The Green Paper Discussion (the document link is here too!)

I agree . For one thing the 4? Points clearly discriminates against certain levels of disability so you can get 20 points , go through all the system and have no award . Nit to mention the wca and pip assessment were different tests . Unless they incorporate the assessment for sickness into pip assessment it’s basically excluding ppl who are sick . And there’s no safety net , everything hangs on those 4 points . Kendall knows the assessors are the ones committing fraud not us hence covering their back with recording . Obviously sometimes the recording equipment doesn’t work. Or in my case they didn’t have any available but didn’t realise until a hour before my test .

I have ME amongst other things and over exertion or exercise is considered dangerous. I will be asking them to take personal responsibility if I become worse .

a lot of dwp staff are on pip so I’ve been told . I know for a fact Atos staff are as one answering the phone to me told me

Hi , so does that mean the 4 Points situation cannot be fought in law as that seems to be the gateway to benefits now . What I don’t understand is when Tory’s tried to bring in new laws everything seemed to get stopped by legal action and our courts or the echr . Does it mean had they brought things in as primary laws they could have passed everything they pleased ?

My worry is how will people afford their prescriptions if they lose their benefits.

I take 13 different medications per day and I know many people will be on similar or even more medication.

I was expecting a light touch review in 2029 but if their goal is to get as many people as possible off of PIP then I may not be okay despite scoring 4's under the current system. It doesn't make me feel happy or good that so many other disabled people are going through so much anguish over the possibilty of losing their PIP and then LCWRA and potentially inability to afford their medication.

I just don't get why he was a human right's lawyer - unless he's got those sociopathic traits that some surgeons etc have (not talking about serial killers, there are sociopaths who don't harm people) and he was in it just to win etc. I suppose it'll depend how much Labour want to win another election. MPs get a lot of perks (expenses anyone) there will be labour MPs that absolutely will not care about us, but they will care about loosing their seat, perks and expenses (how many of us would like subsidised food and drinks, travel expenses, rent expenses…). The weird thing is Labour's Renters bill is actually good and will help a lot of people but then they act like total sociopaths to anyone who they feel is not 'economically active' - except they forget that includes children, early retirees, pensioners, unemployed, maternity/paternity, stay at home parents, some full time students, employed people on zero hours contracts - now that is a huge swath of people and every single person will be in one of those catagories in their lifetime, guarenteed. It's not just that this reform bill is cruel and unnecersary, it's really, really, really badly thought out. It'll impact people waaaaay beyond just the disabled (carers, NHS, family, employers of disabled/sick people, the economy - good luck when disabled/sick people can't afford to buy goods and services). Thing is Labour like Tories are pos in a death spiral. They don't know who they are or what they want. Too many gen public people were against Corbyn, they're too afraid to go for a socialist/Bernie Sanders type so that leaves the centeristist types, and somany people in govt (of all kinds) are so, so afraid and in awe of billionaires. I honestly think money - the persuit of making more and more and more (specifically for billionaires) is more addictive than crack and sugar combined (sorry for rant)

Wow, what an interview. This is a master class on MP's letting power totally change them

I have met this guy in real life, This person I have no idea who he is.

I noticed the same on my PIP scores when I checked yesterday, when I got PIP I was so releaved and stressed that I didn't pay attension to the points I got or why.

When I've been relooking over mine there are things that I definately should've gotten more points but but I don't know if it would give me 4 points in any catagory - from what I understand a lot of assessors do not give 4 points in one catagory - partly because (and this isn't their fault) they are often not medical experts.

Also I'm not an expert or anything like that, but what I'd suggest for you is:

1. check you Charlie Anderson on YouTube, she explains the PIP point system pretty well. It's a it like computer language - once you understand the language of PIP and the point system it helps a lot. A lot of PIP is about how you explain things to them and how that translates into points
2. Infomation is key. When you have your next review (I'm assuming it'll be a form again) fload them with infomation. This falls into two catagories. a) Firstly a lot of people explain what they can't do or struggle to do on PIP forms and that makes sense. But you also need to explain how it effects you. Be blunt, brutal and explicit. I know this is difficult - I didn't explain as well as I should've issues I have involving personal care because it's embaressing (I don't talk to my GP about it either) but from what I gather this is key. Explaining in mind numbing, minute detail (you can attach extra pages for each section). b) Someone else recommended getting your GP notes (all of them) and attaching them. You can sometimes download them, or you can request a copy. Include them. Include all reports from any health care professional, statements from anyone who helps you with your disabilities (family, friends, carer (professional or not), counsellor, physiotherapist, chiropractor etc etc). If you fluctuate day to day or even during a single day again be painfully explicit about this. How it effects you physically, emotionally, mentally. How does it effect your life in even the smallest details. If you need to be reminded to do stuff - put it down, if you use a pill box for medication put it down (if you have medication and don't have one I strongly suggest you do). I have a poor short term memory and use Alexa to constantly remind me things - if friends and family have to remind/help/coax you - put it down, how often, what happens if they don't etc.
3. Consider going on an AI website (chatgpt or claude are free) explaining your syptoms, disability, how it effects you and impacts, everything that I said above and ask it to write or give improvements - make sure you specify to the AI that this is for a PIP review you've got (AI will hvae some knowledge about PIP in it's database) and also specify you're in the UK. You can explain to PIP that you have been under scored points in PIP and ask it to suggest things you can add in that will improve your PIP - but you need to explain your health, struggles etc
4. If you can, keep a diary or log of your symptoms, how they impact on you. If you can't do something or struggle to do it, what's the impact on you, how does it effect you in that moment, waht ramifications does it have on you for the rest of the day/hour/week etc
5. If someone is willing ask them to help fill out your PIP re-assesment with them
6. Go to the GP (if you can get an appointment) explain how much you are struggling physically, mentally, emotionally etc, (this will give you an up to date medical record for PIP to see) and request they put in a referal for a social perscriber. They can help you with a bunch of things - I had one who recommended I apply for PIP), they might be able to help with all kinds of things - finances, support, referals, filling in PIP (also on the renewal form put down that you have one), there's a waiting list (but not years etc) but they can help. There's a bit more about stuff they can help with here: https://www.england.nhs.uk/personalisedcare/social-prescribing/
7. There's also support on places like Turn2Us: https://www.turn2us.org.uk/get-support/information-for-your-situation/claiming-personal-independence-payment-pip/review-or-renew-a-personal-independence-payment-pip-claim#:~:text=It%20is%20important%20that%20you,are%20getting%20the%20right%20amount.

That's all I've got so far - hopefully it's of some use to you. I'll try to add anything if I think of it