The Green Paper Discussion (the document link is here too!)

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Comments

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 619 Trailblazing

    I agree this the worst part of it all . I get highest care but not 4 points due to assessors ignoring the 4 point questions. This is what needs challenging. Plus the fact that esa lcwra wca is completely different from what I remember to a pip form / assessment. They haven’t incorporated anything into the pip form for lcwra . How can that be legal ?

  • Middleton
    Middleton Online Community Member Posts: 242 Empowering
    edited March 19

    I received enhanced on both aspects and just read my assessment notes for the first time in a long while. I did score a 4 on care; yet was shocked to see some zeroes where it was obvious it should have been a 3-5+; which I will be arguing at my next assessment.

    I wouldn't be too concerned with previous assessments as I believe the government have surely seen the high level of tribunals at present and in the past, mainly due to the assessors either being dishonest, inept or a combo of both! -(imo)

    When it comes to my renewal/review, I'm going to raise all of the errors in my past assessment and mention all my provable-increasing-disabilities, since that application

  • luvpink
    luvpink Online Community Member Posts: 1,789 Championing

    Its not just existing claimants but new claimants will also be affected.

    None of it is fair.

  • Santosha12
    Santosha12 Online Community Member Posts: 710 Empowering

    Same here, I sympathise. I offered to send photos to my consultant/gp, basically anyone with any interest, 🤣 strangely they all said no thanks (117 visits in 20 hrs my worse). It did cross my mind would any government people want them but that might be considered a hate crime 🤣😭. I've not heard of closmat loo I'll Google that. I can't even go on water meter which was told would ordinarily be cheaper but it won't be for me.

  • Middleton
    Middleton Online Community Member Posts: 242 Empowering
  • MinX2306
    MinX2306 Online Community Member Posts: 6 Listener

    I am caught in the abyss of being on Contributory ESA but living in Portugal. So if they merge it with JSA and make it a temporary benefit I cannot claim UC from here when that ends. I have chronic and degenerative diseases so I would likely pass the threshold to not have to have a reassessment, but if ESA is axed there is no exportable benefit I can claim. So much for the Brexit Withdrawal Agreement protecting our rights to remain in our countries and have our benefits exported! I am looking at losing over €8000 a year. ESA is my only income except PIP but that is supposed to be for my (many!) extra costs of being disabled, not my only source of income! I have obviously raised this gaping chasm in support in the Green Paper and also written to Ministers@dwp.gov.uk. I also emailed Diane Abbott hoping she may raise the issue. With no EU MP any more I don't know how else to get this raised in the 'discussions' when they change this benefit?!

  • Santosha12
    Santosha12 Online Community Member Posts: 710 Empowering

    @MiddletonSadly, without going into the ins and outs of my 'plumbing' visits were frequently less than 1 minute apart, the 'luxury' of a 10 min break would have been welcome. Only took photos after c 25 visits as thought my consultant will probably not believe one could go so often as it at least records the time. If I ever lost my phone..... if it gets stolen it will serve them right.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 619 Trailblazing

    yes I too read that . Go to war a hero but come back injured or disabled and will be hated and destitute. Especially if you dare to get PTSD .

  • Santosha12
    Santosha12 Online Community Member Posts: 710 Empowering

    @Middleton my first bowel consultant told me there's evidence Covid can remain in the bowel and my inflammation levels are always very high. Never had one issue with this prior to Covid; hoping to go on anti-viral trial next year and praying I don't have perforation prior to that.

  • Andi66
    Andi66 Online Community Member Posts: 873 Trailblazing

    I've justed emailed John mcdonnell to say how it will impact us and to challenge the 4 point system

  • Jenwren
    Jenwren Online Community Member Posts: 81 Empowering

    I'm really sorry, from the sound of things you should be a 4 in one area. I'm in same boat where I'm 2s and 3s but no 4. I think they've deiberately chosen this number precisely because they know a lot of people don't have 4s.

    I'm not sure when they plan to bring in the 4 points but it's not law yet, so I'm not sure if they could legally force this on people.

    One suggestion I've seen is trying to document/record your struggles if you or a friend/loved one is able to. Another suggestion on the forum that looks good is if you can access them online print off all your GP notes and include them in your reassessment. If you can't access them online I think you have the legal right to request a copy of them - odds are it will be long and they will have to read them. Also get as many health care professionals (inc GP, counsellor, pyshiotherapists etc), any carers, family/friends who see you struggle it down in a letter, include that.

    On your reassessment be extremely explicit and blunt about not just what you can't do and struggle to do explain the effect of it, how it impacts on you physically, emotionally and mentally. Ram it down their throats. Think about your worst day when filling out the reassessment. If you need to get someone to help you both with the form and go to any re-assessment. Also if they demand a face-to-face consider requesting a phone appointment or that they come to your home if you're OK with face-to-face, this is a reasonable adjustment you are legally entitled to under the Disabilities Act 2010.

    It wouldn't surprise me if you have gotten worse since your last assessment - make sure you make that very, very clear what is worse for you, how it effects and impacts you. If there are things you can't do yourself, please make that very clear.

    Also 2026 is a year away, with any luck they will be pressured to drop the 4 point thing and if they don't, I think they will be taken to court because to say someone is no longer eligiable for PIP when their health, or their condition or circumstances have either not changed since their last PIP or has gotten worse is discrimination and makes no sense legally.

    There's a YouTuber Charlie Anderson who gives a lot of advice about PIP assessment/re-assesment. She is on PIP herself and helps other claiments and doesn't pull any punches about things but her advice I think it really good and she has a very high success rate.

  • Middleton
    Middleton Online Community Member Posts: 242 Empowering

    So, this 4 point system!

    If someone has scored 4 points in a single Q for care in the past; and PIP askes "Are you still experiencing the same" -and we answer- 'Yes'! Wouldnt it make sense for PIP to search out those who did score 4's in the past and then fast track the reassessments?

  • gamer1
    gamer1 Online Community Member Posts: 54 Empowering

    They want to get people off benefits. So unlikely they will do that.

  • Middleton
    Middleton Online Community Member Posts: 242 Empowering

    Youve missed the point.. If this magical 4 is now thee criteria, it makes sense that those reassessments will be far easier to process.

    It would be those with 2s-3's that they would look into more

  • Martinp
    Martinp Online Community Member Posts: 38 Empowering

    I have been thinking about this constantly and whatever way I look at it there is no sense in what Labour are doing, I am left with only one possible explanation and that is they deliberately want to cause us harm and humiliation.

  • Middleton
    Middleton Online Community Member Posts: 242 Empowering
    edited March 19

    Collate all the previous 4's.. they have all those records.. Simple Q of "are you the same" etcetc…

    "Yes"! .. this way, its far more streamlined

    If 4 is the main focus and criteria, thats where the focus will be

  • Middleton
    Middleton Online Community Member Posts: 242 Empowering
  • Pirate008
    Pirate008 Online Community Member Posts: 7 Listener

    PIP Ongoing award for those over retirement age. Whats happening ?

    I am 71 with a ongoing award for PIP, this is due for a review ( "soft touch" ) in December 2027. I have 12 points for mobility and 9 for Daily Living with the the highest score of 3 in one section, Following the green paper yesterday with the new rule of 4 required from November 2026 to maintain the daily living element, what can O do to try and make sure I don't lose it before my soft touch review in December 2027.

    I suffer with muscular dystrophy (no cure/hereditary) & Copd. MD is a progressive condition and will not get any better and will only get worse over time. My original claim was in 2017 and although I have not had a sudden worsening of this condition I have had a worsening over the period from 2017. This has affected how I do or can't do things. Should I ask for a reassessment ?

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