Hi, my name is Rue_d!

Rue_d
Rue_d Community Member Posts: 5 Listener
in Start here and say hello!
Hi everyone

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @Rue_d welcome to the community :)

    Do you want to tell us a bit more about yourself?
  • Rue_d
    Rue_d Community Member Posts: 5 Listener
    I'm a 56yr old female living with a rare chronic illness called Sensory Ataxia, Neuronopathy, Auto immune Liver fibros. It started just before I turned 50 up until then I was a fit healthy person running my own business.
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Nice to meet you @Rue_d! Thank you for sharing this with us; you might be particularly interested in our rare conditions category.
  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi @Rue_d

    Welcome to our online community/family.

    Please please let me know if I can help you with anything???

    I’m also living with a rare disease so please let me know if I can help you??? 
  • Rue_d
    Rue_d Community Member Posts: 5 Listener
    Hi Steve, what disease do you have ?
  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi @Rue_d

    I have got a “Brain AVM” (Devil)

    Which keeps coming back even though I have had many “Brain Opps”
  • Rue_d
    Rue_d Community Member Posts: 5 Listener
    Oh I'm so sorry, I actually know what this is as my grandson has one in his popliteal fossa (muscle) behind the knee. He suffers from a lot of pain.

  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi @Rue_d

    To date it’s the damage from the surgery’s that have caused the much damage.

    My Brain is full of “all sorts”

    Glue & Radiation to name a few!!!!

    I’m always on a “high” due to the “glue”

    The “Radiation” turns me “green” at “nighttime”

    “Only joking”

  • Rue_d
    Rue_d Community Member Posts: 5 Listener
    Lol you have a good sense of humour x
  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi @Rue_d

    I turn into the “Incredible Green Monster” later on !!!!!

    As for the “Glue”

    There no “flies” on me !!!!’

    “Sorry but I couldn’t resist”

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