Greetings

koukla
koukla Community Member Posts: 14 Connected
in Start here and say hello
Hello all, Just joined this  privileged group LOL it’s not everybody that gets to join the disabled brigade LOL  I am one of the lucky ones with MS and yes I have it and it does have me LOL
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  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi @koukla

    Good Evening & Welcome to the gang.

    I’m one of the “Community Advisors” on our site.

    Please please let me know if I can help/support you in anyway???

    Thanks.
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  • koukla
    koukla Community Member Posts: 14 Connected
    Thank you steve
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  • Ami2301
    Ami2301 Community Member Posts: 7,859 Championing
    Hi @koukla
    Welcome to the community! How are you today? :)
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  • jane1973
    jane1973 Community Member Posts: 175 Empowering
    Hello there @koukla how’s you?
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  • koukla
    koukla Community Member Posts: 14 Connected
    Hello all and thank you for the warm welcome ??. I’m doin ok, thanks for asking, when the MS isn’t kickin my butt lol. And how is everyone doing today?
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  • jane1973
    jane1973 Community Member Posts: 175 Empowering
    @koukla im awake as usual lol thanks for asking, just took night tablets so a bit like a smartie tube , do u sleep ok? I have fibro and i can be in bed for days but still not felt that ive had some sleep, and when i do sleep i wake up like ive been set in stone lol
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  • Mumof2ds
    Mumof2ds Community Member Posts: 146 Empowering
    @koukla. X 
    Welcome ? everyone's lovely here. 

    XX 
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  • Ami2301
    Ami2301 Community Member Posts: 7,859 Championing
    I am OK thank you @koukla, just getting over a cold :(
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  • koukla
    koukla Community Member Posts: 14 Connected
    jane1973 said:
    @koukla im awake as usual lol thanks for asking, just took night tablets so a bit like a smartie tube , do u sleep ok? I have fibro and i can be in bed for days but still not felt that ive had some sleep, and when i do sleep i wake up like ive been set in stone lol

    @Jane Ah  Jane, so you are one of these people who if we shake  will rattle LOL.  For the most part yes I do sleep okay, But when the wakies take hold they grab on tight lol. Is one of the reasons you have difficulty sleeping because of the pain from fibro?
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  • koukla
    koukla Community Member Posts: 14 Connected
    Mumof2ds said:
    @koukla. X 
    Welcome ? everyone's lovely here. 

    XX 

    @Mumof2ds Thank you ?. And yes so I am seeing, makes a lovely change.  I have pretty much given up on forums, as people don’t seem to reply or even participate, nice to see a different community ?

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  • koukla
    koukla Community Member Posts: 14 Connected
    Ami2301 said:
    I am OK thank you @koukla, just getting over a cold :(
    @Ami2301 Colds can be stinky, I am glad you are getting over your’s ?
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  • Ami2301
    Ami2301 Community Member Posts: 7,859 Championing
    Many thanks @koukla! Have you got much planned for the week ahead? :)
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  • jane1973
    jane1973 Community Member Posts: 175 Empowering
    @koukla yes i feel like i rattle, the pain if i cant get it under control keeps me awake as does my body temp is hard to regulate, if  anxious my mind and muscles wont relax ani could go on and on lol what daily struggles do you have to overcome?
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  • koukla
    koukla Community Member Posts: 14 Connected

    Ami2301 said:

    Many thanks @koukla! Have you got much planned for the week ahead? :)

    @Ami2301 same old same old lol  but I am NOT complaining, in my life no news is good news! ???

    @jane1973 I can’t imagine how difficult things must be for you.  I had a friend once who had FM and everything they owned was made out of memory foam!  At times it feels like it’s almost impossible to stay on top of  doesn’t it?  

    Me? Well I am 24/7 at war with my body, probably like many others on here.  It’s a daily battle with the MS (which in my dictionary stands for My Sh*t LOL). But quite simply it ain’t gonna win lol - as they say what doesn’t kill you, you can kick up the a$$ and send back to hell where it belongs ?? LOL. 

    To answer your question, daily struggles can sometimes mean just  doing the basic things if it’s a bad day.  I live on my own and get by on my own.  So far I have yet to train my crazy cat in the art of cooking LOL. I get really **** off when well meaning people say “what? No carers ?”  They don’t realise how patronising they sound ???


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  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Welcome to the community @koukla :)
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  • koukla
    koukla Community Member Posts: 14 Connected
    @Sam_Scope Thank you Sam ?
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