Hello to you all.xx — Scope | Disability forum
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Hello to you all.xx

helenzx6r
helenzx6r Member Posts: 39 Connected
edited February 2019 in Start here and say hello!
Hello every1.x

I’m new to all off this after recently 
being diagnosed with disability’s.(
I hope to find answers on here  to lots of questions I have.x
«1

Comments

  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @helenzx6r

    Welcome it’s great to meet you tonight ?

    Yes we have got lots of info and advice on here for you.

    Please please let me know if there’s anything that I can help you with ❓❓

    @steve51

  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    Hi Steve 
    thanks for your lovely comment 
    I feel like I’m 
    just spinning on the spot with what’s best to claim I have put a post in another section.x
  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @helenzx6r

    That’s my Pleasure.

    Please please let me help you with things.

    We have got a “Benefit Calculater” on here which will really help with things.

    Please please let me know how you feel ❓

    @steve51

  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    I’m not finding it easy
    to get my
    head around all that’s happening at the moment.(( adjusting to my disabilities and pain is not easy..(
    im single and have no family
    support.(( 
    I am really struggling.(
  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    Hi @helenzx6r welcome to the community! 

    Sorry to hear that you are struggling, have you spoken to your GP about receiving any emotional support?
    Disability Gamechanger - 2019
  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @helenzx6r

    I’m very very sorry to hear about that!!!!!!

    Yes I have had chronic pain since 2005.

    Please please let me know where you want to start & I will see what we can do?????

    @steve51
  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    I have been suffering for years with chronic back pain.((

    I have spoken to my Gp and she has put me on a higher dose of amitriptyline...
  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @helenzx6r

    Yes I have been on Amytriptline for some years now.

    I am on the maximum amount nowadays (150mg) per night.

    Sorry to ask but are you taking any other meds???

    Are you just seeing your GP at present for your pain???

    @steve51
  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    I’m taking 30mg nightly of amitriptyline 
    and it’s not working.(
    I’m also taking naproxen 
    codeine 
    Paracetamol 
    amd im still in so much pain.(
    im
    due to go for a cortisone injection into my hip on 20th jan
    im not hopeful as they never worked when I had them in my wrists for carpol tunnel and dequervains...:/

  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @helenzx6r

    Yes I am rattling with mine and they don’t do much to be honest.

    Don’t worry it’s well worth giving the injections a try!!!!!

    Is your gp sorting this out for you????

    Please let me know if you need any further help/support?????

    @steve51
  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    I’m just really confused on applying for the correct benefits.(
    my Gp is useless if I’m honest
    i asked for a summary of my
    medical notes and there is loads missing.((  
    i need the evidence for DWP and local council to apply for my blue badge.
    I’ve asked for a medication review tomorrow
    she is going 2  to call
    me.x
  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @helenzx6r

    We have got plenty of help/advice for you to sort your Benefit’s on here believe me!!!!!

    Please please let me know if you would be happy with this way?

    @steve51
  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    I will take a look
    ive been all
    Over the internet looking
    for advice
    how I came across this site.)
  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @helenzx6r

    That’s great news!!!!

    I will be here for you.

    @steve51
  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    Dr just called and wants see me on Monday for a full review

    all I done was cry
    on the phone to her
    and  its my bday today.(( just another day for me...(

     
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Happy birthday @helenzx6r! I'm so sorry it's not been a good day so far. You've made a really good first step in arranging to see your doctor and I hope it will help. In the meantime, you're among friends here, and we're wishing you all the best.

    Do take care and do something nice for yourself today, you deserve it!
  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @helenzx6r Pleased to meet you welcome. Congratulations on your birthday.

    Sorry what you are going through. We are here to support you. You are a valued member of our community.

    I am one of the team of community champions who advise and help new members who join.

    I can understand your pain we are here to listen .

    One bit of advice I can suggest is small steps.  I know from reading wish to have advice on benefits we have a lot of information on the website.

    If it is possible speak to your local CAB office and ask for a benefit review what your entitled to.  Make an appointment and go down.

    They will tell you. Having some one face to face speaking does help.

    I am a gentleman of a certain age and cope well with this IT. Even so have some days get a lot of confusion. Forget what I am doing.  Need guidance.

    Has to be simple for me to understand .

    As for your Doctor are coping OK speaking and talking to them.

    I know even myself have and can talk have anxiety and need the services of an advocate. Sometimes.  That might help.  The practise manager of your surgery should be able to help.

    With seeking advocates that is some one to speak on your behalf if you struggle to ask for what you need.  I believe NHS websites might have information on them.

    One further point wish you well . Keep in touch anytime.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    Happy birthday @helenzx6r! I'm so sorry it's not been a good day so far. You've made a really good first step in arranging to see your doctor and I hope it will help. In the meantime, you're among friends here, and we're wishing you all the best.

    Do take care and do something nice for yourself today, you deserve it!
    That’s very kind of u thank you.x
    i am spending another day indoors hiding away 
    trying to cope with the pain.((

  • helenzx6r
    helenzx6r Member Posts: 39 Connected
    Hello @helenzx6r Pleased to meet you welcome. Congratulations on your birthday.

    Sorry what you are going through. We are here to support you. You are a valued member of our community.

    I am one of the team of community champions who advise and help new members who join.

    I can understand your pain we are here to listen .

    One bit of advice I can suggest is small steps.  I know from reading wish to have advice on benefits we have a lot of information on the website.

    If it is possible speak to your local CAB office and ask for a benefit review what your entitled to.  Make an appointment and go down.

    They will tell you. Having some one face to face speaking does help.

    I am a gentleman of a certain age and cope well with this IT. Even so have some days get a lot of confusion. Forget what I am doing.  Need guidance.

    Has to be simple for me to understand .

    As for your Doctor are coping OK speaking and talking to them.

    I know even myself have and can talk have anxiety and need the services of an advocate. Sometimes.  That might help.  The practise manager of your surgery should be able to help.

    With seeking advocates that is some one to speak on your behalf if you struggle to ask for what you need.  I believe NHS websites might have information on them.

    One further point wish you well . Keep in touch anytime.

    Please take care.

    @thespiceman
    Thank you for your lovely kind reply
    was very kind of you.x
  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @helenzx6r Thank you for kind words.  My pleasure .

    I hope my post and @Pippa_Scope helps and eases the pain on this your birthday.

    Birthdays are I know difficult days .  I know being on my own as well .  What I do my little tip is be good and kind to yourself.  Make a special meal for yourself.  Have some relaxation time try to think of things positive.

     The big step you have done is talking and we as a community are here to share and care.

    You are not alone. Always some one here for a chat.  Anytime.

    Hope what happens the rest of the day is good for you.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes

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