Functional Electrical Stimulation (FES)

Madtricyclist
Madtricyclist Online Community Member Posts: 10 Contributor
edited April 16 in Cerebral Palsy Network

Hi I have my first appointment for this soon & wondered if anyone with CP Diplegia has tried it & how it works for them? I'm in my late 50s & can't wait to give it a try. I'm hoping for no more scuffing of toes & the ability to walk outdoors with more confidence even if I still have to use my sticks or rollator.

Comments

  • noonebelieves
    noonebelieves Online Community Member Posts: 627 Championing
    edited April 17

    Hi @Madtricyclist,

    Good Morning!

    It’s really lovely to hear about your upcoming Functional Electrical Stimulation (FES) trial -you sound hopeful, and I’m genuinely excited for you!

    While I don’t have CP diplegia myself, I’ve seen functional electrical stimulation (FES) systems like the ODFS PACE XL/OML LINQ™, and Bioness L300 Go being used with adults and children with cerebral palsy and other conditions affecting mobility. I was recently at the Naidex and Neuro Convention in Birmingham, where the Odstock and other FES teams demonstrated some of their latest innovations- it’s inspiring to see how far assistive technology has come.

    In my previous clinical role, I’ve seen positive outcomes with FES -especially in stroke and MS patients-and I’ve also seen how, in some cases, it can be used in conjunction with physiotherapy or adjuncts like Botox where spasticity is a concern. Of course, everyone responds differently, which is why trials like the one you’re doing are so valuable.

    Since every situation is unique, I’d gently encourage you to speak with your consultant, neuro-physiotherapist, or the Multidisciplinary team(MDT) involved in your care beforehand. They’ll be best placed to advise on how to prepare and whether other therapies might work alongside FES to support your goals.

    Wishing you all the very best -I really hope it brings the improvements you’re hoping for in terms of confidence, balance, and fewer “toe scuffs”!

    And if you feel up to it, do let us know how your appointment goes. Your experience could be incredibly helpful for others in the community.

    Warm regards,