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Hi, my name is Rue_d!
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Rue_d
Community member Posts: 5 Listener
Hi everyone
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Scope
Senior online community officer -
I'm a 56yr old female living with a rare chronic illness called Sensory Ataxia, Neuronopathy, Auto immune Liver fibros. It started just before I turned 50 up until then I was a fit healthy person running my own business.
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Nice to meet you @Rue_d! Thank you for sharing this with us; you might be particularly interested in our rare conditions category.
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Hi @Rue_d
Welcome to our online community/family.
Please please let me know if I can help you with anything???
I’m also living with a rare disease so please let me know if I can help you??? -
Hi Steve, what disease do you have ?
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Hi @Rue_d
I have got a “Brain AVM” (Devil)
Which keeps coming back even though I have had many “Brain Opps” -
Oh I'm so sorry, I actually know what this is as my grandson has one in his popliteal fossa (muscle) behind the knee. He suffers from a lot of pain.
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Hi @Rue_d
To date it’s the damage from the surgery’s that have caused the much damage.
My Brain is full of “all sorts”
Glue & Radiation to name a few!!!!
I’m always on a “high” due to the “glue”
The “Radiation” turns me “green” at “nighttime”
“Only joking”
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Lol you have a good sense of humour x
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Hi @Rue_d
I turn into the “Incredible Green Monster” later on !!!!!
As for the “Glue”
There no “flies” on me !!!!’
“Sorry but I couldn’t resist”
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