Mental health

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Comments

  • rubin16
    rubin16 Scope Member Posts: 1,464 Championing
    https://forum.scope.org.uk/discussion/comment/1088290#Comment_1088290

    I feel that, my sleeping is so random. While here in hospital I go sleep at like 1am and wake again at like 4:30am in pain, then sleep and get woke up at 6:30 for meds then I just stay up.

    At home though I run alot on US time and won't actually go sleep till 6am, and wake at 11am.

    I actually don't sleep that much and found out I feel better running on 4/5 hours sleep than if I had 10/11 hours, I feel more with it and productive.

    I do occasionally however have a day every few weeks where i'll just catch up on sleep and sleep for like 12 hours.

    Hope you manage to get some rest, take care

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    Bless you @rubin16

    It can be so difficult when we have sleep problems

    We have to sleep when we can .

    Hoping and praying for better days ahead @rubin16

    What us humans have to deal with

    Alot

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    When ive not had a good sleep

    I will tell people at home my sleep was poor

    Whats is said to me is

    " you have only just woke up and your complaining "

    Yes in a respect I suppose I am .

    Arent people allowed to say when they havent slept well?

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    My mental health ruins everything

    Always saying and doing the wrong thing all the time .

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    I think me being who and or what kind of person I am is just one massive burden on people and society as a whole

  • Rachel_Scope
    Rachel_Scope Posts: 3,637 Online Community Team

    I (politely) disagree with that last comment @Strawberry1 😊

    You're definitely allowed to say you haven't slept well, I'm always saying that to my husband! Do you mind me asking who you live with?

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    I appreciate your support @Rachel_Scope .

    I live with someone is very impolite .

  • rubin16
    rubin16 Scope Member Posts: 1,464 Championing
    https://forum.scope.org.uk/discussion/comment/1088319#Comment_1088319

    From everything i've read about you and seen you're not the problem, its more the people around you being so negative to you and continually putting you down. Its no wonder you now beat yourself up so much, you've just adjusted your thinking into believing it because you hear it so often.

    But believe me you are not a problem and never were.

    You need to surround yourself with positivity and only people who will support you, not bully you everyday. it'll take time but you'll soon see the bright amazing and caring person we see in you on this forum and you'll feel better and your MH will improve.

  • Rachel_Scope
    Rachel_Scope Posts: 3,637 Online Community Team

    Lovely words @rubin16. If you don't have any positivity at home you'll always find it here with us 😊

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    Thank you @rubin16 and @Rachel_Scope

    Im grateful

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    Things are fraught at home once again

    Trying my best to be strong

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    At present i have no where else to vent

    Hope i can be excused

  • Nightcity
    Nightcity Community Member Posts: 692 Pioneering
    edited December 2025

    my sleep pattern is non existent

    on Sunday, Monday, Wednesday and Friday I am up at 4am with mum for her home dialysis, Saturday, 7am , Tuesday, Thursday 5am

    I have slept in the afternoon since age 16 used to be 3pm but as I got older and iller it's normally now half 1 to 3.

    As Rubin said and I said to you before strawberry it's definitely not you who's the issue, I know you quite well now over almost 3 years.

  • Rachel_Scope
    Rachel_Scope Posts: 3,637 Online Community Team

    I'm sorry things are difficult at home @Strawberry1. Are you able to be in a room by yourself to have some space?

    @Nightcity seems like you're dealing with a lot right now. It's wonderful that you're helping your mum but I can imagine it's very tiring. Did you get your test results back?

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    @Nightcity , the stresses of life i think has a big impact on our sleep .

    Stress is not helpful to any of whatsoever .

    I remember when i was young i fell asleep in the afternoons too .

    Wish sleep problems were easier to tackle than they are .

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    So grateful for your support @Nightcity it means alot too me .

    Im lucky to have good friends here

    Very lucky indeed

    Thank you so much

  • Nightcity
    Nightcity Community Member Posts: 692 Pioneering

    @Rachel_Scope yes this morning at 10 ish, it's not heart failure but some oddities require further investigations in 2026. he'll phone mum tomorrow and put me on a couple of things over Christmas to control the symptoms, hoping that mums heart failure will be reversed with this ablation on 18th then she can have the kidney transplant next year.

    @Strawberry1 Absolutely no thanks required it's always an absolute pleasure to spend time talking to you, I'm trying to deal with my anxiety and stress within my limited ability to do so

  • Strawberry1
    Strawberry1 Community Member, Scope Member Posts: 9,132 Championing

    You are going through so much @Nightcity

    I wished this wasnt the case

    I do hope your mum get her appointment ASAP.

    We are all rooting for you and your mum

    All of us are

    Your bound to be dealing anxiety with everything going on

    And its bound to become stress too .

    Dealing with all of this is bound to push the limits of the most calmest person @Nightcity .

    Im so glad you talk it out here

    This forum is a God send

    Its remarkable .

    So glad we can come here and be in the company of such good people .

    Sending tons of empathy and compassion your way

    Sending tons of peace and harmony your way too and a gentle supportive hug if that is ok

    God bless you

  • Nightcity
    Nightcity Community Member Posts: 692 Pioneering
    https://forum.scope.org.uk/discussion/comment/1088439#Comment_1088439

    And this lovely post is the proof that you are NOT the problem.

    I am ok honestly I'm used to it all, I'll just be happy if mum can get a normal life back thankfully if they get it right hers is reversible the type of heart failure and the kidney failure. I am just paranoid after the cardiac arrest on last attempt, but they'll sort the heart first and be sure this time before she goes back for another try with the transplant.

  • Rachel_Scope
    Rachel_Scope Posts: 3,637 Online Community Team

    I'm so glad it's not heart failure @Nightcity. I hope they're able to control the symptoms whilst you wait for more tests. I really hope your mum's ablation goes well. How long will she need to stay in hospital afterwards?

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