The Green Paper Discussion (the document link is here too!)

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  • lukemc
    lukemc Online Community Member Posts: 5 Listener

    My name is Luke I am diagnosed with autism and one aspect of my condition is the fact that I ruminate and worry I used to receive a lifetime/indefinite DLA award when migration to PIP took place I was initially awarded zero points and had to attend a tribunal which awarded me daily living enhanced rate and mobility standard rate for an ongoing period the award letter said it was not appropriate to set a fixed term in this case as my condition is unlikely to change. The Green Paper does mention that ongoing awards are not going to be abolished but I am still anxious as I have read posts on here suggesting that when the new descriptors come in there is a possibility that they will want to reassess everyone including ongoing awards can anyone let me know what you think will happen just to put my mind at rest I do have 4 points btw on social communication but do you think it will be a violation of the Equality Act to remove the daily living component from me if they said my condition is not likely to change in the award letter? Just asking if anyone has an idea of what will happen with ongoing awards as there does not seem to be much info online or in the press about this I did feel better after reading the green paper yesterday mentioning that ongoing awards are to continue but recently I have been stressed again as I read a post on here last night suggesting that everyone will be reassessed like in the DLA to PIP migration anyway I have demanded a face to face meeting with my MP which I am expecting to get shortly and will put that question to her.

  • Middleton
    Middleton Online Community Member Posts: 263 Empowering
  • mawempathy
    mawempathy Online Community Member Posts: 150 Empowering
  • charl1234
    charl1234 Online Community Member Posts: 301 Empowering

    I don't know if I can write this elsewhere but anyone else feel physical sick, I have had diarrhea, and sleeping issues, SH and I carnt get past this I'm so scared I think people will become suicidal at this, do u really think it will happen to this extent

    I'm under mh services FYI xx

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    are they planning on changing the form questions itself ? I thought I read one of them (Timms?)say they’ll be looking at it years down the line after looking into the assessments ?

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    just watched kernowdamo on YouTube regarding two resignations, one from a MSP . He read his resignation letter to Starmer and it’s everything we’d love to say .

  • Middleton
    Middleton Online Community Member Posts: 263 Empowering

    BBC news

    Pip assessments involve questions about tasks like preparing and eating food, washing and getting dressed. Each is scored on a scale from zero - for no difficulty - to 12 - for the most severe - by a health professional.

    For example, needing help to wash your hair or your body below the waist, would be awarded two points, but needing help to wash between the shoulders and waist would equate to four points

    How on earth does this make sense!

  • Middleton
    Middleton Online Community Member Posts: 263 Empowering
    edited March 2025

    So, the Navel and mid-scapula are now the criteria

    Ooops! maybe it doesnt mean navel; but rather the mid shoulders down to waste🤔

  • mawempathy
    mawempathy Online Community Member Posts: 150 Empowering

    Some of the questions on the form will change alongside the descriptors I would think. No point asking questions that are no longer relevant to scoring the assessment. But it's all guessing at the moment not even the government has got the answers yet.

  • Middleton
    Middleton Online Community Member Posts: 263 Empowering

    If this is at all fortunate for me; its on record(all typed out in the assessment) that I couldn't place either arm behind my back🤔

    That still doesnt mean they wont mess with me, but i'll be bringing that up in the coming renewal

  • Middleton
    Middleton Online Community Member Posts: 263 Empowering
  • mawempathy
    mawempathy Online Community Member Posts: 150 Empowering

    It sounds crazy, doesn't it? It's all about giving the assessor the tools to limit your score by setting as many traps as possible.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    last time I looked my head was above my shoulders so completely stupid. Though Someone did say maybe washing your back ? But as someone with fibromyalgia and cervical spondylitis plus tennis and golfer’s elbow pain changes all the time

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    in my experience last time assessor asked questions that would award 2 points only . I got my full points for an award but wouldn’t in those circumstances now . This was a couple of years ago and apparently common. Next time I’ll be more vigilant to their scam

  • evelyncourtney
    evelyncourtney Online Community Member Posts: 104 Empowering

    Where have they said that the descriptors are changing?

  • Tonawanda17
    Tonawanda17 Online Community Member Posts: 178 Contributor

    Hi, i'm sorry to keep asking this but i posted yestarday and haven't noticed if i have had a reply. I am long term disabled with cerebral palsay. I am on CB ESA Support group and pip (NO UC). Does anyone know what will happen when my claim comes up for review. Will i move over to the suggested new time limited benefit? Thanks

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    I imagine some questions will have to incorporate the wca element otherwise surely discrimination

  • charlie72
    charlie72 Online Community Member Posts: 259 Pioneering

    When are they starting these reassessments for LCWRA? It all seems a bit vague at moment with some saying it's for people who's circumstances may have changed since their last one, like pregnancy and those recovering from cancer, is this true as green paper is mind boggling!!

  • snuggles65
    snuggles65 Online Community Member Posts: 123 Contributor

    Hi

    My pip is due for renewal Nov 26 so will I have to through the new assessment and will I need the 4 points?

    My hubby as irESA support group and enhanced on both will help be ok if s gets the enhanced. We have to move by 7th June to UC

  • carbow32
    carbow32 Online Community Member Posts: 256 Empowering

    that's what it said on the green paper and then to move onto other people who are likely to have a change in award.

This discussion has been closed.