Mental health

rubin16

https://forum.scope.org.uk/discussion/comment/1088290#Comment_1088290

I feel that, my sleeping is so random. While here in hospital I go sleep at like 1am and wake again at like 4:30am in pain, then sleep and get woke up at 6:30 for meds then I just stay up.

At home though I run alot on US time and won't actually go sleep till 6am, and wake at 11am.

I actually don't sleep that much and found out I feel better running on 4/5 hours sleep than if I had 10/11 hours, I feel more with it and productive.

I do occasionally however have a day every few weeks where i'll just catch up on sleep and sleep for like 12 hours.

Hope you manage to get some rest, take care

Strawberry1

Bless you @rubin16

It can be so difficult when we have sleep problems

We have to sleep when we can .

Hoping and praying for better days ahead @rubin16

What us humans have to deal with

Alot

Strawberry1

When ive not had a good sleep

I will tell people at home my sleep was poor

Whats is said to me is

" you have only just woke up and your complaining "

Yes in a respect I suppose I am .

Arent people allowed to say when they havent slept well?

Strawberry1

My mental health ruins everything

Always saying and doing the wrong thing all the time .

Strawberry1

I think me being who and or what kind of person I am is just one massive burden on people and society as a whole

Rachel_Scope

I (politely) disagree with that last comment @Strawberry1 😊

You're definitely allowed to say you haven't slept well, I'm always saying that to my husband! Do you mind me asking who you live with?

Strawberry1

I appreciate your support @Rachel_Scope .

I live with someone is very impolite .

rubin16

https://forum.scope.org.uk/discussion/comment/1088319#Comment_1088319

From everything i've read about you and seen you're not the problem, its more the people around you being so negative to you and continually putting you down. Its no wonder you now beat yourself up so much, you've just adjusted your thinking into believing it because you hear it so often.

But believe me you are not a problem and never were.

You need to surround yourself with positivity and only people who will support you, not bully you everyday. it'll take time but you'll soon see the bright amazing and caring person we see in you on this forum and you'll feel better and your MH will improve.

Rachel_Scope

Lovely words @rubin16. If you don't have any positivity at home you'll always find it here with us 😊

Strawberry1

Thank you @rubin16 and @Rachel_Scope

Im grateful

Strawberry1

Things are fraught at home once again

Trying my best to be strong

Strawberry1

At present i have no where else to vent

Hope i can be excused

Nightcity

my sleep pattern is non existent

on Sunday, Monday, Wednesday and Friday I am up at 4am with mum for her home dialysis, Saturday, 7am , Tuesday, Thursday 5am

I have slept in the afternoon since age 16 used to be 3pm but as I got older and iller it's normally now half 1 to 3.

As Rubin said and I said to you before strawberry it's definitely not you who's the issue, I know you quite well now over almost 3 years.

Rachel_Scope

I'm sorry things are difficult at home @Strawberry1. Are you able to be in a room by yourself to have some space?

@Nightcity seems like you're dealing with a lot right now. It's wonderful that you're helping your mum but I can imagine it's very tiring. Did you get your test results back?

Strawberry1

@Nightcity , the stresses of life i think has a big impact on our sleep .

Stress is not helpful to any of whatsoever .

I remember when i was young i fell asleep in the afternoons too .

Wish sleep problems were easier to tackle than they are .

Strawberry1

So grateful for your support @Nightcity it means alot too me .

Im lucky to have good friends here

Very lucky indeed

Thank you so much

Nightcity

@Rachel_Scope yes this morning at 10 ish, it's not heart failure but some oddities require further investigations in 2026. he'll phone mum tomorrow and put me on a couple of things over Christmas to control the symptoms, hoping that mums heart failure will be reversed with this ablation on 18th then she can have the kidney transplant next year.

@Strawberry1 Absolutely no thanks required it's always an absolute pleasure to spend time talking to you, I'm trying to deal with my anxiety and stress within my limited ability to do so

Strawberry1

You are going through so much @Nightcity

I wished this wasnt the case

I do hope your mum get her appointment ASAP.

We are all rooting for you and your mum

All of us are

Your bound to be dealing anxiety with everything going on

And its bound to become stress too .

Dealing with all of this is bound to push the limits of the most calmest person @Nightcity .

Im so glad you talk it out here

This forum is a God send

Its remarkable .

So glad we can come here and be in the company of such good people .

Sending tons of empathy and compassion your way

Sending tons of peace and harmony your way too and a gentle supportive hug if that is ok

God bless you

Nightcity

https://forum.scope.org.uk/discussion/comment/1088439#Comment_1088439

And this lovely post is the proof that you are NOT the problem.

I am ok honestly I'm used to it all, I'll just be happy if mum can get a normal life back thankfully if they get it right hers is reversible the type of heart failure and the kidney failure. I am just paranoid after the cardiac arrest on last attempt, but they'll sort the heart first and be sure this time before she goes back for another try with the transplant.

Rachel_Scope

I'm so glad it's not heart failure @Nightcity. I hope they're able to control the symptoms whilst you wait for more tests. I really hope your mum's ablation goes well. How long will she need to stay in hospital afterwards?