ASD/ADHD and Right to Choose

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Comments

  • TinaClarke
    TinaClarke Online Community Member Posts: 7 Listener

    unfortunetly in Jan 2021 I had not heard of right to choose, even though I had waited from sept 2020 to get a handle on things (when i figured it out) before asking my gp. She referred me, I filled in a form and I've been on the waiting list ever since…i was 60 then I'm 65 now. I rang last year and they said another 18 months as they had several staff out on long term sick.

    I think the journey to the accessment is just as important, and i've learnt a lot by being the fb asd groups. I thought I had no stims, I do. I discovered my most intense traits, and more insight into melt downs so they are over quicker. How my family can say and do things to help me understand what's going on better. Humour, I have my own…i don't understand most humour lol.

    Anyways, If you got referred to the nhs directly, don't worry about the wait…though i could have done with the results because I wanted to put in for pip before I reach my pension age….

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,768 Championing

    thank you for this as I didn't know about this

  • Andi66
    Andi66 Online Community Member Posts: 905 Championing

    Had my first Asd assessment in 2019, then final 2 in 2022

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    I've been waiting since 2017 for a diagnosis :(

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    I am autistic, have chrones & diverticulitis. Plus other problems , always was clased as a naughty kid when growing up, I tend to have outbursts that have blind rage with them .. havnt heard a thing about my adhd assement just a letter saying they were at 2019 cases that was in 2022 I got that letter & I'm still waiting ✋️ thank god for spell check on my device or no one would read what im typing hahaha 😅, hello everybody hello 😀

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    Plus I have memory trousers.. trouble I mean trouble

  • Catherine21
    Catherine21 Posts: 5,293 Championing

    I was classed as naughty to was put in school for naughty kids and then put in care I'm awaiting adhd assessment told me will be 3 years I'm 53

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    I just thought because of my age your pushed back for the younger generation? No offence intended . Just seems you get to a certain milestone & your written off. I know I'm adhd , but why do we need a piece of paper confirming what we already know about ourselves

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    I've always said , its not me its the others with the problem, being different isn't a bad thing especially seeing things from another angle it's pretty amazing to how you can work people out just by watching what they do & how they act & that's the ones who make fun of people that are , not like what they are like , no such thing as perfect , look at the labor party .....

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    Getting back on track , I think I've got a choice of three places to have this assessment done but it's been so long waiting I've forgotten where they are .

    JusJust hope it's not far from me as I do tend to kick off in situations I can't cope with .

  • Catherine21
    Catherine21 Posts: 5,293 Championing

    Because for me it's important to know somethings I couldn't help that it is neurological and as it's been undiagnosed I have many mental health issues with trying to cope and I'm definitely autistic and angry some people have managed and had good families support and have flourished I was left with alot of trauma it's not a piece of paper it is the missing link

  • Catherine21
    Catherine21 Posts: 5,293 Championing

    And bring age into it if I had that thinking my response would be as I'm older shouldn't I be entitled more as I have suffered longer but I don't we all may have adhd and we all deal with it differently

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    When I got my autism diagnosis several yrs ago it did answer a lot of questions that used to go round inside my head . Plus knowing how to deal with situations can help , not always as the nerves go 🙄