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  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Wouldn’t changing descriptors have to go to the vote though ?

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    How would that even work as pip leads to lcwra so would the reduce uc by the amount of pip ?

  • chiarieds
    chiarieds Community Member Posts: 17,404 Championing
    edited June 2025

    Hi @secretsquirrel1 - it's just to my mind, & I have a somewhat medical background as a long retired physio (tho I still read about medical matters) that absolutely no-one will be the same from day to day as far as their symptoms go. This is all about the 'descriptors' in a life long condition that as far as medical knowledge currently goes is not going to improve. In your case there's no treatment that can help according to the NICE guidelines. Difficult for the DWP to go against that.

    So, if the descriptor usually applies, & I can't see how the DWP can dispute this, then usually such a descriptor will normally 'constantly' apply.

    I don't think the wording helps as they are avoiding the use of the word 'usually' (I think to avoid fluctuating conditions), but if you have been placed in the LCWRA group, I don't see how they can ascertain that any descriptor absolutely has to be 'constant' if you otherwise qualify with a life long condition that has been diagnosed by someone in the NHS.

    To put it another way, the LCWRA descriptor is correct, & always will be (unless you report a 'Change of circumstances' & would be re-assessed & things therefore might change). The LCWRA is the constant, but this can't physically or mentally be for every minute of the day; it just wouldn't be possible.

  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
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  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
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  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I really hope you’re right but it’s still unfair on those with fluctuating conditions. My main conditions of ME and fibromyalgia are constant every day in that I wake stiff and in pain due to fibromyalgia then if I over exert myself which is good for fibromyalgia I get PEM from ME. I have it written from a therapist 13 years ago I have to rest every 15 minutes to pace myself. Now I have cervical spondylitis so resting triggers that and the neck pain causes migraines. Plus pains down my arm yo my hands. I also suffer bad cramps I assume from fibromyalgia as bloods didn’t show anything. The leg pains are every day as is the fatigue. Yet I got a 2 year award increased by dwp to 3 years . The idea I could not only lose pip but be made to work is scary are its not possible. Thank you for your advice it’s much appreciated x

  • Zipz
    Zipz Community Member Posts: 4,345 Championing
    edited June 2025

    I don't know but it's been mooted on a respected disability news site, repeated in B & W comments, and is now all over X, Facebook, Reddit. A move like this would wipe me out. I collapsed when I read this news. It's on YouTube now:

    https://youtu.be/KbQgc7qNLG0?si=N0yNzhKmtdY0cKQC 

  • apples
    apples Community Member Posts: 554 Empowering
  • Jamk85
    Jamk85 Community Member Posts: 56 Empowering

    The only vote MPs need to be making is a vote of no confidence against starmer.

    I know it will probably never happened anyway :(

  • Zipz
    Zipz Community Member Posts: 4,345 Championing

    "Labour MP Liz Kendall previously said there are 1,000 new Pip awards every day – “the equivalent of adding a city the size of Leicester every single year”."

    I assume this figure include teenagers coming off DLA and applying for PIP. If so, Kendall gives another false impression.

  • Danny123
    Danny123 Community Member Posts: 229 Empowering

    I don't buy for a minute that there are that many people a day being awarded pip

  • egister
    egister Posts: 1,102 Pioneering

    -Please check if the flashing light is working?

    - It's working, it's not working, it's working, it's not working…

    ☺️

  • egister
    egister Posts: 1,102 Pioneering

    This is a consequence of the social model of disability. Disabled people should be taken into account and receive payments separately from other vulnerable groups, I believe.

  • luvpink
    luvpink Community Member Posts: 4,875 Championing
    edited June 2025

    I have been trying to distract myself from all of this as much as I can because otherwise it can become completely time consuming and I refuse to let that happen.

    I live in a beautiful place, the weather has been great this week and I have sat outside overlooking the sea.

    I hope you all manage to have a good weekend.

  • mrsBB
    mrsBB Community Member Posts: 297 Empowering

    This worries me Zips. I am not mega loaded, wish I was, then I could live on my basic state pension plus Zillions in savings lol 😁I live alone and because of my complicated circumstances I am £3 odd above the threshold for pension credit ugh, mind you I would prefer to stay as I am rather than have to tell pension credit every time I need to ''spend a penny'' 😆 I just hope if they do go down that route that the threshold is not a stupidly low one like PC and the original Labour WFP. Something else to add to the long list of Labours hatred of the disabled and old, we really must all be an obnoxious burden in their eyes 🙄

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    What they’re doing makes no sense especially if they say they’re trying to get people to work. This would prove they’re lying as more people won’t be able to work.

  • mrsBB
    mrsBB Community Member Posts: 297 Empowering

    True 😡It is a stupid proposal, if it does become one. PIP helps folk to work and stay in work, so now if folk work plus get PIP and that means they go over the threshold they take their PIP away plus the car they use to get to work, that disabled person now cannot work, has lost PIP and the merry go round starts again. Crazy, crackers, the lot of them 😦

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I really don’t think they know what they’re doing. They just seem to look back at the Tory’s and copy them . I actually had a reply from starmers office a copy of days before the parliamentary talk last Wednesday. First thing they said was it’s the Tory’s fault. Gave a load of rubbish but whoever wrote it didn’t sign their name just from the office of …

  • mrsBB
    mrsBB Community Member Posts: 297 Empowering

    I really think they are trying to squeeze the air right out of every disabled person no matter who that person is or what disability the person has. I truly believe they see us as a wholly obnoxious section of society that must be ''Dealt'' with one way or the other. Yes, the Tory rhetoric shines through on all these proposals and anticipated proposals. My Great Grandfather is no longer rolling in his grave he is hopefully walking amongst those in power who despise us so much and is going give them hell 😡

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