our friends at CP Sport have created a short survey to help more females living with CP get into and enjoy football. Female Cerebral Palsy Football (google.com)
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Severe Microcephaly, hemorrhagic stroke inutero
Hi my name is Emma and it's my son maximus-theo that brings us here. Max was diagnosed with microcephaly at 26 weeks gestation so they sent us for an emergency fetal MRI the next day. At 28 weeks we received te results of the fetal MRI that confirmed max had had a hemorrhagic stroke inutero that had in turn destroyed both…
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Daughter with CP struggling to sleep
Hi there my name is Nicola and I’m new to this page,I have 3 children 2 daughters aged 8 and 5 and a little boy who is nearly 3.My eldest daughter has cerebral palsy,Which affects mainly her legs,She can walk with her Kaye Walker but not unaided at the moment ..H has always been a good sleeper but as of late we are really…
