when is somebody in power going to listen? - Page 2 — Scope | Disability forum
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when is somebody in power going to listen?

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  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
    Thankyou everyone for your replies. This is one HUGE can of worms, which needs to be opened right under the Prime Minister`s nose.
  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
    Is there not a petition demanding that government look at this MASSIVE problem, which we could all sign? Or have I missed it?
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
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  • cristobal
    cristobal Community member Posts: 984 Disability Gamechanger
    Is there not a petition demanding that government look at this MASSIVE problem, which we could all sign? Or have I missed it?
    Could you start one - and then post the link on here (if that's allowed?)
  • [Deleted User]
    [Deleted User] Posts: 587 Listener
    justdon My first assessor was a physio but she understood both my mental and physical health, the assessor I had in April was a nurse, nothing else, not specialised in anything apart from lying.
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
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  • zakblood
    zakblood Community member Posts: 419 Pioneering
    well i've said it here in the past, and now it's come true, as i said my ESA WCA was flawed from the start, as it seemed to be not only in more depth, but my last one was certainly different than my 4 previous ones and in little depth, now it seems all will be rolled into one,

    https://www.disabilitynewsservice.com/ministers-push-ahead-with-single-face-to-face-assessments-for-disability-benefits/

    welcome to the world of cost cutting, and be damned if they careless or get it wrong more often in the process, not they who suffer
  • mrbuttons
    mrbuttons Community member Posts: 221 Pioneering
    disabled people are easy targets, whether we are being attacked by bullies who subject us to violent hate crimes or a heartless government that treats us like parasites and spongers. i would be 100% behind a political party run by and for the millions of people affected by disability. we are the only group whose vote is ignored. no existing party deserves my vote because none have said anything about tackling the unfairness we face in all aspects of society.
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
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  • chiarieds
    chiarieds Community member Posts: 16,007 Disability Gamechanger
    I'm sure many assessors listen to people with disabilities, but then they have to tick boxes, not only about the 'descriptors', but also against any 'phrases' their system dictates. Therein lie errors, compounded by the fact that the DWP Decision Maker has no medical knowledge whatsoever, so is in no position to see contradictions in some assessors reports.

    I'm not sure I'm speaking to @justdon anymore   :'( some would never sit behind an assessor's desk but do try to help others here, chiarieds M.C.S.P.
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
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  • chiarieds
    chiarieds Community member Posts: 16,007 Disability Gamechanger
    @justdon - I'm a qualified physiotherapist, 'tho haven't worked as such for a long time (M.C.S.P. = Member of the Chartered Society of Physiotherapists). Sorry, thought you'd Google or guess. You did mention 'bl**dy physios; we're not all bad I hope!

    My apologies again....you might enjoy this one: I went for a Mandatory Reconsideration because I was deemed to be able to walk more metres than both I & my GP had said (just having been seen to walk 6 metres), 'because I didn't see a Pain Management or Physiotherapy Specialist.' I'd mentioned I was a retired physio at my assessment, which was documented, as had my GP in his letter. My GP had also said that pain medication was ineffective in those with my disorder.

    Inappropriate 'phrases' such as this in my case, 'also I appeared well nourished' (so therefore you can make a meal.....but actually I've always been rather underweight). Or 'didn't appear anxious, tense, or psychologically distressed,' as 66Mustang mentioned above are where we're all let down. An appropriately written assessment could be helpful, but having to tick boxes instead may fail those who need help.

  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
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  • Swordfish
    Swordfish Community member Posts: 54 Pioneering
    I'm tempted to make a walking stick and attach a bicycle bell, use it when I go to my Tribunal then tell them it's a navigation aid.      ?
  • chiarieds
    chiarieds Community member Posts: 16,007 Disability Gamechanger
    @justdon Profound apologies. I'm sorry to say I have also met a few physios that I'm deeply ashamed of. And yes, we were not trained to know about mental health issues; but for me the whole person mattered; I have always listened, & tried to learn from the patients I've met. ....which was in some cases probably more important than any treatment I ever gave.

    I think the whole PIP process drains those who should receive it ragged, & that assessors, from whatever profession, have difficulty in trying to find the 'right' tick box or 'phrase' to better help someone as far as the PIP system goes. And many of us don't neatly fit into a 'niche.'
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
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  • [Deleted User]
    [Deleted User] Posts: 587 Listener
    edited October 2019
    justdon ah no, I think i just had a decent assessor, the assessment was back in 2013, she acknowledged my mental and physical health with very little evidence, all she really had was a letter from the GP *shrugs*.

    Obviously this new assessor didn't think about the fact that FM and mental health problems are related eh? Might have to point that out in my MR?
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
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  • [Deleted User]
    [Deleted User] Posts: 587 Listener
    justdon no I find it hard to post on these forums nowadays due to certain people making my anxiety worse. I even edited the post that you responded to, that's how bad I am with forums and such.

    Yes, I do understand because I struggle explaining verbally as well and then this used against you at assessments.

    I kind of have an awareness but I don't fully understand it, what I mean by that is, I didn't even realise that the butterfly feeling that some of us get can actually be related to anxiety, it's not the feeling you get when you're excited it's a bad feeling and I have this every single day. I try and put it into words but I get frustrated because I don't know how to explain, I don't know if this is due to the fact that I have rubbish concentration and attention span because of my mental health and fibro.
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
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This discussion has been closed.

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