Hello again
Comments
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Fingers crossed @rubin16 you get the help you need soon .
Sending lots of well wishes your way
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Thanks, yeah I am so tired. I only sleep for about 4 hours at night before pain wakes me up and then i'm awake again wanting painkillers. I try to cat nap too during the day but everytime I just about nodded off, someone wakes me again to do something.
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Thankyou, sending lots of best wishes back to you. Take care
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You can go at least a month without food but you need water. It should not get to that, the dietician should be with you, keep asking where is he/she? Think positive, you'll be better off without that excess weight anyway.... You'll come out of that hospital slim, fit and healthy.... Keep having a walk around too if you can manage it, keeps your muscles going! Nothing is going to happen to you, if concerned speak to the doctor assigned to you. Try and relax as getting stressy will not help your situation.... I'll be following this thread so keep posting. Get well soon!
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Thanks, i'm feeling more positive today than yesterday.
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Good! You have a phone or tablet, sign in to ITVX and watch some films or something, take your mind off your current situation for a while. Easy to sign in, email address, password and a couple of questions. Sure the Wi-Fi in hospital will handle it! I'm on a basic internet package at home and it does not buffer when I'm watching the odd programme.
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Your in everyones thought @rubin16
Get well soon
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I have my laptop with me and on wifi, which is good. looks like i've set up an office in my room haha.
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Good. You have your own room I gather, they are great. I have had my own room a few times! Get a film on later and I gather it will be tea time shortly, get some food into you if you can!
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I'm always guarenteed to have my own room, I've never had different due to my complex needs.
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Good! Hope it's a warm room too, but you can adjust the heating to your liking.which is good. Cold up North and very windy, don't know if it is the same where you are but keep warm!
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Its really warm during the day but the room gets cold at night. but I like it like that, I sleep better when its cold so I wrap up in the sheets. My bedroom at home is basically a fridge.
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As long as it is OK for you, you don't want to be cold currently. Has the dietician been yet? This person is who you need to see! How you feeling currently? Get that film on, there are a few James Bond films and always a good watch even if you have seen them!
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Apprentley Dietician is coming tomorrow, I just took a few sips of that new nutritional drink they wanted me to try (Ensure Compact). 10-15mins later I was being sick again and had to have more anti-sickness and basically sick to the point my stomach is empty again. I don't know what the next option is but so far my body is refusing everything its given.
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@rubin16 Hope you recover quickly, it must be so scary going through what you’re experiencing. Sending you lots of positive vibes. Keep us all updated on your recovery.
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Thanks for your message, Yeah its scary, I'm just sick of being ill all the time and being in hospitals. I've been in hospital pretty much twice every year since I was 18. Its so bad that the staff know me well who've worked here over the years, I'm actually surprised they don't start charging me rent.
The even more annoying thing, its never a quick fix and i'm always in for like a month each time. I've never been able to have a normal life, finish studies or ever hold a job, and I hate being dependant on benefits but I just got to keep the fight up.
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Hopefully the dietician will be able to help! You need a bit of luck. Do they not give you steroid tablets to calm down the stomach inflammation? I know those people I mentioned previously with Crohn's take them too at times. Keep your head up and keep going, you'll be sorted soon!
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Keep the fight up and forget about being in benefits. You can't help it being disabled. Others can who aren't disabled but don't want to work, so don't you feel that way! Concentrate on you and getting better!
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That sounds unbelievably hard, and no wonder you feel worn down by it all. Being in hospital so often would make anyone feel frustrated and fed up — it’s completely understandable. You’ve had to deal with so much for such a long time, and it’s okay to feel how you’re feeling.
It’s also really important to remember that none of this is your fault. Not being able to study or work isn’t a reflection on you — your body has just put you through things most people will never experience. You’re still showing so much strength by keeping going despite everything.
And there’s absolutely nothing wrong with needing benefits. They’re there for exactly this reason: to support people who are dealing with serious health issues. You deserve that support.
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Agree!
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