Hi, my name is Leelee51! — Scope | Disability forum
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Hi, my name is Leelee51!

Leelee51
Leelee51 Member Posts: 69 Connected
Hi everyone, thankyou for the welcome, I look forward to chatting with some of you, because I will be needing help and advice on some things. 

Comments

  • chiarieds
    chiarieds Community Co-Production Group Posts: 12,265 Disability Gamechanger
    Hi @Leelee51 - Welcome to the community, & thank you for joining us all here. Please say what help & advice you might need as there is often someone here who may be able to relate/help.
  • Tammyjane33
    Tammyjane33 Member Posts: 761 Pioneering
    Hi @Leelee51 I hope you are well. Have you had a good day today?
    Welcome to the scope online community. I'm Tammy one of the volunteer community champions here on the site 
    Feel free to ask any questions and we will do our best to assist you 
    Nice to meet you and it will be nice getting to know you.
    Take care 
    Tammy ? 
  • Tammyjane33
    Tammyjane33 Member Posts: 761 Pioneering
    @chiarieds hi ?how's your day been? I hope you are well, talk soon
    Tammy 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 12,265 Disability Gamechanger
    @Tammyjane33 - the wrong day to ask about as I've been full of sneezes. Don't worry Leelee51 - I'll not give you cold; it's an allergy problem! I look forward to chatting with you both.
  • Ami2301
    Ami2301 Community Co-Production Group Posts: 7,946 Disability Gamechanger
    Hi @leelee51 and welcome to the community! :)
    Disability Gamechanger - 2019
  • Adrian_Scope
    Adrian_Scope Posts: 8,551

    Scope community team

    A warm welcome to the community @Leelee51. You mentioned needed some advice on things and I was wondering if there is there anything in particular we can help you with? 
    Community Manager
    Scope

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  • Leelee51
    Leelee51 Member Posts: 69 Connected
    Hi all, thankyou for the messages. Here goes, my story, i have been diagnosed with osteoarthiritus of the knees, restless leg syndrome and chronic back pain, i have been house bound, apart from 1 or sometimes 2 days a week for the last 18 months, i also have severe anxiety and depression, which being stuck in the house doesnt help with. I want to get out more, but when my partner is working i cant, as im not able to walk far. I have recently lost my job, which i knew was coming, they did keep it open for me up until now, but there is nothing i could do if i went back, even though i woudnt even be able to get there anyway. What i need is some socialisation of some sort, but my anxiety holds me back on going to groups etc, is there some sort of group that does like a friendship thing, where maybe someone visits you once a week or something? Im based in sheffield and im 51 years old, and really didnt expect my life to be like this if you asked me 2 years ago. Sorry for the long waffle on, and thankyou for reading. 
    Lisa x
  • Adrian_Scope
    Adrian_Scope Posts: 8,551

    Scope community team

    edited December 2019
    Hi @Leelee51. Thanks for sharing this. I'm glad you're taking steps to combat the isolation. Have you tried a befriending service?
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  • Leelee51
    Leelee51 Member Posts: 69 Connected
    I wouldn’t know where to start to be honest, do most cities have them? 
  • Adrian_Scope
    Adrian_Scope Posts: 8,551

    Scope community team

    Hi @Leelee51. Here's a list of some companionship/befriending services near Sheffield. Obviously many of them are geared more towards people older than yourself, but there might be something useful for you there.
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  • Leelee51
    Leelee51 Member Posts: 69 Connected
  • chiarieds
    chiarieds Community Co-Production Group Posts: 12,265 Disability Gamechanger
    Hi Lisa, thank you very much for sharing about the problems you now find. I've got the OA knees & chronic back pain, so can relate to that!
    As far as your anxiety & depression go, I'll ask my friend @thespiceman as he knows a lot about it & has some resources that may very well be worth seriously looking into.
  • Leelee51
    Leelee51 Member Posts: 69 Connected
    Hi, thankyou so much, it is very much appreciated. Can I ask you, what if anything do you take for the pain? I can’t take anything as strong painkillers cause me to have more anxiety. 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 12,265 Disability Gamechanger
    edited December 2019
    Hi Lisa, altho' I mentioned OA, the worst pain I have is neurological, & I take a low dose anti-epileptic, which just dampens the pain down a bit.
    I have a genetic disorder which has caused generalised OA since I was 40. Most pain medication for my joints either didn't work, or made me ill.....the case for many people with their meds unfortunately. I'm sorry you're in the same boat.
    The one thing, strange to say, that helps my back pain (the least of my worries!) is cannabidiol (not like cannabis, as it only has trace elements of THC, which is the psychoactive part. I buy mine online & it's very reasonably priced. If you'd like to know more, just say, & I'll get back to you.
    Hopefully my friend will be able to help you too.
  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    edited December 2019
    Hello @Leelee51   Pleased to meet you.

    Thank you from me to my friend @chiarieds    tagging me in.

    I am one of the community champions on the forum.

    Sorry to hear you experiencing mental health issues.

    Three charities I used..

    https://www.richmondfellowship.org.uk.

    https://www.mind.org.uk.

    https://www.rethink.org.

    All charities offer the following floating support, benefits advice, well being on coping with your issues. Advice and guidance.

    Health issues medications, sleep anything else health wise. Addiction, alcohol and drug abuse.  Diet, nutrition and more.

    Any additional problems or disabilities take on board signposting  attending benefit assessments. Benefit form filling in etc.

    Might not be in all areas.

    Rethink advocate charity helpful with medical professionals. Speak to you on your behalf.

    I have mental health my self with a disability addiction history.  Been clean twelve years  Knowledge, education any advice happy to share.

    On anything mental health, diet nutrition.  Please ask me anything, if I can help .

    Other links may be useful for you.

    National Osteoporosis Society 

    also Osteoarthritis

    Helpline 0808 800 0035

    For Chronic Back Pain .

    https://www.spinal.co.uk.

    All aspects of back pain and spinal injuries lots of information, support.

    Helpline 0800 980 0501

    Other links may be of interest.

    https://www.awaywithpain.co.uk.

    Organisation deals with chronic pain.

    The organisation for restless legs syndrome.

    https://www.rls-uk.org.


    Please take care.

    @thespiceman
     

     

    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Leelee51
    Leelee51 Member Posts: 69 Connected
    Hi spiceman wow, thankyou so much for all the info you provided, I will take my time and give it all a good read, hopefully I will get some help from it, thankyou again.
    Lisa
  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @Leelee51   Thank you for kind words, a pleasure to help you anytime.

    Please ask anything happy to help.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes

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