Late introduction

April2018mom

Hello

I'm April a mom of two active toddlers who keep me busy! One of them was prenatally diagnosed with SB- spina bifida at 20 weeks and is a full time wheelchair user as he has no leg function at all. He is a happy health almost 3 year old child however who loves art. I love art myself as well. I'm in my early twenties and live abroad far from my family. I was originally born in America but moved to the UK at 4 years old. I love reading but rarely have the time to sit down with a good book these days. 

P.S sorry for the rather late introduction. 

steve51

Hi @April2018mom

Good Afternoon & Welcome???

I am one off a number off Community Champion’s here at Scope.

We have got some good advice/help on here.

I will post the info below for you:

https://www.scope.org.uk/advice-and-support/families-with-disabled-children/

I do hope that this is okay????

Please please let me know if there’s any problems!!!!!!

@steve51

April2018mom

Arr, thanks!

Connie00

Hi @April2018mom

Hello April am one off the community Champion’s here at Scope.  it’s really nice to meet you.

thanks so much for sharing your life with us, sorry about your Son but like you say he is a happy little boy and that is all that matters, what part of the World do you live in, it sucks when you are so far away from Family? I loved to read but found I could grasp the reading any more, I now do audio books, I listen  to these when I iron, shopping any housework, maybe you should try it, I have an earpiece in so I can still hear what’s going on around me.

Have you got anyone in your life?

Connie00

 

 

April2018mom

I have my partner. His family live in Guildford. 

Connie00

well glad you have someone to share your life with 

Adrian_Scope

Thanks for sharing this @April2018mom. It's always good to learn more about our members.

Ails

Hi @April2018mom and thanks for sharing your introduction.  You sound as though you are kept very busy with your toddlers.  Thanks for highlighting Spina Bifida which I have also.  That's good your wee boy enjoys his art.  When I was a child my parents found the Spina Bifida Association to be a great support network for them so here is their website if you want to have a look:-

https://www.shinecharity.org.uk/

All the best. 

April2018mom

Ails said:

Hi @April2018mom and thanks for sharing your introduction.  You sound as though you are kept very busy with your toddlers.  Thanks for highlighting Spina Bifida which I have also.  That's good your wee boy enjoys his art.  When I was a child my parents found the Spina Bifida Association to be a great support network for them so here is their website if you want to have a look:-

https://www.shinecharity.org.uk/

All the best. 

Just out of curiosity what is your lesion level? My son is L1 downwards but I have “met” others who have kids with lower lesions over the years post diagnosis day. Pleased to “meet” you too! And yes. Today at breakfast he almost sprained his foot. 

Ails

Hi @April2018mom and sorry for the delay in getting back to you.  How are you?  My lesion is L1 also.  How is your son's foot now?  

April2018mom

Ails said:

Hi @April2018mom and sorry for the delay in getting back to you.  How are you?  My lesion is L1 also.  How is your son's foot now?  

He is much better. We had to be careful as he has no sensation in his feet at all. 

Ails

Yes, wise to treat with care.  Glad your son is much better @April2018mom.