Participants needed for a historical study on ‘Experiences of CP and MS in Britain Between 1980-2010

ExperiencesCPMS

My name is Olivia, I am a PhD Researcher at the University of Kent, investigating ‘Experiences of Cerebral Palsy and Multiple Sclerosis in Britain Between 1980 and 2010’. I am passionate about improving disability accessibility, visibility, social perceptions and treatments, and feel that studying history, from the perspective of the people impacted, is the way to do this.

As part of my historical research project I am looking for people who were living in Britain and had CP or MS between 1980 and 2010, families/carers of people with CP or MS in this period, or anyone who worked for charities (such as SCOPE, the MS Society, or MS Trust) between 1980 and 2010, to participate in a semi-structured oral history interview lasting between 1 and 2 hours, to discuss their experiences.

Interviews will be conducted online and will be driven by your experiences, with questions centring around what you wish to discuss. No forceful questioning will occur, you will be free to withdraw at any point if you wish, and you will be kept anonymous within the research through a unique code assigned to you.

If you are interested in participating please do get in touch!

Contact Olivia on experiencescpms@kent.ac.uk for further information, to ask any questions, or to register your interest.

I look forward to hearing from you, thank you!

Alex_Alumni

Hi @ExperiencesCPMS

Thanks for sharing your study here on the community I hope it goes well!

Just to confirm to our members, this opportunity has been checked as safe to participate in.

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forgoodnesssake

I'm intruiged by the choice of 2 specific impairments: one lifelong and brain centred and the other acquired and (usually) progressive and muscle related.  But maybe that's the point!

ExperiencesCPMS

Hi @Forgoodnesssake, thank you for your interest in my research! You are exactly right; there are numerous reasons why I chose to focus my research on Cerebral Palsy and Multiple Sclerosis. In particular, to explore experiences (with a focus on society) between 1980 and 2010 from two perspectives; one of a lifelong impairment, and another usually acquired later in life.

daz2

When is the deadline for applying, has it passed? I'm not available the last two weeks in July but are ok for any time in August.  

ExperiencesCPMS

Hi @daz2 thank you for your message. You haven't missed the deadline! I will be starting the interviews from September 2023 and have no formal deadline for applications as yet - I have planned to continue interviewing into September 2024 (and beyond if required). If you email me at experiencescpms@kent.ac.uk we can discuss this more if you are interested. Thank you! Olivia

daz2

Hi, just sent you an email. 

ExperiencesCPMS

Thank you to everyone who has taken part in my research so far, I really appreciate your support. I am pausing interviews until the New Year, to re-start in January, but I am still looking for people to take part. If you would be interested in participating, please get in touch by emailing experiencescpms@kent.ac.uk

Please feel free to share my call for participants poster (posted above) with people who may be interested in taking part.

Thank you again for your support. Have a lovely time over the festive period and a very happy New Year.

ExperiencesCPMS

Thank you to everyone who has taken time to participate in my research. I have completed interviews and am starting the write-up now, but I appreciate all the support I have received for this project. Thank you again! 😊