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  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    Hi @Toffee, if I can help in any way with writing letters for you please please just ask. I’m more than happy to draft something for you. I think what you’ve written is perfect, it says what you need and thanks them for what they’ve already done for you. Let’s hope you get a quick reply xx
  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    And the same goes for the dreaded forms @Toffee, I’m only a message away hun xx
  • Toffee
    Toffee Community member Posts: 251 Pioneering
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    Oh thank you tigermoth42 xx
  • Toffee
    Toffee Community member Posts: 251 Pioneering
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    Yes you are right lilybelle I was up till 3am and on it 7am till just now.. My head is in a spin but my esa Mr is nearly done i am at the doctors at 4pm I feel for the gp cause off dwp it's more pressure on them this system bad 
  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    Hi @Toffee, how are things with you today? Hope you got on ok at the doctors, did you get your MR sent off? All best wishes, Gail 
  • Toffee
    Toffee Community member Posts: 251 Pioneering
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    Hi tigermoth42 
    Still working on my MR nearly finished for esa one
    Doctor  letter was no good 
    So got to put in for another one tomorrow 
    Dr sent me to rheumatology for diagnosis off fibo after 3half years 
    And changed my medication 
    So am geting  there
    How are you? Xx
  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    Evening @toffee, I’m not too bad thanks hun under the circumstances of all the stress of my PIP claim. Can I ask why the doctor’s letter was no good. I only ask because I’ve been advised that you need to be careful when sending letters of support from gp’s. Sometimes they can be more of a hindrance than a help if/when your medical records might be asked for. Hope you have a peaceful evening my lovely, Gail  
  • Toffee
    Toffee Community member Posts: 251 Pioneering
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    Hi tigermoth42
    This is for my esa one now the dwp said they want a letter from my gp stating conditions and stating why she thinks am un fit for work.. Oh never ends can not wait till its all in the post.. The stress is just to much . Will put it back in again hope you av a good night to sleep well xx
  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    Oh @toffee I feel for you my lovely. I had an esa assessment and they put me straight into the support group with no quibble whatsoever. I also get a disability guarantee thing. It’s just a nightmare, I feel like I just want the world to stop so I can draw breath. Why, when we’re at our lowest ebb, are we given even more stress to try and cope with. Sending you hugs, sleep well too xxx
  • Waylay
    Waylay Community member, Scope Member Posts: 973 Pioneering
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    Hi all,

    I'm so sorry you're having so many problems with this. It happens to a lot of people. I also got 0 points for PIP, and my report was ridiculous. Said I had no specialist input for my mental health or my chronic pain - I'm in a Personality Disorders outpatient program, and have been at the pain clinic for almost 2 years (this is my second time there). I counted and there are 30 serious errors in the report. MR did no good - prepare yourselves for that. The DWP had a target that only 20% of MRs should overturn the original award, so it's fairly unlikely that you'll be one of the lucky ones. 

    However, once you get the MR letter you can appeal to HMRC for an independent tribunal. These often take months to arrange, depending on where you live (mine is at least 20 weeks), but they're well worth it! Currently the success rate for PIP is 69%, and for ESA it's similar! The panel is usually a judge, a doctor, and a disability "expert". It's a bit stressful, because they ask you a lot of questions, but they're well aware of the terrible standard of the assessor's reports, and make every effort to understand what your daily life is like. They tend to put much more weight on what you say than the DWP do. You can bring someone for support, although they usually can't answer questions. I've been to Tribunal 5 times for DLA, PIP, and ESA, and won every time. 

    You can send in a written submission for the Tribunal laying out your case, but it should be succint. They're not paid for the time they spend reading. 

    For filling in forms, the assessment, MR, and Tribunal, remember that, although you do need to tell them your diagnoses, your treatment and meds, etc., what they judge your case on is your functional ability. Also, you have to be incapable of doing the activity at least 50% of the time. In addition, look up the reliability definition. They often ignore this, so it can be very important for you to address it. You have to be able to do things repeatedly, safely, in a reasonable time, and to a reasonable standard.

    Example: Preparing and cooking food:
    Can you stand long enough to cook? If not, why? Can you do it if you use an aid? Can you do it if someone helps you? Do you need supervision (if you have epilepsy, or are on a lot of meds that make you unsafe) in order to be safe?
    Would doing it for one meal mean that you're too exhausted/in pain to cook another meal in the day? 
    Do you have mental health problems? Do you have serious problems motivating yourself to cook because of depression? Can you do it if someone prompts you, or assists you? 
    Do you lose concentration and forget that you're cooking? Have you booked pans dry, burned your food, caused a fire as a result?

    As for GPs letters, again, they need to confirm your diagnosis and meds, but most important is for them to talk about how your conditions affect you. They may not be able to comment on some things, like whether you can cook (they're not there, and if you've never talked to them about it, they just don't know). They might be able to say something about whether you can feed yourself, though. If you show up to see them and are extremely thin whenever you get depressed, they can say that. 

    There's a site called benefits and work which is absolutely fantastic. They have amazing guides for everything, and a forum with a very knowledgeable mod. They have a package you can give to a doctor/therapist which explains what the letter should comment on. It costs £20 a year to join, but it's well worth it!

    Medical evidence is useful to support your case, but the best evidence tends to be letters/reports which discuss your function. These can be from physios, occupational therapists, etc.

    Hope that helps, and good luck!

    Oh, and this whole process makes a lot of people ill, particularly if they had pre-existing mental health conditions. People often feel much more anxious, depressed, have more flares, more pain, etc. Have compassion for yourself, and definitely get some help if you're getting really ill. My anxiety and depression have skyrocketed, and I barely leave the house at this point. My pain is worse and I'm having far more frequent muscle spasms. I've started drinking unhealthily to deal with the stress. I've always been an insomniac, but at the moment it's completely insane - I'm on hour 50 of being awake. This kind of thing happens to a lot of people - you're not alone.

    Oh, and one more thing! A lot of the words the DWP uses have meanings you wouldn't expect. Example: a "simple meal" is a cooked (on the hob or in a microwave, but they ignore using the oveno one-course meal for one using fresh ingredients. You can find all this info on the web.

    Novel finished!






  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    Good morning @Waylay, what a brilliant and informative post! With the benefit of hindsight I went into the latest assessment somewhat unprepared. I guess because the last four/five I’ve had were reasonably ok experiences, I didn’t plan well for this last one, I definitely didn’t focus enough on how things affect me day to day, primarily because I couldn’t concentrate owing to the state I was in, and, overall, my claim wasn’t helped by the apparently complete misreporting by the HCA. I didn’t think to mention that my ‘simple meal for one’ consists of a TV dinner in the microwave, not one prepared from fresh ingredients. The only bad experience I’d had previously was an ESA health assessment about 6 years ago when I messed up the dates, missed the appointment by a day as we were on holiday in Cuba and I didn’t take into account the time difference. When I called to rebook the girl actually told me I had no business going on holiday if I was disabled, I was so taken aback I didn’t report it but it sums up the attitude of some people. I included letters from pain clinic consultant, mental health team and an X-ray report in support of my recent MR, like you my mental state is worse now than it’s ever been, I’m barely functioning, getting 2 hours max sleep per night and, on top of that, I’m trying to be supportive of my daughter who’s in crisis with her mental health. At least the sun is shining atm!  
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
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    My goodness @Tigermoth42, that comment about going on holiday is appalling! I really hope you're okay. If you feel like you'd like to speak to somebody or you need some support, you may like to contact Scope's helpline on 0808 800 3333. 

    It sounds like you have a lot going on at the moment so you may not wish to pursue this, but you may also like to register a DWP complaint.
  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    Hi @PippaScope, thanks so much for your message, I only hope she’s more compassionate with other people. I was so totally shocked at her comment that I didn’t even think about complaining and it’s probably too late now. I think I want to lodge a complaint about the Atos HCR, I’m waiting for a copy of her report but it would appear she’s been consistently incorrect in her assessment of my difficulties and, on some points, written the exact opposite of what I, and my husband, told her. As well as struggling to maintain some sort of life for myself and coping with my daughters situation, he, although great with my physical disabilities, just doesn’t get my mental heath in spite of acknowledging that I struggle. If it interferes with what he wants to do he can get very stroppy which just makes things worse. Sorry this sounds like a ‘poor me’ diatribe, I don’t intend it to be but sometimes I just wish the world would stop! 
  • Waylay
    Waylay Community member, Scope Member Posts: 973 Pioneering
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    @Tigermoth42 I'm so sorry to hear how much stress you're under, and that your daughter is also ill. I hope things improve soon. 

    Glad some of what I wrote is useful. I'm waiting for my 6th Tribunal, and I used to be a scientific researcher, so I researched PIP (obsessively :( ).

    The DWP don't make any of this clear, which puts claimants at a huge disadvantage. It just serves to support my suspicion that they do everything they can to take away benefits from people who are honestly entitled to them. I HATE them. 

    There's a huge amount of evidence that the process worsens both mental and physical health, and that some people commit suicide due to the stress, dehumanising treatment, and humiliation of it. If they really wanted us to get back to work, they'd stop making us worse every year or two!

    Sorry, ranting. Argh. I've made complaints to ATOS about my assessor, and to the DWP about my CM. I'm considering suing, as well, if I can mentally handle it. A woman sued ATOS last year and won! I think if more people did that, it would serve to draw public attention. Eh.

    Yes, sun!! The world is beautiful, even when people and government suck. Hugs to you if you want them. 


  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    Couldn’t agree with you more @Waylay and thank you so much for your kind words. I used to work for the old DHSS, Supplementary Benefit, back in the day. I hated working on the public desk as I just felt so sorry for the people I was interviewing. One woman, in desperation,  even left her young baby in reception because they wouldn’t help her, things haven’t changed in forty years! I don’t want to be in constant pain every hour of every day and have such crippling anxiety that I can’t go out of the house alone. Thank you for the much needed hugs and I send them back to you too x
  • Waylay
    Waylay Community member, Scope Member Posts: 973 Pioneering
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  • Toffee
    Toffee Community member Posts: 251 Pioneering
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    My esa Mr all ready 7 pages long.... put my letter request in again today to gp just wait for that to come back.. Hey I can then post it.. 
  • Toffee
    Toffee Community member Posts: 251 Pioneering
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    Esa told me there completing Mr in 10days instead off 30...dont no if that's good or bad
  • Tigermoth42
    Tigermoth42 Community member Posts: 243 Pioneering
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    Hmmm @Toffee, me neither! If they read all the supporting documents properly then the faster the better so people can get on with their lives. 
  • sandyp196
    sandyp196 Community member Posts: 142 Pioneering
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    I'm in a bit of a different situation and time is not on my side. The assessor awarded me 10 points on mobility. The decision maker reduced the points to 4. My OT and MHT are pushing me to do an MR, but I'm really scared I will lose the whole award. I did get awarded daily living,  I don't know what to do. 
    I don't understand how this govt can get away with a manipulative and abusive system like this. Iv already been awarded daily living so why should that be at risk to ask for a reconsideration on a different aspect of disability. 
    It's like being threatened that if you dare to appeal you could be punished.
    I do need the mobility aspect and the assessor agreed with this.
    My doctor is writing me a letter but I'm not sure I should do an MR.  
    I think my doctor and thr MHT are really bothered about this because the assessor (who actually met me) did award me the points for mobility.
    They are saying if the assessor awarded me 4 points they wouldn't be pushing me to ask for an MR. 
    Has anyone else been in this situation of having assessor points removed by the decision maker?  

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