Young people living with cerebral palsy β we want to hear from you
π¬ Young people living with cerebral palsy β we want to hear from you.
Adults often talk about the experiences of young disabled people. Scope and the Cerebral Palsy Network want to make sure weβre listening directly to you.
Weβd love to hear your perspective on:
π How does fatigue actually feel for you?
Not just being βtiredβ β what does it feel like physically or mentally, and how does it affect your day?
π€ What do adults misunderstand about living with cerebral palsy?
Parents, teachers, health professionals, support workers β what do you wish they understood better?
π What support genuinely helps?
What makes school, college, work, friendships, travelling or everyday life easier?
π£ What do you wish your parents, carers or teachers knew?
What would you tell them if you knew they were really listening?
There are no right or wrong answers. Your experience is your experience, and we want to learn from it.
Your views can help Scope and the Cerebral Palsy Network better understand what young people need β and help us make sure your voices are part of the conversations that affect your lives.
π Share as much or as little as you feel comfortable with below.
Thanks
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@Lucy_Scope, @SaraC_Scope and @Richard_Scope the Cerebral Palsy Network team
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