Green Paper Related Discussions

Where did you read that ? I have fibromyalgia and ME and there’s no cure and it states it on the NHS guidelines. .

Thank you Charlie

I think it was a post with this link, if you scroll there are LCWRA descriptors.

https://www.benefitsandwork.co.uk/universal-credit-uc/uc-faq/limited-capability-for-work-related-activity

But I might be getting it wrong, my head is a mess right now. I thought it sounded like saying 'you can only get benefits if your really really bad and can barely move without help'.

And that's not the case for all with ME and fibro but they're still extremely limiting and no cure, so I was worrying they would dictate if it's not bad enough they'll take away support.

I'm just STRESSED.

Thank you . Hope it’s not the case as it’s the nhs who say what is lifelong not government. And it’s supposed to be how the condition affects us not what it is

Hi gecko , yes I read that yesterday. I think you’re referring to the mobility question. They are several questions and if you’re on lcwra you must of passed it already . I know what you mean , my ME is so bad I’m exhausted and have bad brain fog . This whole situation is draining. But at least Wes streeting is going to find the cure for fibromyalgia and ME so at least there’s that .

Me like alot of other people have never been assessed for lcwra as when I moved over voullentatrlly to UC my support group status automatically puts me in the lcwra group , alot of other people being migrated over will be in that postion but keep seeing this makes me worry that the ESA support group assessment is not the same as lcwra , I was led to believe they were identical and if you always past ESA reasesmeent the lcwra would be the same

All these references to this is confusing me , are these when the changes come when the wca gets abolished in 2028 or are they in regards to the standard WCA of now .....

Im on cbesa and lcwra but no pip .... So I'm just trying to concentrate on what's Infront of me now , that being a standard reassessment for lcwra and concentrating on passing that , that should take me up to 2028 or past it , then I'll turn my attention to the new pip criteria when it takes over from the WCA

I'm going to have to take a break from here for a little while , it's just constant , all ifs and buts and guess work , complete worry from the moment you wake to the moment you go to bed , nice people on here , but this site can be a trap .… The amount of hear say and media articles that give you hope one min then bring you down 20 mins later .... The facts are none of us know what is going to happen until they debate it , once we know we then know exactly what we're up against , we're just being fed media bias from different outlets with different agendas ..... All this worry and nothing changes until we know a little bit more about it , it's making my OCD and life completely unmanageable constantly trying to read in to things , take care people , I'll have a look in when we know more on Wednesday

Isn’t it a vicious circle? Wake up stiff and in pain due to fibromyalgia then lay in bed trying to relax muscles. Walk about a bit to relax then I’m fatigued again . I actually have it written from my past therapist to rest every 15 minutes so how can I work ?