In hospital and not for mental health this time

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Comments

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 11,115 Championing

    Hi @cupcake88 I am so sorry they do not seem to be taking you seriously. Did they give you the results of the brain scans you had? Please take care of yourself.

  • chiarieds
    chiarieds Online Community Member Posts: 16,793 Championing

    Oh @cupcake88 - I'm so sorry. Have you any idea as to when you'll get an appointment with your specialist? This is a very difficult time for you, & I can only hope you'll get seen quickly.

    Please know we're all here for you, & sending very gentle hugs, xx

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,028 Championing

    Hi @cupcake88 I hope they get you sorted soon

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,717 Championing

    Hey @cupcake88, please do keep us updated with how you are doing. I hope you get results soon

  • Hspring1
    Hspring1 Online Community Member Posts: 10 Connected

    Hey cupcake88,

    I hope you get the correct specialist help. Keep us updated. My child received a referral to the MDT( Neurologist, FND Physio Therapist Specialist, OT and Mental health. There was no medication for the condition unfortunately the seizures were non-epileptic. Hope you receive a diagnosis soon.

  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing

    hi every one my brain scans are all normal . I have some good news I have an appointment next Wednesday to see the specialist . I had another one this morning I have bit my tongue badly and I have bruises all over from my falls .

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 11,115 Championing
    edited November 2024

    I hope your appointment with the specialist next week goes well, and you get some answers. @cupcake88 Take care.

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,028 Championing

    Thats good news not too long to wait

  • Rosie_Scope
    Rosie_Scope Posts: 5,558 Scope Online Community Coordinator

    Sorry you're still struggling so much @cupcake88, it doesn't sound easy.

    Did they give you any information about how to keep yourself safe at home while you're waiting to see your specialist? Some of the Epilepsy charities have some tips if you'd like to read them. Most of the tips are useful for anyone who is having seizures whether it's epilepsy or not:

    Safety and risk | Epilepsy Society

    Fingers crossed your appointment goes well and they can help get things under control, I can imagine it's a really worrying time for you.

  • chiarieds
    chiarieds Online Community Member Posts: 16,793 Championing

    Good to read you have an appointment on Wednesday with a specialist. We all hope you find out more then, xx

  • Lou67
    Lou67 Online Community Member Posts: 8,711 Championing

    @cupcake88

    Aww hi it’s been a long time since you’ve been on I’ve often wondered how your doing.

    I haven’t been on here much the past few weeks that’s why I hadn’t seen your msg but one off our good friends let me know you had posted.

    Im so sorry to read you’ve been taking seizures it must be awful and frightening for you.
    I really hope your appointment next week goes well.

    You have dealt with so much in the past and you always fought hard I’m delighted you now have a great support system in place for you.
    It took a long time for that to happen it’s so sad you had to go through such a tough time.

    Great to hear from you but I’m so sorry for what your going through.

    Take care and goodnight 💕💕

  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing

    thanks all my lovely friends I do have a update for you yesterday I had 4 seizures ended up in hospital they sent me back home . Today I had 2 my husband called an ambulance they have taken me to a different hospital and I’m just waiting to be seen . The ambulance crew are hoping a fresh set of eyes may help they might even have a specialist come and see me that would be ideal I’m currently waiting now x

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 11,115 Championing

    Good luck @cupcake88

  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing

    hi they sent me home this morning again just telling me to call a ambulance it’s getting silly now . I finally got some where I rang neurologist again and begged them for help the early appointment is Wednesday but I can’t carry on like this so she said to give this number a call and one of the nurses should be able to help why didn’t they give me this number in the first place .

    I don’t know I’m getting messed about I thought mental health services were bad well general hospitals are just as bad . These are very scary what’s happening to me . I appreciate the support on here I love you all I’m going threw such a hard time but I always have my friends on here xx

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,028 Championing

    Good luck @cupcake88

  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing

    so I called the number they gave me and they said they can’t help until I have seen the consultant so there’s no help for me basically so great I have to wait till Wednesday. I really can’t believe this .

  • Albus_Scope
    Albus_Scope Posts: 9,653 Scope Online Community Coordinator

    Hopefully the consultant will be able to shed some light on the fits soon @cupcake88 just be gentle with yourself until then.

  • cupcake88
    cupcake88 Posts: 1,412 Trailblazing

    so today the worst thing Happened to me friends I was out and bout on my own had a seizure and some one robbed me they took money out my bag and my Apple Watch .

  • Morgan_Scope
    Morgan_Scope Posts: 782 Scope Online Community Coordinator

    @cupcake88 I'm so sorry that happened to you. Are you okay and did you report it to the police?

  • Lou67
    Lou67 Online Community Member Posts: 8,711 Championing

    @cupcake88
    Good morning cupcake.
    Omg that’s blooming awful I can’t believe how low one human being could treat another 😢

    I hope you got some help to get home safely.
    It’s maybe an idea just to go out when your husband or someone else can be with you just now.

    Hold in there till Wednesday and I pray you get some answers then.

    Look after yourself. 😘❤️