How are you?

Jimm_Scope

@Jez1964 People are around, there's a lot of other threads to talk on! You can view them if you go into our coffee lounge or see the categories page. You can always return to the categories page by clicking on the "categories" at the top of a PC browser or by tapping on the hamburger symbol on the top left of your phone screen and then tapping "categories" in the menu that shows up.

I'm not sure what you mean left wing and football, I'm afraid I'm not really into football. I played rugby at school and was a Loose Head Prop for my schools team.

pinklady25

Getting there still a bit to go

aagirl84

I say 'do you' as in ' feel your feelings' don't let anyone take away your sparkle 

AndyGT

My usual answer is "Living the Dream", even when that is not the case. Like now.  It's just that I don't want to feel that is all I talk about and give the impression that all I ever do is moan and complain.  

A close friend of mine once said that we all have different things in common. I didn't understand it initially but eventually I did.  In the case of the people here we all have a different disability but we all have that in common that we all have a disability. So generally we appreciate what the other person is going through and it doesn't matter what sex you are, what age you are or what religion you are.  A disability is a disability. 

As I said above I try to avoid to keep telling family and friends how I really feel because I don't want to bore them and they have their own lifes to be getting on with.  However, like everyone, here I feel that I can express how I am feeling, without people getting bored but most importantly people who understand.  Hiw do I feel now? Really? I feel rubbish my mobility is getting worse and I am struggling with the simple things like ironing and washing up.  Things are just getting harder and harder.   They are more painful and the physical ability of bending and moving is just a struggle.  

I have been struggling with stomach pains  for 3 years or so.  These also have been progressively getting worse.  They are worse at night when I am laying down and as a result I have to sit up and consequently I can't sleep. Anyway, I have had a number of tests at the hospital and a few weeks ago I had some results where the Consultant said I had Chronic Liver Disease and Chronic Panreatitus.   I now await more tests. So to cut a long story short I am in more pain, more often and to be honest it hurts soooo much and with back I really don't need this and really am struggling. 

I'm sorry if I have rabbited on so much but it is nice just to get it off my chest. 

Take care all if you.

Andrew

C_J

Hi @AndyGT don't ever feel you have to apologize that's what the forum is here for. I am sorry to hear you are going through a rough time at the moment and hope that you get the help that you need. I agree with what you said at the end of your post it is nice at times to get things off your chest kind of unload a little. 

I hope things get a little easier soon take care.

Jimm_Scope

Never a need to apologise for saying exactly how it is here @AndyGT. It's what this place is for, a community of support for those who need it. Even if all you need is to say how you are actually doing.

I understand the issue of not wanting to look like a "moaner". As I said previously, I hid a lot more before but now I'm quite open with it with family. If I'm not doing well then they'll know if they ask. Took me a long while and some very bad moments to get to this point, and I realise it's not a point everyone wants to be at. Some people are naturally more private with how they are doing, even among family. Nothing wrong with that at all.

Feel like I've gone on a bit of a tangent there, but I was just trying to say that I'm glad you can at least talk about how you really are here. Many here know the struggle, and indeed we all do have something in common. It's that shared experience of having a disability and interacting with society that can often seem designed to frustrate us.

C_J

@Jimm_Scope you have definitely not gone of on a tangent you said it very well back in the day I would never talk about how I felt or what affected me however now I'm completely the other way so one hundred percent agree with what you just said.

Albus_Scope

Agreed @c_j I'll be showing my age a bit here, but remember the old Bob Hoskins BT advert? 

"It's good to talk."

How right they were.

Don't ever feel bad for sharing @AndyGT here, we're all here to support each other.  

Rosie_Scope

Sorry to read that you're struggling @AndyGT, Jimm is so right about how good it is to be able to talk openly about how you're feeling with people who understand. I hope things start looking up for you soon, but we're always here for support if you need us

I had some difficult situations where people got tired of me being honest with my answers to "how are you?", so I can definitely be a bit more guarded now and I'll adapt to whoever I'm talking to. Does sometimes make you feel like a right negative nelly when life's a bit hard, but the best people don't mind listening and sometimes you do just need to be honest for your own mental wellbeing.

"How are you feeling?" is another one that really strikes a nerve for me sometimes, maybe because it's harder to give a quick fire reply. I almost find that one worse than "how are you?" at points, even if the person usually means well. Just one of those funny little hang ups for me!

Jez1964

I don't like repeating myself how are you I'm okay how are I'm okay  repeat after me . FUKN does my head in more I jus rather not anyone ask me  how I am

chiarieds

Hi @AndyGT - it's good to hear from you again, but not that you're not doing at all well, especially the pain. I'll link back to your story, hoping you don't mind: https://forum.scope.org.uk/discussion/comment/529164#Comment_529164  I hope the newer members of the Scope team read this, & value so much what you did, & how your life changed in an instant. I 'listened' to your story, as I hope others do.

You're one of those people I'll always remember Andrew, & like everyone else will always wish you well. You take care too, & please keep us all updated.

AndyGT

To everyone thankyou so much for your support and kind words.  You don't always want or expect someone to come up with an answer or result but it is enough to know that there is someone  there that can and will listen to you when tht is all you need.  So to every one of you that has listened and sent sone nice comments thanks. Thanks a lot it means so much and makes a lot of difference.

To chiarieds..... Of course I don't mind.  I'm glad you got something out of it.....

Jimm_Scope

Thank you for linking that @chiarieds, and thank you again @AndyGT for posting that even though it was over a year ago. I like to think sharing our own personal stories and experiences is a great part of this community. 

I wasn't around back then, but I am now and got to read it Thank you