Greetings

koukla

Hello all, Just joined this  privileged group LOL it’s not everybody that gets to join the disabled brigade LOL  I am one of the lucky ones with MS and yes I have it and it does have me LOL

steve51

Hi @koukla

Good Evening & Welcome to the gang.

I’m one of the “Community Advisors” on our site.

Please please let me know if I can help/support you in anyway???

Thanks.

koukla

Thank you steve

Ami2301

Hi @koukla
Welcome to the community! How are you today?

jane1973

Hello there @koukla how’s you?

koukla

Hello all and thank you for the warm welcome ??. I’m doin ok, thanks for asking, when the MS isn’t kickin my butt lol. And how is everyone doing today?

jane1973

@koukla im awake as usual lol thanks for asking, just took night tablets so a bit like a smartie tube , do u sleep ok? I have fibro and i can be in bed for days but still not felt that ive had some sleep, and when i do sleep i wake up like ive been set in stone lol

Mumof2ds

@koukla. X 
Welcome ? everyone's lovely here. 

XX 

Ami2301

I am OK thank you @koukla, just getting over a cold

koukla

jane1973 said:

@koukla im awake as usual lol thanks for asking, just took night tablets so a bit like a smartie tube , do u sleep ok? I have fibro and i can be in bed for days but still not felt that ive had some sleep, and when i do sleep i wake up like ive been set in stone lol

@Jane Ah  Jane, so you are one of these people who if we shake  will rattle LOL.  For the most part yes I do sleep okay, But when the wakies take hold they grab on tight lol. Is one of the reasons you have difficulty sleeping because of the pain from fibro?

koukla

Mumof2ds said:

@koukla. X 
Welcome ? everyone's lovely here. 

XX 

@Mumof2ds Thank you ?. And yes so I am seeing, makes a lovely change.  I have pretty much given up on forums, as people don’t seem to reply or even participate, nice to see a different community ?

koukla

Ami2301 said:

I am OK thank you @koukla, just getting over a cold

@Ami2301 Colds can be stinky, I am glad you are getting over your’s ?

Ami2301

Many thanks @koukla! Have you got much planned for the week ahead?

jane1973

@koukla yes i feel like i rattle, the pain if i cant get it under control keeps me awake as does my body temp is hard to regulate, if  anxious my mind and muscles wont relax ani could go on and on lol what daily struggles do you have to overcome?

koukla

Ami2301 said:

Many thanks @koukla! Have you got much planned for the week ahead?

@Ami2301 same old same old lol  but I am NOT complaining, in my life no news is good news! ???

@jane1973 I can’t imagine how difficult things must be for you.  I had a friend once who had FM and everything they owned was made out of memory foam!  At times it feels like it’s almost impossible to stay on top of  doesn’t it?  

Me? Well I am 24/7 at war with my body, probably like many others on here.  It’s a daily battle with the MS (which in my dictionary stands for My Sh*t LOL). But quite simply it ain’t gonna win lol - as they say what doesn’t kill you, you can kick up the a$$ and send back to hell where it belongs ?? LOL. 

To answer your question, daily struggles can sometimes mean just  doing the basic things if it’s a bad day.  I live on my own and get by on my own.  So far I have yet to train my crazy cat in the art of cooking LOL. I get really **** off when well meaning people say “what? No carers ?”  They don’t realise how patronising they sound ???

Sam_Alumni

Welcome to the community @koukla

koukla

@Sam_Scope Thank you Sam ?