Hi, my name is Danny

DannyBoy2541

Hello everyone I'm 25 I have Cerebral Palsy that affects the left side of my body I also have Epilepsy.I'd also like to say that I would like to help anyone that needs advice or just would like to talk.

Stayce

Hi @DannyBoy2541

Welcome to the community. Great that you would like to help and chat with fellow community members 

You might like to browse the discussions on cerebral palsy at the moment 

https://community.scope.org.uk/categories/physical-impairments-and-cerebral-palsy

Or you might just want to head over to the coffee lounge and have a chat with some of the community 

https://community.scope.org.uk/categories/coffee-lounge

Best wishes

DannyBoy2541

@Stayce I was just wondering what does Listener/Whisper/Chatterbox etc used for?  Thank you so much for your help.

Stayce

Hi @DannyBoy2541

Great to hear from you - glad you are getting the chance to look around the community discussions and support fellow members

These are a kind of ranking system - but a friendly one based on number of contributions made and discussions generated and the number of likes from within the community  for the help and support you offer to fellow members

Thought you might find this interesting how the categories were decided on the community

https://community.scope.org.uk/discussion/30778/community-ranks#latest

Best wishes

Sam_Scope

Welcome to the community @DannyBoy2541

DannyBoy2541

Thank you @Sam_Scope

emkins40

Welcome Danny Boy, 
do you have any success with your medication for epilepsy? Mine is uncontrollable. Currently on keppra 1000 mg twice a day oxcarbazapine 900mg twice a day and diazepam which just keeps being increased! 
Any advice? 
take care Emma 

DannyBoy2541

Thank you and yes I have had some success because I don't have them all the time. I have Focal seizures every 2-6 weeks. I take Tegretol 600mg twice a day and I take Buccolam when one starts which is 5mg I also take Clobazam 10mg if I feel one come on. @emkins40

MrsLogic

Hi Danny,

Welcome to the site; looking forward to getting to know you and learning more about other disabilities (I have ASD myself.)

Jo

DannyBoy2541

Thank you may I ask how severe your ASD is? @MrsLogic

MrsLogic

Certainly.  I managed to work for twenty-one years in the public sector, but always had issues there!  Mine is mainly social, with environmental elements being key to staving off excess anxiety.  I can carry out eye contact, but am not hugely keen on too much social interation.

DannyBoy2541

Thats cool that you were able to work what did you do? and is your social skills getting better? @MrsLogic

MrsLogic

I was a civil servant for years, the job changed over time and the nicer management team were replaced by younger, meaner and difficult people to work for.  My social skills vary - I still get very nervous with new things - for example, I like to attend adult education classes, but that doesn't stop me getting worried beforehand!

DannyBoy2541

That's cool my auntie used to be a civil servant now retired and I myself get nervous with new things but that's because I'm nervous of having a fit in public @MrsLogic

MrsLogic

Sorry for the delay in replying Danny.  Do you also have epilepsy or is it related to meltdowns?

DannyBoy2541

It's ok. Yes I also have epilepsy @MrsLogic

MrsLogic

My brother-in-law does too - it's a tricky condition.  Do you manage it via medication?

DannyBoy2541

Yes I do @MrsLogic

samanthabowdell

Hi Danny,  I have a daughter with CP affecting her left side. I always worry about her future and don't know anyone with the same disabilities. 

DannyBoy2541

Hi Samantha. Well I basically just go day by day and whatever happens happens mines mild so I'm able to walk but right now I'm recovering from a broken hip so I'm going through a tough time @samanthabowdell

Stayce

Hi @DannyBoy2541

Sorry to hear you are going through a tough time
at the moment having broken your hip. How is the recovery going? 

Best wishes

WheelyRachel

Welcome to the forum Danny

DannyBoy2541

Thank you Stayce recovery is going good I'm walking with a frame now but still having rough days and nights @Stayce

DannyBoy2541

Thank you @WheelyRachel

Stayce

Hi @ DannyBoy2541

Sorry to hear you are having some rough days and nights with your hip. Rehabilitation can be slow at times, and nights can be particularly tough when in pain . 

Great news that your recovery is going well and you are up and about using a frame. 

Keep at it and I am sure all your hard work will pay off. Are you getting much Physio? What is helping most in your recovery?

Best wishes 

DannyBoy2541

I'm not walking everywhere just yet and yes I try and get physio everyday depending on if I'm in pain or not and If I put my mind to it I work harder @Stayce

bendigedig

Hi Dannyboy,

im new

DannyBoy2541

Hi @bendigedig welcome to the forum don't be shy to ask any questions were here to help with anything you need.

bendigedig

Cheers Danny

DannyBoy2541

Your welcome anytime @bendigedig

bendigedig

@DannyBoy2541

alright?

Just thought Id ask how you are getting on mate?

DannyBoy2541

Still have my on and off days but I'm walking with a frame and also still in a wheelchair thanks for asking @bendigedig

GeoffBosworth195661

Hi @DannyBoy2541 Welcome I understand you are on Tegretol have you been on them long, I use Tegretol with others but took awhile to get the right balance as most that was tried out was allergic or extremely fatigue. I understand you use a wheelchair. I don't know if you are going NEC Birmingham it is free tickets to go on 28-29 & 30th March with all updated disability equipment with new  technology. I have a large stall that is promoting a variety of navigation Wheelchairs and a demonstration with one my 85 degree climb without losing speed ramps. If you are any where in the country and some one who knows you can use a tracker to locate where you are of a iPhone. It as lots stored in. If you do go we have the largest stall and not forgetting the large u shape ramp. Naidex I will be using my navigation glasses that tells me who you are if your name as been registered in the memory. This is my eyes and communication that guides me we have a good selection for different disabilities. One wheelchair disconnects and you push forward the bar it clicks into place as it moves and clicks the seat moves up so you are standing on a moving scooter type you are secured from the back. Take care Danny keep safe.       

DannyBoy2541

Thanks @GeoffBosworth195661