Green Paper Discussion (from 24th March, 2025)

1121315171864

Comments

  • mawempathy
    mawempathy Online Community Member Posts: 150 Empowering

    Is it confirmed they've taken that condition out of the assessment?

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    Good morning everyone,

    For anyone interested there’s a new video from The justice journals on YouTube regarding PIP and ASD . It’s only short but someone may find it interesting.

  • evelyncourtney
    evelyncourtney Online Community Member Posts: 104 Empowering
  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing
  • luvpink
    luvpink Online Community Member Posts: 3,211 Championing
  • mawempathy
    mawempathy Online Community Member Posts: 150 Empowering

    Yes I try to escape the news by telling the algorithms please don't feed me content about UC, PIP, LCWRA, etc. But stuff still gets through and obviously, at the moment, when its the topic of national conversation it is everywhere. At least now I've found Scope I have somewhere to turn when the news crushes me back down to feeling the lowest.

    The thing I just want is some stability. If they have to cut some stuff, do it, but then please try and commit to sticking to some kind of plan. Don't come back in a few years and start making radical changes that stir up new crisis's in the mind. It's too much to take.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    I had my last assessment about 2 years ago and she basically questioned me on only two point answers even though I said of go at least one 4. And I actually had an increase from lower to higher care awarded. It is as though this was a plan even then. All labour plans seem to follow the Tory plans as they have no ideas of their own.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing
  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    morning Catherine,

    Well the Labour Party especially Starmer are big advocates of the ECHR. I don’t think anyone goes against them usually so it would be very telling if they ignored any rulings now .

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 420 Empowering

    Because if they change the goal post they can say you do not qualify for daily living at all , which saves them 76-108 quid a week, but it also saves them paying carers allowance . In effect they are saying in one assessment that someone is ill or disabled enough to be awarded pip, then they change the criteria which then makes them liars because people will be assessed as not ill or disabled enough . It has to be abolished and left alone . I got 10 points daily living when I was awarded , I couldn't get the extra 2 for my hearing loss because my test was still pending , my review is after March30th this year and I have two hearing aids for profound hearing loss. I nearly got knocked down by a car last week because I do not hear traffic , and I was today at my appointment told by my audiologist I need to be very aware and keep looking as I just don't hear well . I never got any 3 or 4 in my assessment . I don't know if I will this time unless the fact I don't hear traffic gets me a 4 . I hope I am awarded again and for 3 years or more as it will take me 2 years before i retire , being awarded pip for ten years would be nice as i'd get it with my state pension . I am a cancer survivor and still having follow up until 2028 and won't be discharged as it was a high grade tumour . I hope your husband will be okay.

  • Maggie37
    Maggie37 Online Community Member Posts: 77 Empowering

    Announcement also filtering through this morning that 22 billion is now being allocated to Defence by Reeves.. here’s the thing. Much as I support Ukraine and know the defence budget needs upping in the face of world events Trump/ Putin… why is Starmer turned into Churchill?? We don’t even know what the outcome of any peace talks yet? Why British troops on the ground..? It’s like he’s narcissistically placing himself at the foreground whilst his own country goes to dross. It’s sickening to think that the benefit cuts are about one little man( and his gang).. and his egotism on the world stage.

  • MW123
    MW123 Scope Member Posts: 1,679 Championing

    I believe past scores are irrelevant if the wording of the descriptors changes. Future descriptors could be worded differently, meaning previous assessment scores won’t guarantee future outcomes.

    In my last review, four descriptors on the daily living PIP form applied to me, and I scored 4 points for each, totaling 16 points. However, there’s no guarantee the descriptors won’t change, and I could score 0 next time.

    I don’t feel safe despite my past scores, instead, I feel deeply uncertain about qualifying in the future. I worry the assessment might be redesigned to ensure more people fail.

  • FluffyCatMeow
    FluffyCatMeow Online Community Member Posts: 95 Contributor

    what condition? (sorry, I’m getting lost and confused with all the posts 😅)

  • Tumilty
    Tumilty Online Community Member Posts: 466 Empowering

    Hi all, is this where reaction to the spring statement will take place please? It kept saying 'page not found'

  • calflye
    calflye Online Community Member Posts: 109 Empowering

    Really struggling today with the news of benefit cuts but can't help to need to stay updated. I just want to curl in a ball and cry about it. I can't work at the moment so get PIP and UC LCWRA, I don't have 4 points on PIP for one descriptor so I'm losing that along with most likely LCWRA when that change comes. I have a lifelong condition. It's just not fair. They cut and cut at benefits, target the disabled and even proposing cutting free school meals to those who need it. In the same week, they get announced a pay rise.

    There's times I feel on the verge of giving up because of these benefit cuts and today is one of those days for me. I've worked so hard in getting as stable as possible in a short time but now I'm just going back down again. What do the Government do about it? Further label their changes as "moral".

    Are we allowed to email those in the Government's cabinet or other MPs in other areas to me? I'm trying to do everything I can, I've already emailed my MP, filled out the consultation, signed petitions for charities in support of us, I just feel like I should be doing so much more. It's really getting me down and today, it's really affecting me

  • luvpink
    luvpink Online Community Member Posts: 3,211 Championing

    I believe you are right.

    I bet there will a lot of general outrage after todays Spring budget.

  • mawempathy
    mawempathy Online Community Member Posts: 150 Empowering
    edited March 26

    The face-to-face descriptor in the PIP assessment. You can currently score up-to 8 points for it for the most severely disabled, but there's talk they are going to remove the face-to-face disability entirely from the PIP assessment.

    This is the condition for people who rarely leave their homes because they can't handle face-to-face interactions with people, or being around people in general, which is a problem I have with my autistic diagnosis. It has plagued my life and I don't know how anyone can say it isn't a disability when (in my case) I couldn't cope with schooling, developing friendships, working around others, being around others, etc. It has literally destroyed any hope of a normal life and I've tried all the counselling, medication, primary care nursing, forced social situations, etc.

  • Santosha12
    Santosha12 Online Community Member Posts: 3,023 Championing

    Very true, I wouldn't be able to pay even water rates who can't put me on a meter because of my health. I think that's classed as a priority bill.

This discussion has been closed.