Hi, my name is Chocoholic160!

Chocoholic160
Chocoholic160 Online Community Member Posts: 1 Listener

Hi

I was diagnosed with PXE when I was 22 in 1994. I just would really like to be in touch with other sufferers, to exchange experiences and how we get along.

Comments

  • Holly_Scope
    Holly_Scope Posts: 2,455 Scope Online Community Coordinator

    Hi @Chocoholic160 and welcome to the forum! 😊 Thank you for sharing. It is a lovely community of people who are really knowledgeable and supportive. Our Coffee Lounge is a great place to start socialising. I hope you enjoy it here.