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Hi, my name is sarahjayne1803!

Hi everyone I have recurring pyleonephritis which causes permanent kidney pain and im itruggling a lot at the min with depression so thought talking may help

Replies

  • chiariedschiarieds Member Posts: 7,994 Disability Gamechanger
    Hi @sarahjayne1803 - Welcome to this community which I've found so very supportive. Yes, talking about the issues we face often helps. I'll ask my friend @thespiceman for his advice, as he has a great understanding about the mental health issues that so very often accompany pain.
  • sarahjayne1803sarahjayne1803 Member Posts: 2 Listener
    Thank u I feel like im not functioning anymore because of pain in on strong meds but they don't last full day which just makes the depression worse which makes me feel useless and the cycle continues x
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    edited December 2019
    Hello @sarahjayne1803     Pleased to meet you.

    Thank you for joining and sharing. Thank you to my friend  @chiarieds . For mentioning me.

    Pleasse can I add I am one of the team of community champions.

    We guide, advise and help members of our community.

    I have mental health issues my self and do know it is essential to get some access to support. Coping and dealing with pain, also give you links for those.

    Organisations relevant to your pain, other conditions.

    I use these three for my mental health.

    Offer floating support, well being advice . Any issues on benefits.  

    Take clientele with additional conditions, disabilities.

    https://www.richmondfellowship.org.uk

    https://www.mind.org.uk

    https://www.rethink.org.

    Last one is an advocate charity speaks on your behalf. Medical professionals or Doctors.

    For your pain and any advice with that.

    https://www.awaywithpain.co.uk/

    You mentioned problems with your kidneys. This  organisation offer a lot of information, support.

    https://www.kidneycareuk.org.

    Helpline 01420 541 424

    Please if you have any questions happy to answer, be supportive.

    Always here to listen, have empathy and compassion.

    You are not alone, please keep in touch.

    Anytime we are here.

    Please tag my name this helps you to get to me.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,934

    Scope community team

    Welcome to the community @sarahjayne1803. :smiley: Please don't hesitate to ask if there's anything in particular we can help with. :smile:
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi @sarahjayne1803 and welcome to the Communiity.  It is nice to meet you and thank you for sharing with us.  I'm really sorry to hear of your health struggles.  We are all here to support you so anytime you wish to chat then please do so as there will always be someone on here to listen.  Lots of lovely, supportive people on here so you are not alone.  I suffer from some pain myself and know how debilitating that can be and can appreciate if if is making you feel depressed.  You have been given some very good links and information above by @thespiceman and we are only too happy to support you anytime.  I hope you enjoy your time with us and look forward to seeing you on here.  If there is anything you need at all then please don't hesitate to ask.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
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