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  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I’m sure I read he’s a religious man too . And I thought a past supporter of the disabled. Guess he’s been bought . What a disgusting thing he is

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Hi jasmine,

    I also have fibromyalgia plus ME arthritis etc etc . I have had assessments where I’ve had zero points and fought for 2 years to upper tribunal. My last assessor increased care but lowered mobility which I got back in MR. I really think a lot of it is luck on who you get as an assessor . My conditions can’t be cured in fact the fatigue with ME can’t even be treated yet I’m awarded for 3 years . I spoke to someone the other day who told me she’s on a lifetime award but knows someone with exact same condition which effects her the same way and she’s only awarded short awards. I think there needs proper guidelines that they need to follow the same as court judges have . The system so often isn’t fair to some of us though obviously it’s not other claimants fault and I’m glad to hear good stories. But for some it’s a real struggle to get an award . I get enhanced but don’t get a 4 point as the assessors don’t give them out . Next time I’ll have to fight again, in fact there’ll be a million of us at tribunal costing billions of pounds if they go ahead with this nonsense

  • jasminehoop
    jasminehoop Community Member Posts: 51 Contributor

    Oh and just to add to my post, in case it has an unintended implication, I mean only 13% of current PIP claimants are being adequately and appropriately assessed, whatever their conditions and level of disability. I do not mean that any of them don't deserve their award. Many of the other 87%, though, are currently not being assessed properly, and if these cuts go through, almost certainly never will be 😔

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I will vote for which ever main party supports us . Who ever it is they’re only thinking of their career but so be it . I said to kemi in my email this was started by the Tory’s and I wouldn’t consider voting for her with Mel stride as chancellor

  • jasminehoop
    jasminehoop Community Member Posts: 51 Contributor

    Hi Secret, we must've cross posted earlier, I didn't see yours until now, soz!

    Yeh the system as it stands is terrible, it lets so many down and unnecessarily forces very unwell and disabled people to jump through fiery hoops just to get what they're due 🙄 It's awful that people like yourself sometimes don't even score a single point, but when they get to tribunal it's immediately obvious that they've been diddled out of their rightful award by the DWP's nasty agenda. And only in the last couple of months have many of us become aware that the 4 point scandal has actually been going on for years! Like you and many others, my disability is only going in one direction, but the assessors and decision makers refuse to acknowledge the genuine chronicity and prognoses of irreversible deterioration and fob us off with awards made on piddling timescales! 😡

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Hi jasmine,

    I went to the upper tier tribunal as the tribunal were awful and played up to the dwp rep who also turned up . Strangely and I don’t want to jinx myself but the dwp have been fine . It’s the assessors and tribunal’s I’ve had trouble with. The assessors are a law unto themselves and it’s luck who you get . That’s how some people don’t get the award they deserve imo . It’s then natural to question how someone may get more but you feel your condition affects you more . It’s not begrudging anyone but the system has no logic or predictability. I personally think there should be a descriptor for fatigue and pain. The actual questions are too vague and don’t cover pain and fatigue directly. The system needs changing but starmer only wants to change it to make it worse. I really hope they stop this 4 point rule nonsense and attaching lcwra to pip. Let’s see what the news is today as it seems they’re leaking bits of info already as they’re now worried

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Front page of I newspaper an article that claims sources have said 9 in 10 people will not lose pip while analysis shows most of those that will lose pip are in Labour heartlands . I can’t read the actual article as I’m not subscribed but I’m someone on here will once they see it

  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
    edited May 2025
    The user and all related content has been deleted.
  • jul1aorways
    jul1aorways Community Member Posts: 394 Pioneering
  • jul1aorways
    jul1aorways Community Member Posts: 394 Pioneering

    Really! 😂 That sounds about right for someone who thinks that people are objects.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing
    edited May 2025

    Do you mean the article from I newspaper ? I haven’t read that so I don’t know what they’re saying the changes may be . It was elsewhere that they’re thinking one idea is to keep the 4 points but you pass is you get enhanced. So do you mean they could get rid of the 4 point rule but effectively also get rid of standard care ? So everyone on standard would no longer be disabled according to them . As you say on reassessment we can all lose a point . Thing is they can’t be that desperate to save money as what they hope to save from us they probably are giving to other benefits anyway. Plus the appeals will cost money and any court cases .

  • jul1aorways
    jul1aorways Community Member Posts: 394 Pioneering

    I think that is a fairly reasonable response from Kemi Badendoch. I'm getting some decent replies from my MP who's Conservative too. 😊

    However, it is self interest on their part as they will want to use whatever they can to critize Labour, as the Opposition.

    It doesn't matter as long as it pushes our issues with the Labour leadership's welfare cuts forward.

    Let's hope too that they may vote against the proposals, which is something they've hinted at. 🤞I've not asked my MP how he is going to vote as I don't think that I would get an answer!

  • bton1968
    bton1968 Community Member Posts: 155 Empowering

    scope site problem or just me ? ….

    i can't preview messages anymore using the drop down arrow

    Screenshot 2025-05-30 at 09-02-33 Green Paper Related Discussions - Page 87 — Scope Online Community.png
  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing
  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I newspaper reports on the high number of red wall who will lose pip . Daily express reports reeves going on a possible £100 billion spree in red wall areas . So is this trying to but back the votes they’ll lose due to people there losing pip ? Would be grateful if anyone who can read the I newspaper article could screenshot and post please

  • jul1aorways
    jul1aorways Community Member Posts: 394 Pioneering

    Hi Squirrel 🐿️

    That didn't sound as though it went very well for you. 😔 I am sorry to hear that.

    It's quite true that it's the luck of the draw on the day, with who you get, whether they will be half way reasonable or completely unreasonable.

    It is difficult, I agree to get the situation over to them with fatigue and in your case, pain. I hope that you might consider a suggestion from me.

    Over many years now, most of the 21 years that I've had M. E. I have used Benefits and Work. Their benefits guides really do help you to word your answers in a way that the DWP will accept.

    I'm afraid that their information costs £20 a year but I think that it's a small price to pay if it could save you thousands.

    They also do guides on MR and appeals too.

    Here's an article from the Fiancial Times that was put on here yesterday that you may have missed. It's good to see that they are backing down a little at last. It needs to be a lot more though.

    I believe that the suggestion in the article that ministers may try to use to pursade the MPs who are rebelling against the cuts to back down is very unlikely to work. I think that MPs will want much more generous consessions than that, with what I have read about them.

    I hope that you are not feeling too down after your experience. 😊

    jul1aorways xx

  • Wibbles
    Wibbles Community Member Posts: 3,555 Championing
This discussion has been closed.