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Hi, my name is london80!

london80london80 Member Posts: 3 Listener
Hi ive had HS for 4 years and im struggling with the pain. Its in my groin area so walking,sitting and standing are painful. I also have chrons diesese. It has really is taking its toll on my day to day life. Does anyone have any advice on pain relief ?


  • Rifi7Rifi7 Member Posts: 188 Pioneering
    Hi there london80,
    I have spina bifida and suffer from pain. Like you it hurts when I stand or sit. The thing that used to give me relief was walking but now I have cysts growing in spine which are growing and causing my legs to go numb. I can’t recommend medication as I’m not a doctor but what really helps me is that I have been taking CBD oil, which I have be taking for sometime, and combined with meditation and reading a book called rethinking pain, which is an eye opener this has helped a lot. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    HI and welcome,

    I'm one of the community champions here on scope. Unfortunately, because we are not medical professionals here then we don't be able to give you any medical advice. I'd advise you to speak to you GP regarding this.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • london80london80 Member Posts: 3 Listener
    I was just wondering if anyone had any home remedies or tips on how they deal with pain or to help me feel less uncomfortable. 

  • chiariedschiarieds Community champion Posts: 6,896 Disability Gamechanger
    Hi @london80 - Welcome to the community. I'm sorry to read you're struggling with the pain. As mentioned, this would be best discussed with your GP, or specialist if you're seeing one.
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