Disability Benefit Cuts - Take action before July 9th.

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  • luvpink
    luvpink Community Member Posts: 5,328 Championing

    Good morning

    I have had a break from this for a while but I have been keeping an eye on the news.

    There is a lot of speculation and until I know for definite what our fete is I have not spent too much time worrying or letting it affect my health.

  • Dav1D
    Dav1D Community Member Posts: 78 Empowering
    edited July 2025

    No, but I got a rough letter drafted for me. Anyone is welcome to use it as a template to address the SCC issue, if struggling.

    Dear MP

    I am writing to express my deep concern regarding the Universal Credit and Personal Independence Payment Bill, and in particular the Severe Conditions Criteria (SCC). I’m writing to ask you to support Amendment 17, tabled by Graeme Downie MP, during the Third Reading of the Universal Credit Bill on 9th July. This amendment would ensure that people with fluctuating conditions—such as Parkinson’s, MS, ME/CFS, Long Covid, Sarcoidosis, and many others, are not excluded from the new “severe conditions” criteria.

    This legislation, if passed in its current form, will devastate the lives of millions of disabled people across the UK. The SCC requires claimants to demonstrate that their impairments affect them “constantly”, defined in the Bill as “at all times” or “on all occasions on which the claimant undertakes or attempts to undertake the activity”.

    This definition is not only medically inappropriate—it is devious and deceitful.

    I have ******illlness***********, in order to qualify for LCWRA support group it is neccesary to prove that I cannot undertake an activity for the majority of the time, but the reality is, there is a…. ******************************short descripton of illness and symptoms affect me***************************

    The new SCC definition is deeply problematic for people with fluctuating conditions with complicated symptoms varying day to day or even hour to hour. These illnesses follow unpredictable patterns, with periods of remission and relapse. Yet under the SCC, individuals with these conditions will be denied the higher rate of support, despite being already found to be permanently unable to work, according to the Govs own criteria. The government’s refusal to engage with medical experts and charities is deeply troubling. The SCC’s rigid criteria will exclude eight in nine current support group claimants, even those with lifelong conditions. The DWP is fully aware of these consequences. The speed at which this Bill is being pushed through Parliament suggests a deliberate attempt to avoid scrutiny. If passed, it will leave many unable to afford basic necessities, including housing.

    The manner in which this has been handled is abhorrent.

    I urge you to:

    Vote NO on this discriminatory Bill.

    Support amendments that: Scrap SCC cuts entirely.

    Retain the full £423.27/month health element. Include fluctuating conditions like ME, MS, Parkinson’s, Long Covid and Sarcoidosis. Accept private and international diagnoses. Ensure compliance with the UN Convention on the Rights of Persons with Disabilities. This is a matter of justice, dignity, and survival. Please confirm your stance.

    Yours sincerely,

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Amendment 17 hasn’t been chosen apparently. Amendment 38 has but I don’t know what that’s regarding. If the amendment hasn’t been chosen does that mean the scc will go through in it’s current form?

  • Amaya_Ringo
    Amaya_Ringo Community Member Posts: 408 Championing

    I am 100% behind the people fighting to get the bill scrapped, but I suspect it will go through in some form or other (or there will just be another one down the line).

    I'm only PIP, so I'm more concerned about how the review of that will be carried out, but I'm not letting myself get too wound up by it. If I did, it'd affect my ability to work (ironically), so I won't.

    But I am rooting for everyone here in the vote later, that whatever happens is the right thing.

    Also, this govt, like previous, have dodged enshrining the UN values in law, so while we are signed up to the treaty, they are able to bounce around on it and ignore the UN's opinion if they want to. It just shows the contempt of successive groups of politicians for disabled people in general.

  • Holly_Alumni
    Holly_Alumni Scope alumni Posts: 6,534 Championing
    edited July 2025

    Hi @secretsquirrel1 only what's presently denoted in the bill, which is from April 2026 people with SCC are expected to be entitled to higher rate of the UC/LCWRA however this SCC rate is expected to be frozen at the 2025/26 rates from April 2026 until 2030. Pre-April 2026 claimants are expected to receive a higher rate. The criteria does route back to an earlier reference, so I think this might be covered within the Timms review (but don't quote me on that as I'm no legislation expert). Has there been a change I'm not aware of yet?

  • Andi66
    Andi66 Community Member Posts: 1,468 Championing

    It's on at 1.30 pm on parliament tv .

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Hi holly ,

    It’s the fluctuating conditions part for lifetime awards without repeated assessments I’m hoping will be included

  • mrsBB
    mrsBB Community Member Posts: 297 Empowering

    I am the same since recently becoming an ''old'' person, only now on PIP but I was on CON based ESA in the support group. I am really giving whatever support I can to those younger than me, I feel they are in for a very rocky ride if not now, at some point, in the not to distant future.

  • Holly_Alumni
    Holly_Alumni Scope alumni Posts: 6,534 Championing

    Hi @secretsquirrel1, to be honest I'm not sure. It doesn't directly reference it (from what I can see) in the bill. I'd be interested to see how this is covered in the Timms review. It's a really good point, and if you do see anything please let us know.

  • Danny123
    Danny123 Community Member Posts: 229 Empowering

    Don't get me wrong the worry will be back as bad as ever soon enough , but if you can just give yourself a little break it really helps I've found , I feel with all the stress the government puts us under we forget what enjoying the simple things feels like

  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
    edited July 2025
    The user and all related content has been deleted.
  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I will holly . I think it’s amendment 17 if I remember correctly

  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
    The user and all related content has been deleted.
  • Wibbles
    Wibbles Community Member Posts: 3,685 Championing

    Does anybody know why the 3rd reading of the UC and PIP bill is so late tonight (7pm) ?

    seems that they purposely do these things late to cut down the number of dissenters ?

  • Holly_Alumni
    Holly_Alumni Scope alumni Posts: 6,534 Championing

    Hi @Wibbles . Not sure, it might be standard to be done end of day. They're currently discussing the bill as we speak, so it may be later to allow time for this. It's all a little new to me as I've only started watching parliament more closely since the benefits welfare bill.

  • Holly_Alumni
    Holly_Alumni Scope alumni Posts: 6,534 Championing
    edited July 2025

    @secretsquirrel1 Rachael Maskell is raising the fluctuating issue now in Parliament and her proposed amendment. Looks as though as it stands, people would potentially be returning on to the lower amount. Doesn't specify SCC/non-SCC, she's pushing for all to be protected.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Thank you for the update. I really hope fluctuating conditions get included more for not having constant assessments than anything else 🤞

  • Holly_Alumni
    Holly_Alumni Scope alumni Posts: 6,534 Championing
    edited July 2025

    @secretsquirrel1 Kirsty Blackman is addressing it now too. She's just said DWP press releases say fluctuating will be covered in SCC. Bill says has to be constant and so she's requesting further clarification from the minister. She's going in to more detail but I'm struggling to keep up typing it all 😅 but the fact that they're raising this can only be a good thing. Light is being shone on it quite a bit today.

  • Danny123
    Danny123 Community Member Posts: 229 Empowering

    Hopefully people in our position

    ESA / lcwra or just lcwra will maybe even get away with not being reassessed at all untill 2029 .... Although I'm expecting one

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Thank you so much . This could help so many of us with fluctuating conditions 🙏🤞

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