Hi, my name is Rue_d!

Rue_d

Hi everyone

Sam_Alumni

Hi @Rue_d welcome to the community

Do you want to tell us a bit more about yourself?

Rue_d

I'm a 56yr old female living with a rare chronic illness called Sensory Ataxia, Neuronopathy, Auto immune Liver fibros. It started just before I turned 50 up until then I was a fit healthy person running my own business.

Pippa_Alumni

Nice to meet you @Rue_d! Thank you for sharing this with us; you might be particularly interested in our rare conditions category.

steve51

Hi @Rue_d

Welcome to our online community/family.

Please please let me know if I can help you with anything???

I’m also living with a rare disease so please let me know if I can help you??? 

Rue_d

Hi Steve, what disease do you have ?

steve51

Hi @Rue_d

I have got a “Brain AVM” (Devil)

Which keeps coming back even though I have had many “Brain Opps”

Rue_d

Oh I'm so sorry, I actually know what this is as my grandson has one in his popliteal fossa (muscle) behind the knee. He suffers from a lot of pain.

steve51

Hi @Rue_d

To date it’s the damage from the surgery’s that have caused the much damage.

My Brain is full of “all sorts”

Glue & Radiation to name a few!!!!

I’m always on a “high” due to the “glue”

The “Radiation” turns me “green” at “nighttime”

“Only joking”

Rue_d

Lol you have a good sense of humour x

steve51

Hi @Rue_d

I turn into the “Incredible Green Monster” later on !!!!!

As for the “Glue”

There no “flies” on me !!!!’

“Sorry but I couldn’t resist”