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  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Exactly so how can they declare us no longer disabled due to the lack of 4 points . Not because specialists Drs have stated we are cured , just because we didn’t get a 4 point.

  • lincsgranny
    lincsgranny Community Member Posts: 201 Empowering

    Yeah baffles me to how we are suddenly cured because DWP Say so, I'd rather know tomorrow the results of it all as it messes with your head. I have to try and watch comedy to take mins of it keep busy

  • lincsgranny
    lincsgranny Community Member Posts: 201 Empowering

    Totally agree, fingers crossed the MPs have our backs 🤞

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    It’s not just financial either , there’s the losing the exemption from working . I’m in bed majority of the time resting , sleeping or in pain . There’s no cure for ME and no treatment. And that’s just one of my conditions so there isn’t a day that I don’t have symptoms, no good days. Am I expect we are all like that . How could I look for work ?

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    It’s less than the tweaks mentioned before. Nothing about those in highest keeping pip without needing a 4. Just they’ll give us pip for 13 weeks before they leave us with nothing. How is that an olive branch.

  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
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  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
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  • egister
    egister Posts: 1,102 Pioneering

    “We are the only developed country where the number of people in the labour market is lower than it was before Covid, the number of economically inactive people of working age is rising.”

    When the milk yield from cows decreases and cows become more ill, it is suggested to feed the cows worse. Gorgeous!

  • Wibbles
    Wibbles Community Member Posts: 3,553 Championing

    Carers Allowance is just £83.30 per week for a minimum of 35 hours (£2.38 per hour) - my wife/carer probably works for double this time !!

    If they paid at minimum wage - it would be £427 per week……

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    It’s absolutely disgusting and now they’re expecting people to do it for free plus work .

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Catherine I gave them a hard time this election. Had three of them all trying to help each other from my questions. I told them starmer can’t be trusted especially with the disabled

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    As someone who believes in animal rights and is against hunting I will no longer engage .

  • bton1968
    bton1968 Community Member Posts: 155 Empowering

    £83.30 PW and to add insult to injury, if you are in receipt of universal credit they deduct the carers allowance from your universal credit

  • Santosha12
    Santosha12 Community Member Posts: 4,365 Championing

    Human behaviour has been demonstrated to be far more harmful to nature than any restrictions on hunting.

    Anyway. Back on topic. The only parasites I see are the 1500 or so in the Commons and Lords.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    And I thought it was how a condition affects you not what it is . I have ME among other conditions and there’s no cure . Yet I’m constantly assessed.

  • johnnyy85
    johnnyy85 Community Member Posts: 266 Empowering
    Ministers on resignation 'watch-list' over welfare reforms

    The government is wary of ministers resigning over potential changes to benefits, Harriet Harman tells the Electoral Dysfunction podcast.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    It still has to go to the vote whatever Kendall says

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    But the figures don’t show how many people should have been awarded a 4 but as they had enough points for an award they haven’t appealed. I found with my last assessment I was awarded 2 points on at least one , possibly two , where it should of been a 4 but as I was given enhanced I didn’t even check my award letter to the 4? Point rule came about

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I hope they do . It’s the only way to save themselves even if they don’t care about us

  • Dav1D
    Dav1D Community Member Posts: 78 Empowering
    edited June 2025

    https://www.thecanary.co/long-read/2025/04/01/dwp-cuts-me-cfs/


    Two 'New Labour' party MPs, sit on the parliamentary group for ME (Myalgic encephalomyelitis), and yet at the same time are openly and publicly supporting Labours benefit cuts.


    Freshly elected Exeter MP Steve Race, and Gen Z Labour right newcomer MP for York Outer, Luke Charters.

    The think tank, Labour together, was inextricably wrapped up in the (frankly evil), 'get Britain working group' of 34 Labour MPs. 
    This was brain child of Starmers chief of staff, the infamously despicable low life Morgan McSweeney. (This guy needs to be sacked ASAP)


    (This is a group of extreme right wingers, a product of the demon Blairs New Labour) 
    It is reported that it is already nearly impossible for people with ME to get PIP.


    The most recent data shows 56,102 claiming PIP have ME listed as their primary condition.
    The chairman of the ME association,  wrote to Liz Kendall about the cuts stating that; 
    '...many people with moderate or severe ME/CFS, and Long Covid, are still being refused sickness and disability benefits. They are only succeeding when there is a reconsideration of their case or they go to appeal....'

    MEA writes to the Rt Hon Liz Kendall, Secretary of State for Work and Pensions - The ME Association
    Patients with Long Covid (And other rarer diseases, such as Sarcoidosis, etc) also meet over 50% of the same diagnostic criteria as patients with ME.


    The severe cases are completely crippling, but it is extremely difficult to get recognition of the completely disabling symptoms when claiming benefits.
    More than two million people – including children – are now living with long Covid. 
    it is known that 381,000 long Covid sufferers are “severely limited in their ability to undertake their day-to-day activities”. 


    Since the pandemic struck in 2020, there has been a marked uplift in the number of people claiming health-related benefits.
    If they impose the cuts, the are going to kill people, the most vulnerable, and yet all I see Starmer saying is these cuts are designed to get young people back into work!


    The pathways to work green paper fails to consider that people who meet the very stringent criteria for being in the LCWRA ‘support’ group claiming NS-ESA, who meet the criteria set for both ‘Mobility’ and ‘Risk’, (having spent many years being assessed by numerous expert doctors), may not score 4 points in any one daily living PIP descriptor.  


    Its life or death and they are making people, who have already been through the fire, been through absolute hell, suffer tremendously, by dangling these cuts.
    I think that a lot of this must be down to extreme ignorance about how peoples symptoms affect them. The alternative is that we are dealing with outright evil.

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