Hi, my name is sben!

sben
sben Online Community Member Posts: 49 Contributor
in Start here and say hello!
Hi, how are you all

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @sben welcome to the community.  I am good thank you, how are you? Do you want to tell us a bit about yourself?
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @sben
    Welcome to the community! I am OK thanks how are you? :)
  • jane1973
    jane1973 Online Community Member Posts: 175 Empowering
    Hello @sben im ok thanx and you?
  • sben
    sben Online Community Member Posts: 49 Contributor
    Hi all, I am good. Thank you for allowing me into the community.
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @sben and a warm welcome to the community!
  • debbiedo49
    debbiedo49 Online Community Member Posts: 2,890 Championing
    Welcome
  • sben
    sben Online Community Member Posts: 49 Contributor
    I have epilepsy, in which I have been suffering for over 7 years.
    I also have a gait disorder, which has been affecting my mobility for over 6 years.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @sben and welcome back to the community, how are you? 

    Thank you for telling us about your conditions, do you receive enough support from health professionals to manage those? Are you coping well with them?

    I hope to see you getting involved around the community :) 
  • sben
    sben Online Community Member Posts: 49 Contributor
    Hi Ross_Scope
    There is not much support at the moment for epilepsy and gait disorder.
    It is very tricky to get support for neurology care.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    I'm sorry to hear that @sben, hopefully that changes soon. Despite the lack of support, how are you managing with your conditions?
  • sben
    sben Online Community Member Posts: 49 Contributor
    It is quite difficult to deal with.
  • Barukh
    Barukh Online Community Member Posts: 57 Contributor
    Hi and welcome
  • Tori_Scope
    Tori_Scope Scope Posts: 12,452 Championing
    I'm sorry to hear that too @sben. Do you take any medication to help manage your epilepsy? Is your GP aware that you're finding it difficult to deal with? 
  • sben
    sben Online Community Member Posts: 49 Contributor
    Hi Tori_Scope
    I do take medication, and my GP is aware of the situation, but I still have a lot of seizures.
  • Tori_Scope
    Tori_Scope Scope Posts: 12,452 Championing
    Do you have a support network of friends or family around you who could check-in on you to make sure you're okay @sben? 
  • sben
    sben Online Community Member Posts: 49 Contributor
    Hi Tori_Scope

    I don't have any one, I am on my own.

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