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what is one area of profound impairment classed as ? I’m in constant pain and fatigued to where I’m house / bed bound most of the time . Surely that’s a profound impairment yet I don’t get 4 points but am on higher care .

the assessors don’t award it . It’s almost as though they saw this coming

I don’t know how they award 10 year light touch awards . There’s no cure for my conditions but my last assessor gave me two years. Dwp increased it to 3 . I can’t get better with age can only get worse.

I was first awarded enhanced for living and mobility for 4 years in 2016 and out of the blue I received a letter in 2019 saying it had been reviewed and was changed to an ongoing award for both and wouldn't be looked at again til 2029. 13 points for daily living (4, 4, 3 and 2) and mobility 12 points, so it's really worrying to think the daily living could be taken away if I don't get the 4's next time around if they change the descriptors. I'm guessing what was said previously won't count for anything either?

You shouldn't have to fight and appeal all these draconian measures, we would all love to not be reliable on the state and have our health back!!

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I also get 13 points for care but no 4 points and was advised badly when I went to MR over mobility. I wish I had appealed the 4 points then but will next time . I’m sure with your score you’ll be fine though .

omg that sounds awful. They definitely can’t take your points away. It’s all so terrible like we are left playing the lottery . Whoever has the worse condition wins the prize . Totally disgusting when you think what we are fighting for they get in expenses every day .

I emailed starmer , Reeves , Kendall , Rayner and Timms months ago saying exactly that . I told them they keep stating there are millions of disabled people, well that’s a lot of votes to lose. Today I emailed Emily Thornberry my previous MP who actually helped me fight for PIP in the past. There was a demonstration outside her offices and town hall last week too. I think maybe it would be helpful if we had a list of MPs we should email whether they’re our MPs or not . I’m not expecting a response but it shows them how we feel. They all need us to let them know if they abstain or vote for the cuts they lose our vote. I actually read what the MP said and couldn’t believe how blatant his selfishness was . Total lack of self awareness.

Being reported in The TImes newspaper today 'spending on disability benefits to soar by 2030 despite cuts'.